January 14th Update. A very happy New Year!!!
From Lyla's Team...
Please join Lyla's Team today in our fight against Neuroblastoma.
Although Lyla's family is fortunate to have very good health care coverage, her friends have set up "Lyla's Fund" as a safety net, in the event of unforeseeable medical and/or travel expenses down the road. With the hope that Lyla does NOT need to dip into her account, her family plans to pay it forward, supporting pediatric cancer research, as well as supporting patients and their families.
Lyla loves to run with her mom and go skiing with her dad. She plays lacrosse with her big brothers and tennis with her dog Echo. Lyla's Team is made up of friends who want to help Lyla and others beat Neuroblastoma, and get back to doing the things little girls are supposed to do. Lyla's Team is growing every day, and there's always room for more on the roster! Please join us.
Lyla's Team chose YouCaring and WePay as our donation partners because they are secure and reliable, and they only collect a very small percent of Lyla's donations (about 3%) -- the smallest percentage of all fundraising sites out there.
Please don't hesitate to contact Peter Denious at [email protected] or David Cote at [email protected] if you have any questions. We'd also love to add your pictures to Lyla's Gallery, so pass 'em along to Dave!
If you would like to make a donation directly to Lyla’s Team, please do so HERE, via Lyla's YouCaring page. Thank you! (...just make sure the transaction is fully complete and your transaction has posted before closing the window)
Again, thank you so much for your love and support.
From Lyla's family...
On March 17th, we took Lyla to her pediatrician to have her distended tummy checked out. Within hours, we went from the doctor's office, to Norwalk Hospital, then to Yale Children’s and Smilow Cancer Hospital and a diagnosis of Stage 4 Neuroblastoma. As you can imagine, in the blink of an eye, our world was turned upside down.
Lyla is currently through 6 rounds of chemo, 16 hours of surgery, 5 of 65 days of antibody treatment, 12 out of 14 radiation treatments... and over 100 nights in the hospital with countless other visits for blood tests and MRIs, CAT scans, PET scans, MIBG scans, and bone marrow tests. We are blessed that she seems to be responding well at this point and her spirits are great. ...and when she dips you all have come to the rescue with cards, pictures, videos, and tons of love and prayers...
The light that shines through this terrible situation is truly uplifting, and reveals how truly blessed we are as a family. We are so grateful to all of our amazing family members and our friends for your constant love and support. We have no doubt that our little girl has the strength to beat this disease. With your help, positive energy, and prayers, Lyla WILL beat this monster and help many families in the future...
Love to all,
Kacky, Philip, August, Christian, Owen and Lyla
Neuroblastoma is a cancer that develops from immature nerve cells found in several areas of the body. Neuroblastoma most commonly arises in and around the adrenal glands, which have similar origins to nerve cells and sit atop the kidneys. However, Neuroblastoma can also develop in other areas of the abdomen and in the chest, neck and near the spine, where groups of nerve cells exist. Neuroblastoma most commonly affects children age 5 or younger, though it may rarely occur in older kids.
There is very little known about why Neuroblastoma occurs, or about what factors increase the risk for occurrence. Seven out of 10 cases are not diagnosed until the disease has spread to other parts of the body. Neuroblastoma accounts for approximately 8-10% of all childhood cancer diagnoses. This very rare childhood cancer has only about 600 new cases per year in the US, or the equivalent to one in every 100,000 kids.