Super V - Victor Jarvis

For: Victor Jarvis
Organizer: Lacy Nichols
$6,750
of $7,000 goal.
Raised by 103 donors
96% Complete
This fundraiser is closed. Thank you for your support!

The Story

Victor Jarvis is a 2 year old little boy battling liver cancer (hepatoblastoma). He was taken to the ER after his family noticed a lump in his abdomen on Christmas Day. He is now undergoing chemotherapy treatments at St. Louis Children's Hospital.
His mother nearly lost her life after giving birth to Victor, but fought hard to live for him. Now we are fighting hard for Victor!

Fundraiser Updates

Posted on January 29, 2014

Posted on January 29, 2014

Big News:
Alpha-fetoprotein (AFP) is a protein that is produced by the liver. The normal range is something like 1-8; when this all began, V's AFP was more than 465,000. Just got word from his nurse that it is now HALF of what it was.
What's that mean? Simply put, it means Victor is kicking cancer's butt!! Take THAT, tumor!
***Victor-y***

Posted on January 19, 2014

Posted on January 19, 2014

1/18/14
I remember around this time last year, my third grade team met for our weekly meeting. Rather than beginning right away with discussions of assessments and teaching strategies, we spent a few moments around that table as nothing more than abunch of moms. In those few moments; I learned the most effective methods of removing Vaseline from a toddlers hair, how to clean vomit out of carpets and furniture, the fastest way to bring down fevers, among other things. Through the laughter, I mentioned (as a still somewhat new mommy), "I'm really lucky. V is a very healthy baby, he's only been on an antibiotic once." The room fell silent as all the moms looked at me in complete shock. One suggested I better knock on wood, and fast. The others laughed in agreement. I wish I would have listened. I buzzed my son's head today.
Earlier, we inserted something called an OG tube through V's nose and into his stomach. The doctors decided that it's time to get more aggressive about this poop thing, so they brought out the big guns: Go Lytely (you may be familiar with this liquid if you've ever had a colonoscopy). Adults would be expected to drink this terrible stuff within a certain amount of time, but Mr. V is just barely two and can't even take cherry flavored medicine without it coming back up. The OG tube acts as a direct line to the stomach. We've been pushing this fluid into his belly for several hours, and his tummy decided it had had enough. As I wiped the vomit off his chin and removed his soaking wet pajama top, I asked V, "are you okay, Buddy?" He began to answer by nodding his head, but the Go Lytely interrupted him by forcing it's way out of his mouth once more. V took a deep breath, swallowed, and then continued his nod as he said in the most sweetest of voices, "uh huh." The pure innocence and forgiveness that I find in him literally stops me in my tracks and takes my breath away.
Once we were finally clean, I lay him back down in the clean sheets and stroked the skin that only yesterday was covered with hair. I sang the song that I do each night, and when I finished; V rolled towards me, grabbed my hand and said, "Mommy, go ni-night." As if the events of today and tonight are completely normal. Well, I suppose they are these days.

Posted on January 16, 2014

Posted on January 16, 2014

It's been another long day as Mr. V is still feeling pretty crummy. His ANC is still at 0, but his hemoglobin and platelets have actually gone up a little bit!
We decided to put him on morphine today for a couple of reasons. The first andmost obvious reason is to help manage the pain and discomfort he's feeling from both the chemo as well as the constipation. The other reason we decided on morphine is because it's given through the IV which means one less oral medication (V has a difficult time keeping things down). We did an x-ray today that showed there is in fact stool in his colon. Late last night, after the meds came up yet again, I tried mixing the meds in ice cream. That continues to be the only way to get the meds in his system and keep them there. We are hoping that now that he's actually keeping the meds down, he'll go potty soon. If he doesn't go within 24 hours of his scheduled chemo appointment this Friday, they'll have to postpone it.
Though it took some bribing and a bit of a firm tone, I did get V out of bed for a bit today. As he rested his head on my shoulder, I noticed several strands of hair on the collar of his shirt... it's happening. My baby is beginning to lose his beautiful hair. *deep breaths* I choose to see it as a sign that the chemo is doing what it's supposed to do (but between you and me, it also breaks my heart into a million pieces).

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