Sorry I haven't updated in a few days, guys. I was super busy trying to score a job, but that didn't pan out. I'm still trying, but I have to admit, the failure over the last few days was kind of bumming me out.
Here are some things I thought I should share about my condition:
I have IIH (idiopathic inter-cranial hypertension), specifically pseudo-tumor cerebri. Basically, from what I've gotten out of my doctors and research I've done on my own, that means my body doesn't process the cerebral spinal fluid that cushions my brain from my skull.
That means that pressure builds inside of my head, causing pain, and in many cases, symptoms very similar to having a tumor in the brain (hence 'pseudo-tumor').
For me this causes chronic migraines, dizziness, poor motor control, and several speech/language issues including:
- nounal aphasia (misusing or losing nouns in a phrase)
- dyslexia (scrambling of letters or, at times, whole words in a phrase)
- lethogica (forgetting or losing words, names, places, and entire phrases while trying to articulate thoughts)
There are a lot of medications that have side-effects used to help this condition, but I haven't seen anything about a medication specifically tailored to help people living with IIH or pseudo-tumor. The treatment advised for me is regular spinal taps, to physically remove excess fluid from my body.
This process is a quick enough procedure, though I admit is is pretty painful. But it's candy next to the constant migraine and back pain.