Relieving the Pressure: I Need a Spinal Tap

For: Neoma Lindley
Organizer: Neoma Lindley
Relieving the Pressure: I Need a Spinal Tap (Neoma Lindley)
$5,950
of $5,950 goal.
Raised by 212 donors
100% Complete
This fundraiser is closed. Thank you for your support!

The Story

Hello. My name is Neoma Lindley, and I live with a condition called 'pseudo-tumor cerebri', or IIH. This condition causes severe migraines, vision problems, and at times leaves me in such pain that I can't function.

Treatment for this condition is a lumbar puncture and tap, to remove excess cerebral-spinal fluid. However, this procedure is expensive, and since my mother's death last April, I have not been able to afford a tap, meaning my inter-cranial pressure is very high, and I am struggling to function.

I need this tap, and I need it as soon as possible, but without aid there is no way way for me to get it.

Fundraiser Updates

Posted on May 16, 2013

Posted on May 16, 2013

So much has happened since last I was able to make an update.

Basically, the doctor I had been seeing finally told me that he was not liscensed to prescribe a spinal tap, evenafter assuring me back March that he could. And further more, despite not being a neurologist, and even after seeing  the history of tests that led to my diagnosis, he didn't fully believe that I had IIH. He was worried about my having a brain tumor or latent head injury.

Long story short, after having to spend nearly 1,800$ of the money I haveraised thus far on doctor visits and new tests, I finally have a prescription for my spinal tap!

There is only one hangup left, and that is the cost of my recovery. I cannot recover at home, because of the pet dander and risk of infection and spinal meningitis, and after the cost of those tests and doctor visits, I just have enough with some private savings for the tap itself. So I come to you guys for one last push -- help me get the last bit of money I need together to make this work!

Posted on April 21, 2013

Posted on April 21, 2013

I've been really tired lately, but I'm starting to come back. I'm putting my job search on hold right now, because at the level of functioning I'm at now, I wouldn't be able to really do anything at a job anyway. I can barely string a full sentence together outloud the last few days.

But with the weather starting to warm up, I'm feeling a little more energy, if no less pain. So that's pretty nice.

Posted on April 18, 2013

Posted on April 18, 2013


This is a picture I did a little while ago trying to visualize how I hurt. And maybe vent a little. It's kind of depressing that people don't seem to understand that a migraine -- especially a PTC migraine, is a lot more than just a headache.

Some times, I really do just feel broken, hollowed out and shattered, but I keep pushing on because the alternative is to give up.

I won't give up.

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