Linking Hands for Anthony

For: Anthony Weller
Organizer: Friends of Anthony Weller
$368,061
of $500,000 goal.
Raised by 765 donors
73% Complete
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The Story

Our Weller Trust has run out of funds. We have raised an impressive sum since 2014, but the costs of keeping Anthony alive and at home are ongoing, over $11,000 a month. We currently have a buffer of only two months.

Thanks to your donations, in addition to polishing his Mozart novel, Anthony has been inspired to begin work on two other books, including a young-adult novel. Despite his circumstances, the highlight of his day is the two hours he dictates, six days a week. But we still need your generous support. [Updated 10/2016]

Illness

In 2002, Anthony experienced the first symptoms of Primary Progressive Multiple Sclerosis. This is a very aggressive variety of the disease. Non-episodic, relentless, it never goes into remission. Shortly after his guitar technique faltered, Anthony needed a cane to walk, soon could no longer stand, then became chair-bound. Only his mind is untouched.

Musician and writer

A native of Georgia, Anthony Weller began his two careers at Yale. Until 2000, he was a busy guitarist and a writer. Magazine journalism paid him to roam the world for two decades. Seven books (four novels, a travel memoir, and two volumes of WWII history), and fifteen jazz and classical CDs bear witness to his productivity. See his websites: anthonyweller.com writeweller.com


The writer today

No longer a guitarist, Anthony remains a writer. He dictated his last three books to software; now he dictates to a typist, two vital hours a day. His latest novel takes place in the competitive 18th century musical world of Mozart. He has more books in him. With your help, his voice may continue to be heard.

Anthony’s needs

Anthony needs constant assistance; his wife Kylée, a yoga therapist, had to abandon her working life. The Massachusetts State health plan covers only part of the increasingly extensive caregiving costs, and the Wellers have exhausted their resources. But beyond basic human needs, a writer must continue to write. Adaptive computer technology, operated by mouth or head movements, will support Anthony’s work even as his body weakens further.

Our fundraising goals

We have worked with the Wellers to determine the cost of their needs following consultation with two professional care managers and a detailed compilation of actual 2015 expenses. In 2014, we budgeted $115,000 a year for three years, with an initial fundraising target of $300,000. The actual annual cost of their needs is likely closer to $120,000 a year and we intend to continue annual fundraising efforts beyond our initial target in order to insure proper care for Anthony. Gifts will flow through the YouCaring website to The Anthony Weller Trust.

Please note there are no mandatory fees due to YouCaring beyond a standard 2.9% credit card fee deducted from the donation received; to make your own decision regarding any Optional Payment to YouCaring's fine efforts, including “0”, please click on “Edit this amount” at the Donation page.

Give Now

Gifts may also be mailed directly to the The Anthony Weller Trust, Attn: John Weston, Trustee PO Box 416 Byfield,MA 01922. If you would like your name to be listed here for your mailed donation please indicate so when sending. Donations by check will not be subject to the 2.9 % credit card fee.

There is no tax benefit to the donor associated with a gift.

Please Give Generously


You can also support Anthony by purchasing his books as well as his jazz and classical guitar CDs at his web site www.anthonyweller.com

Fundraiser Updates

Posted on November 9, 2016

Posted on November 9, 2016

Anthony Weller, his wife Kylee and our You Caring effort to support them as Anthony fights MS and continues to write wonderful books is featured in the Phillips Exeter Academy Bulletin's latest issue. Read the article here

Posted on September 21, 2016

Posted on September 21, 2016

As Anthony embarks on writing a new book, having just completed a fictional memoir about Mozart's librettist, Folks Magazine interviews him about what it is like to write while completely paralyzed.  Asked about other famous writers who dictated their work due to health reasons Anthony replied " The lesson? Not to give up. I have no excuse. They did fine, so can I." Please continue to support Anthony and Kylee. 
Read this fantastic article here http://folks.pillpack.com/2191/paralyzed-multiple-sclerosis-writer-dictates-novels/

Posted on April 22, 2016

Posted on April 22, 2016

I realize now, more than ever, that we are blessed from birth with both time and health. Thank you all for giving me back both, to the extent humanly possible. Because of your generosity, we’ve been able to stay in our beloved home for another year and I’m being looked after daily by a team of reliable caregivers beyond any I’ve had before. Kylée is still 24/7, but she doesn’t have to fill all the gaps singlehanded.

I’ve had the calm to write a historically evocative, dirty, funny, and (I hope) touching novel set in Mozart’s era and the 18th-century opera world, which resembled hand-to-hand combat. I’m still rewriting. But I’ve gotten to the end several times; that’s a lot under the circumstances, since I dictate to a typist while lying on my back, staring at the ceiling. Gasping and gurgling, alas.

I do hope more of you will consult the Art Event page (http://anthonyweller.com/newartevent.html) before giving. Generous, talented friends—artists and photographers—have donated work for my benefit. Thus you can give to the Fund, and receive something beautiful in return. This seems, to me, a great arrangement.

To read your comments and messages is best of all. I suppose it’s a little like eavesdropping on your own memorial service: everybody remembers you at your finest. Except I’m very much alive! And I intend to stay that way, thanks to you.

We were lucky, here in coastal Massachusetts, to avoid the surreal metropoli of ice and snow of last year. Instead we got off remarkably easy. Heating bills were far lower, the daily cares seemed manageable, and even though I was forced to stay inside, I wasn’t attacked by bronchitis. Every day I entreat Fortune to let us emerge similarly unscathed a year from now.

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