Posted on September 25, 2013
Posted on September 25, 2013Wahhooooooo! After 61 days Kelbi will be coming home today! He will be going through months of therapy, but we'll keep you posted on his progress. As for now, going to bask in some happy moments! Pictures soon to come!!!
Posted on September 19, 2013
Posted on September 19, 2013Day 54....... Kelbi is taking great strides to make progress!! He has started taking steps with a walker!! Some days are better than others, but even saying that, every day is still an AWSOME day! He is now at 113 lbs and is spending most of the day out of bed and sitting up in a wheel chair :-) Yesterday we hung out and jammed to some Johnny Cash, Rise Against, Chili Peppers and played cards, which was AWSOME!! The doctors are still trying to figure out his heart rate and blood pressure situation and today there was swelling and extra sensitivity in his feet, but he still finished physical therapy and pushed through the pain. As of today, it will be one week until he is home!! And tomorrow, the update countdown will reflect that :-) Changing it up!! Can't wait, 7 days left!!!!
Posted on September 15, 2013
Posted on September 15, 2013Day 50..... Confirmed! We do believe Kelbi will be coming home on the 25!!! :-) He still has a long way to go, but at least we can do it in the comfort of home.... No more beeping machines or risk of catching something else. No more drab environment to remind him daily.... From here total healing mentally and physically... I'm sooo excited for Kelbi!!!!
Posted on September 9, 2013
Posted on September 9, 2013Day 45...... Kelbi is getting settled in to his new physical therapy location and adjusting well :-) Therapy today was AWSOME! He had some movement in his feet which although just a flicker, it is a sign of improvement! Goooo Kelbi!!
Posted on September 6, 2013
Posted on September 6, 2013http://www.myfoxorlando.com/story/23355444/teen-fights-mystery-illness
Posted on September 4, 2013
Posted on September 4, 2013Day 40...... Today marks 40 days since Kelbi was admitted to the hospital. Although he is still there, and has had a rough week since I last posted, including another trip to ICU, we received good news today. They read the results from his CT scan that was done yesterday and............ Shows signs of improvement!!!!!!! :-) His heart is strong and healthy and all vitals are looking good! Hopefully, we can get the ball rolling on getting him into residential physical rehab and he can start to " get back to normal" . It will be a long hard road, and he has a ways to go, but he has the fight in him to make it through. Kelbi has lost almost 40lbs and recently gained 3lbs back, muscles have deteriorated and he is pretty weak, but there is no doubt in my heart that he will overcome that as he did with everything that has tried to beat him down for the past 40 days! Now to buy him a new wardrobe for rehab as he no longer fits in any of his cloths and hopefully the start of a full speedy recovery!!! Sooo excited as this will be one step closer to bringing him home :-) Again, thank you to everyone who has been such an incredible help with the fundraiser as it was a tremendous blessing for us! And thank you again to everyone for keeping us in your hearts, thoughts and prayers!!!
Posted on August 30, 2013
Posted on August 30, 2013Day 35..... No changes today..... Kelbi is still in ICU under close watch for any decline. On the bright side, no changes is a good sign that he is not getting worse :-) As of now Kelbi has every possible team looking at his charts to help him get better :-) Short term personal selfish goal for today, have them being me an actual recliner do I don't have to sleep in a chair again Llol!!!
Posted on August 29, 2013
Posted on August 29, 2013Day 34....Day 34...... In the last 2 days Kelbi has had a decline in motor skills on the left side of his body and server headaches. This promoted another CT scan revealing hemorrhaging in his brain. Back in ICU. Please keep your prayers and positive energy coming.
Posted on August 25, 2013
Posted on August 25, 2013Day 29.... Kelbis lungs continue to look good!!! As most of you know he was originally diagnosed with ARDS. The flu was accountable for this and after 11 days of tests, they found out it was H1N1. Well apparently, this virus liked to cause even more damage after it has been treated. A few days ago, Kelbi began to have seizures and after a CT and MRI it was confirmed, ACUTE DISSEMINATED ENCEPHALOMYELITIS or ADEM, an immune mediated disease o the brain. fHe is undergoing treatment now and also on epilepsy medication. As if not he needed another problem, while back in ICU, he also tested positive for Cdiff, a bacteria commonly spread in hospitals to people who have been on antibiotics and have a low immune system. Both are being treated and hopefully soon we can pick up where we left of on Wednesday morning getting ready for inpatient physical therapy do he can learn to walk again. Thank you all for your prayers and all you have done to help! It is much needed and truly truly appreciate!!!
Posted on August 22, 2013
Posted on August 22, 2013Yesterday, after nearly a week out of ICU, Kelbi was put back into ICU. It began with blurred vision, dizziness and seizures. He is now sedated and intubated again. Last night he had an MRI and Tammy will be hearing the results this morning.
Please send all your prayers and positive thoughts Kelbi's way.