Zachary is a 15 year old boy who has been struggling with an extremely rare degenerative muscle disease called Ataxia-Telangiectasia. He was diagnosed at the age of 2 and has been over-coming one health battle after another. Even though he is wheel chair bound, he is a 2nd class Boy Scout, plays Challenger Little League, bowls for Special Olympics, is an older brother to 3 younger siblings, and wears his heart on his sleeve and cares more for others than himself. Through all of his challenges he always overcomes with a smile on his face.
On Wed, Dec. 18, 2013, Zachary was rushed to Memorial Hospital in respiratory distress. He was admitted within hours. Saturday morning, Dec. 21st is when Zachary began to fight for his life. His lungs couldn't continue to give him the support he needed and he crashed. Zach ended up having to be fully sedated, a tube placed in his air way, and put on a ventilator to help him breathe. During the next 3 weeks, he was switched to a stronger ventilator and 2 stronger oscillators to help his lungs heal. He missed Christmas and New Years with his 3 younger siblings.
When Zach was finally allowed to wake up and be taken off the machines, his mom thought that all he needed to do now was rest and get better to come home. She was wrong....
In the weeks that have followed, Zach has had 3 collapsed lungs, emergency surgery to have a tracheotomy placed and be put on ventilator life support, surgery for a G-tube to help him receive the calories he needs to thrive and regain all the weight he has lost, and another emergency surgery when Zachary crashed again and Drs discovered that he was bleeding internally into his stomach cavity.
After NINE long weeks in the hospital, Zachary is finally going to be able to come home. Zach's mom is raising 4 kids on her own & has missed work for the duration of Zachary's stay needing to be by his side. Bills are piling up, but the most important struggle now is that Zachary's whole entire life has now changed and he will now and forever be dependent on a machine to help him breathe. Insurance will NOT cover all the medical equipment he will need. Also, the family lives in a two story house and Zachary will no longer be able to go upstairs to be bathed. Drs have also explained to mom that since Zachary is wheel chair bound that the SAFEST medical way for him to be transported to school, Dr apt, and every day trips in the car is to be done in a wheel chair accessible vehicle which the family does not own or have any funding means to buy one.
We are hoping that there are generous people out there who will be able to help this family raise money that they desperately need to purchase medical equipment, have a new bathroom put in on the main level that is handicap accessible, and to buy a new van to transport Zachary to where ever he needs to go. THANK YOU FOR ALL YOUR SUPPORT!!!!