Help Clare & her young family fight cancer!

For: Wiley Family
Organizer: Jamima Wolk
Help Clare & her young family fight cancer! (Wiley Family)
$60,575
of $60,000 goal.
Raised by 351 donors
100% Complete
This fundraiser is closed. Thank you for your support!

The Story

*Please read the latest updates posted.

Clare's Fight:
Clare has been fighting Leiomyosarcoma (LMS) for 11 years having been first diagnosed at the age of 22. There is currently no cure for LMS and she has had to endure six very intrusive surgeries (heart, lung & two spine surgeries) over the years – and she is still not cancer free. 


Her most recent surgery came very unexpectantly and with news that more tumors are growing. At a time when she should be bonding with her newborn son (born via surrogate in early December), she is instead recovering from a 16-day
hospitalization where they removed a tumescent vertebrae from her back.

She had planned to stay home with her son but the recovery will take months and she is unable to hold him due to the surgery on her spine.

The Road Ahead
Despite having health insurance, the cost of a long term chronic illness is very expensive. Clare has had to give up her career as a high school biology teacher at a school in a more economically depressed part of the region - a job that she loves dearly and misses.

We have hope that she will be able to participate in a clinical trial at Stanford but there is no word on whether she will be accepted or if the trial is actually happening. If chosen, she will have considerable costs to travel to and from the clinic as well.

The money raised will be used for the following:

  • Medical bills/medications not covered by insurance
  • Co-payments
  • Daycare for their newborn son
  • In-home help for Clare
  • Groceries
  • Travel costs (gas, hotels, food, etc.)

Clare has always been very open with sharing her story (you can read more at http://wileybiomed.com/) and being very honest about the highs and lows she endures. 

Thank you for helping to give the Wiley family some hope and
strength to deal with the emotional and financial struggles they face ahead.

Fundraiser Updates

Posted on August 10, 2014

Posted on August 10, 2014

We thank you all again for the love and support you have given the Wiley and Long family during this sad time.

Many have asked how else they can help at this point, including giving flowers.

In lieu of flowers, the family asks that you donate at this site as future donations will go towards a college fund for Sidney. Or if you would prefer, you may donate to the group Fertile Hope which made the blessing of Sidney's birth possible.

Thank you!

Posted on August 2, 2014

Posted on August 2, 2014

Unfortunately Clare lost her battle today with cancer. We are all heartbroken but are relieved she is no longer in pain. The Wiley and Long family are so thankful to everyone who have contributed to this fund as it has eased the financial burden of making sure Clare was as comfortable as she could be during her final months. Please help us continue to spread the word so we can reach our goal and help support her 7 month old son Sidney's expenses going forward. 

I wanted to share this touching post from her brother Tony about her final moments...

Today at 8:20 am, at home, surrounded by her family, her baby, and cats, Clare passed into peace, calm, and relief. We were all with her at the end, surrounding her bed, holding her and comforting her. In her very last moment, she opened her eyes, looked into Sidney's eyes, and he looked into hers. 

For the last 11 years Clare has fought the ultimate battle, and she has been supported by a remarkable group of family, friends, and caretakers. Within all of us she inspired a fortitude, drive, and strength of character that we admire and struggle to comprehend. 

Even to the very end, she was a task driven achiever. She made sure everyone who needed to be here was here with her, and told us goodbye, apologized to us, sometimes intelligibly, sometimes not. When Aunt Julie walked into the room late last night, in the midst of her final struggle, as clear as day she said, "Hi Aunt Julie." And later in the night during prayer she said, "Hail Mary, get me the fu$k out of this pain."

Clare will be missed, but she lives on in all of us, and materially so in her son Sidney. Marie and Steve truly deserve awards for parents of the year. I really can't begin to explain the depth of care they provided, the love and compassion - it is unfathomable.

- Tony Long

Posted on June 28, 2014

Posted on June 28, 2014

This is Steve Long, Clare's Dad updating at 5:00pm on 6/28/14: 

On Thursday evening, it seemed as though Clare was leaving us.  We were not even able to get her blood pressure reading.  However, Friday morning she awoke from a very deep sleep and rallied.  She had come back to us.  She continues to be alert and responsive since then. 

Thank you again for supporting Clare's care. We love you all.  -Steve and Marie Long

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