Help Ashley Beat Sickle Cell!

For: Ashley Bryce
Organizer: Liana Cole
Help Ashley Beat Sickle Cell! (Ashley Bryce)
$7,256
of $10,000 goal.
Raised by 80 donors
72% Complete

The Story

Born with Sickle Cell Anemia, Ashley has been fighting the disease her entire life. On April 21, Ashley and her family will travel to Washington, DC for a long awaited bone marrow transplant, which should CURE her of this painful illness. Ashley's brother Blair, a 100% match, is the bone marrow donor. This will be a three year process that will require over a month of hospitalization. 

Shortly after receiving the news of Ashley's surgery, friends and family have come together to fundraise for the enormous expenses she now faces. Thank you in advance for your donations. Please keep Ashley and her family in your thoughts and prayers. 

About Sickle Cell Anemia:

Sickle cell anemia is a hereditary blood disorder, in which the red blood cells
that are normally shaped like a disc, take on a sickle or crescent shape. Red blood cells carry oxygen to the body. The abnormal cells deliver less oxygen to the body's tissues and can also easily get stuck in small blood vessels and break into pieces. This can interrupt healthy blood flow and dangerously cut down on the amount of oxygen flowing to body tissues.

Sickling decreases the cells' flexibility and results in a risk of various life-threatening complications. People with sickle cell anemia have painful episodes called crises. These usually last from five to seven days and often require hospitalization. Life expectancy is shortened. In 1994, in the US, the average life expectancy of persons with this condition was estimated to be 42 years in males and 48 years in females. 

Fundraiser Updates

Posted on April 22, 2014

Posted on April 22, 2014

Hi everyone! 

A lot has happened within the last couple days. In a nutshell, its been a very exciting beginning to the next six months of my life.

On Thursday, April 17, myself along with my mother and brother, loaded up the car and took the 17 hour drive up to Bethesda, MD. My cousin, Liana, flew in from Atlanta on Sunday and will be my caretaker for the first two weeks of my pre-transplant appointments. 

Yesterday, April 21, marked my first full day of appointments at the National Institutes of Health. I was told to fast from the night before, because my first appointment would require labs to be drawn from my newly inserted PORT (a permanent IV surgically connected to a vein in the chest). There was trouble accessing my port but after 6 tries, over 20 vials of labs were drawn. Next, I met with different members of my transplant team including the main doctor, Dr. Hsieh, and the pain team. Also, I had an assessment with the transfusion team to access my veins (none of which are viable) and plan for the exchange transfusion I am going to receive to prepare my body for the transplant. 

Today was a short day with only three appointments. I had to sit for a Brain MRI and Echocardiogram and then walk for 6 minutes for the pulmonary function test. 

So much more to come! I look forward to keeping you all posted.

Love,

Ashley

Posted on April 2, 2014

Posted on April 2, 2014

I want to give a huge thank you to all that have donated so far! It means the world to me! I leave for Bethesda, MD in less than three weeks and then I start my journey at the National Institute of Health. I will be giving updates once I arrive and start the process. But I just wanted to give a quick thanks for all the prayers and love. I truly have amazing people in my life. 

Much love,

Ashley

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