Posted on June 19, 2014
Hello! It has been nearly two months since my last update. To all of you that have helped support us financially and through prayer, my appologies. So much has happened since April but we are no further along to Mya's recovery or cure.
Let's see... Mya went down to West Palm Beach a couple of months ago for what we thought would be abdominal surgery to clear whatever it is that is blocking her intestines. Unfortunately, this trip turned into a real nightmare for the whole family. The surgeon wanted to perform a fundoplication at the same time as the abdominal surgery. This procedure takes part of the stomach and wraps it around the esophagus to prevent GERD or throwing up. While we didn't argue that Mya may need this procedure, we (parents and her doctor) tried to explain that Mya probably could not handle both surgeries at the same time. Instead of agreeing with us, he went nuts and called the Dept. of Children and Families reporting that we were trying to kill our daughter. Well, we had to play this out - my other two daughters were called out of school to be interviewed, Melissa and Mya were interviewed twice, once in West Palm then again at Wolfson's, I was interviewed and they had to come out to the house. Needless to say, after they did their interviews and inspection of the house, they realized what a farce the whole thing was. The result of this doctor calling DCF, though, had a severe impact on Mya. Her doctor and a surgeon here in Jax that has done procedures on Mya in the past wanted her back in Jacksonville. But the return (via ambulance) was delayed two days and hence we lost the window of opportunity for this surgeon. I can't tell the emotional toll it took out on the whole family, especially Melissa.
Well, she returned to Wolfson's via ambulance and was there for about a week with nothing more than trying to get her stabilized. She was discharged and sent home. Being at home didn't work out with the other two girls running around and Mya's need for calm and quiet so she and Melissa took up residency at a hotel downtown where they are now, waiting for an appointment with this local surgeon.
As you can read, we have been through hell because of the surgeon in South Florida and nothing was accomplished. Mya really needs abdominal surgery and we still don't know when that will happen. The surgeon is going to
initially perform an upper and lower endoscopy to see what is going on but beyond that...
A note about our fund-raiser. I set it for a year (last year) and it ended in April. I am not sure I can extend it. If you like to continue your financial support or know some one that wants to help, you can always continue to use PayPal - [email protected]
Of course, your continued prayers and thoughts are most welcome. Thank you and G-d Bless.