Posted on Miss Izzy Is coming Home!!!!! Now that we have a diagnosis to go on we will be returning home for the first time in almost 3 months!!! Izzy has mitochondrial complex 1 deficiencyThe prognosis for Izzy depends on her and how well she responds to treatment..... so far there has not been much change but we are remaining hopeful...
We will be going home on TPN and Lipids and the continuous tube feeds
We will be staring PT and OT as well as speech therapy ...
to work on things in hope to reverse the regression in these areas that she has but there is o guarantee that there reflexes and muscles will work again...
The TPN will over time damage her liver and we may need a liver transplant if that time comes but we will deal with that hurdle when it gets here..... A liver transplant with this disease is complicated..
This disease affects everything..... it affects all organs..... This disease contributed to the loss of red blood cells as well and we know know why she keeps needing transfusions..... hopefully this will stable out and we wont be needing as many...
We are going to take her home and love her and cherish every moment we have..... She is a fighter and i have faith that she will give this disease a run for its money and fight as hard as she can...... her strength amazes me.......
Please pray for a miracle for Izzy! She is our princess!
thank you as always for all your support! We love you Team Izzy and your hearts amaze us!!!
Staying strong for her and loving every smile as always
Your support for our family is so much appreciated in this journey..... A little bit goes a long way :) We have paid off a lot of owed expenses and managed to stay in our home but still have a long way to go....
Isabelle's Facebook has almost 10,000 followers.... look at the big picture if 10,000 people donated just $5 we would have all of her back expenses paid, be able to replace household items sold for her expenses and be able to make sure Izzy always had her needs met :)
Thank you so much for helping our family!!!
Love the Shermans
Daymeon (7 yr old brother)
Caydan (6 yr old brother)
Kenny Jr (19 month old brother)
And of course Izzy who is now 7 months and 8lbs 6oz :)