Posted on January 1, 2014
Here’s to a Happy New Year,
Update on Brooke
First I can’t thank all of you enough for your Love, Support, Prayers and Generosity. It has made a very hard time easier and filled us with hope.
Sally and Brooke have both been home since October 1st. Brooke still has daily seizures and we are not sure about the behind the scene ones, we find that out on Monday. All and all she is still Brooke but fatigue and the stress of the seizures take a toll on her and her stamina is not what it used to be. She is on 3 meds right now and they definitely have an effect on her personality. We are removing one which is a rough med to take and a rough one to remove. We have seen no value in it since starting and right now it looks like it hurt more than it helped. We are more than 50% off so here is to the next 50.
Mommy is the primary care giver and spends her time watching Brooke and keeping her safe. She logs all of her activity since day 1 to see the stats as we progress. We hope to find some balance here soon and get her back to work and put a plan in place for Brooke. So 2014 is going to be a bit bumpy.
Our trip to Colorado was a success and we accomplished our goal of getting our Red Card and Brooke is on the waitlist for MMJ. So that we are clear we still have hope that we will find the right concoction to get her as healthy as possible. We are not sure when the Colorado part comes into play but know if that’s what’s best for Brooke then so be it.
Nick has been a champion through all of this. He has definitely got the short end of the stick more than deserved but he is handling it well and we are doing the best we can.
As for Daddy, He wants what any Dad wants. To know that his family is Happy, Healthy and Safe…
That will be my resolution.
Thanks again for everything, you have no idea how much it means.