Baby Mustafa needs a brain surgery
Donation protected
*** ZAKAT ELIGIBLE ****
Just 3 years old and fighting for his life since birth
Ibtisam Mustafa is a 3 yr old who is fighting craniosynostosis , a complex brain condition that impairs brain growth and normal functioning. Without surgery, Ibtisam Mustafa's life span will be limited. His prognosis post surgery is very positive.
How did this happen
Ibtisam Mustafa is one of a set of twin boys and lives in Pakistan. He had a perfectly normal birth in June 2015 but things started going wrong 8 days after birth when he got meningitis. Inaccurate doctor's diagnosis and delay in medical action caused the infection in brain to increase and slowly Ibtisam's brain started filling up with CSF fluid. He was suffering from hydrocephalus and craniosynostosis and his head size grew enormous for his little body. He already got operated to place a shunt in his head to help drain the fluid build up. But will be needing more to fully correct his head shape and promote brain growth. No doctor in his home country is equipped or willing to take on these complex brain surgeries that he needs. He is also suffering from seizures on a regular basis and needs these surgeries urgently to stop any further brain damage due to seizures.
His story has been covered by media. See more details here .
On his way to USA
Dr Jeffery Fearon is a world renowned cranio facial surgeon based out of Dallas, TX and he has expertise in dealing with rare cranio issues like these. He has agreed to operate upon Ibtisam Mustafa and give him a fighting chance to life. Laraib, the mother and baby Ibtisam Mustafa have flown all the way from Pakistan to USA to get operated upon. Ibtisam Mustafa has already undergone an anterior Cranio Vault Remodelling (CVR) in Feb 2017 and posterior CVR in July 2018 under Dr Fearon but needs more to help correct his shape totally. His head has seen MASSIVE IMPROVEMENT IN SIZE and SHAPE already. See his recent after surgery picture below
Additionally, Ibtisam Mustafa does not feed well orally as he is not able to sit up and hold his head. He got operated upon to insert a feeding apparatus called GButton that can deliver nutrition and medicines directly to his stomach.
His mother, Laraib Faisal is alone in USA with mustafa getting him surgeries and therapy. This is a tough time for her. Her husband , Faisal , did not get a USA visa even thought the medical reasons were compelling.
The FUTURE
Ibtisam Mustafa is currently recovering from his brain surgery but this surgery has run into unexpected ICU days and some post surgery complications. We need help with funds for this. Also he will undergo intensive physical therapy, occupational therapy , feeding therapy to help him sit and gain some movement and feeding function. He has a long road to rehabilitation as will need special equipment like standers and sitters /wheelchairs as his body needs support. Each of these are very expensive. The estimated cost of these equipment and intensive therapy is about $20,000 and the family has to pay for this as they don't have medical insurance in USA.
Who am I and why I am doing this
My name is Seema Kayser and am a mother of 2 boys and work for Dell computers. I run this campaign for mustafa's mother , Laraib Faisal. Anyone who wants to talk to baby's mother to verify authenticity, i can arrange a facetime/skype session. Please email me at [email redacted]
That's me with Mustafa in the hospital just after his surgery in July 2018 in the pic below
Just 3 years old and fighting for his life since birth
Ibtisam Mustafa is a 3 yr old who is fighting craniosynostosis , a complex brain condition that impairs brain growth and normal functioning. Without surgery, Ibtisam Mustafa's life span will be limited. His prognosis post surgery is very positive.
How did this happen
Ibtisam Mustafa is one of a set of twin boys and lives in Pakistan. He had a perfectly normal birth in June 2015 but things started going wrong 8 days after birth when he got meningitis. Inaccurate doctor's diagnosis and delay in medical action caused the infection in brain to increase and slowly Ibtisam's brain started filling up with CSF fluid. He was suffering from hydrocephalus and craniosynostosis and his head size grew enormous for his little body. He already got operated to place a shunt in his head to help drain the fluid build up. But will be needing more to fully correct his head shape and promote brain growth. No doctor in his home country is equipped or willing to take on these complex brain surgeries that he needs. He is also suffering from seizures on a regular basis and needs these surgeries urgently to stop any further brain damage due to seizures.
His story has been covered by media. See more details here .
On his way to USA
Dr Jeffery Fearon is a world renowned cranio facial surgeon based out of Dallas, TX and he has expertise in dealing with rare cranio issues like these. He has agreed to operate upon Ibtisam Mustafa and give him a fighting chance to life. Laraib, the mother and baby Ibtisam Mustafa have flown all the way from Pakistan to USA to get operated upon. Ibtisam Mustafa has already undergone an anterior Cranio Vault Remodelling (CVR) in Feb 2017 and posterior CVR in July 2018 under Dr Fearon but needs more to help correct his shape totally. His head has seen MASSIVE IMPROVEMENT IN SIZE and SHAPE already. See his recent after surgery picture below
Additionally, Ibtisam Mustafa does not feed well orally as he is not able to sit up and hold his head. He got operated upon to insert a feeding apparatus called GButton that can deliver nutrition and medicines directly to his stomach.
His mother, Laraib Faisal is alone in USA with mustafa getting him surgeries and therapy. This is a tough time for her. Her husband , Faisal , did not get a USA visa even thought the medical reasons were compelling.
The FUTURE
Ibtisam Mustafa is currently recovering from his brain surgery but this surgery has run into unexpected ICU days and some post surgery complications. We need help with funds for this. Also he will undergo intensive physical therapy, occupational therapy , feeding therapy to help him sit and gain some movement and feeding function. He has a long road to rehabilitation as will need special equipment like standers and sitters /wheelchairs as his body needs support. Each of these are very expensive. The estimated cost of these equipment and intensive therapy is about $20,000 and the family has to pay for this as they don't have medical insurance in USA.
Who am I and why I am doing this
My name is Seema Kayser and am a mother of 2 boys and work for Dell computers. I run this campaign for mustafa's mother , Laraib Faisal. Anyone who wants to talk to baby's mother to verify authenticity, i can arrange a facetime/skype session. Please email me at [email redacted]
That's me with Mustafa in the hospital just after his surgery in July 2018 in the pic below
Organizer
Seema Kayser
Organizer
Dallas, TX
