Hope for Kenadie: Fighting for life..while facing death

$3,783raised of $15,000 goal
25%

Organizer: Kenadie's supporters Beneficiary: Kenadie N. Parks and Family

Kenadie was diagnosed with DIPG, an extremely rare and aggressive form of childhood brain cancer, on December 30, 2013. Please help us support her and her family.

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Fundraiser Details

Kenadie is a 3 year old little lady nearing the end of her 6 weeks of radiation treatment. She was diagnosed with DIPG on December 30, 2013. She woke up that morning, and had lost her balance and coordination. By the next morning, she had lost her ability to walk completely. Her MRI results showed that she had a 4.5 cm mass on her brain stem..she was immediately transferred to Scottish Rite: Children's Hospital of Atlanta, where during her 2 week stay, she underwent many test and a brain biopsy. She is a fighter, and is in high spirits as she fights for her life. It is our hope that this support will allow her to live the best life possible on her journey to kicking Cancer's butt! #screwCANCER #hopeforacure #defeatDIPG

What is DIPG?
-A Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor located in the pons (middle) of the brain stem. The brain stem is the bottom most portion of the brain, connecting the cerebrum with the spinal cord. The majority of brain stem tumors occur in the pons (middle brain stem) and are diffusely infiltrating, (they grow amidst the nerves), and therefore are not able to be surgically removed. Glioma is a general name for any tumor that arises from the supportive tissue called glia, which help keep the neurons, ("thinking cells") in place and functioning well. The brain stem contains all of the "wires" converging from the brain to the spinal cord as well as important structures involved in eye movements, face and throat muscle control and sensation.
Source: The American Brain Tumor Association

-The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1 and 2 year survival rates are approximately 30% and less than 10%, respectively. These statistics make it one of the most devastating pediatric malignancies.
Source: Treatment of newly diagnosed diffuse brain stem gliomas in children-David N. Korones.

-The standard treatment for DIPG is 6 weeks of radiation, which often dramatically improves symptoms. Unfortunately, problems usually recur after 6 to 9 months, and progress rapidly.
Source: St. Jude's Children's Research Hospital

In their quest for a cure, DIPG children must move from one experimental protocol to another enduring treatments with many side-effects, which would be unacceptable with any other diagnosis. The cruelty of this disease cannot be denied. Sparing their cognitive abilities, DIPG slowly robs children of their motor functions, resulting in partial paralysis, loss of voice and sight, and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. THE CURE STARTS NOW!!!!
Source: The Cure Starts Now

All donations are a gift to the family and not tax deductible

Please show your support by praying for Kenadie and her family and making a donation. Funds raised will be used for Kenadie's daily care, medical expenses, and travel to new places.

After you have made your donation: Please email your address to kenadiesfight@yahoo.com, to receive a note of thanks and a custom wristband.




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Updates

Updates

08/06/2014
by Kenadie's supporters
Hello everyone! Things are going well with Kenadie. She had some trouble sleeping last night, but after being comforted and prayed for by Mommy, she rested peacefully. She started school this past Monday, August 4th. The first day went smoothly..with only a few tears. However, we haven't been able to get her to go back. We are thinking that she'll get back in the groove of things when her brothers start back this Friday. Please pray for healing and awesome results from our mri this Friday. Thank you all so much for your love and support!! You are appreciated. Please like and share Kenadie's facebook page: Hope for Kenadie. Also, tell your family and friends that do not have a facebook that they can follow updates here on YouCaring. Until next time!!
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07/26/2014
by Kenadie's supporters
Hello Everyone!! It has been MONTHS since this page has been updated. Please forgive us..we have been posting the updates on Kenadie's facebook page: Hope for Kenadie. I will try to be more mindful and post updates here as well, for those that may not have a facebook. Things are going well. We are coming up on our next Mri date: August 8th! Please pray for great reports and tumor shrinkage!! Kenadie is so excited that school is about to start. She cannot wait to ride the bus home. Please go like and share Kenadie's facebook page! Thank you!
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03/29/2014
by Kenadie's supporters
Please visit, like, and share Kenadie's Facebook page: Hope for Kenadie

Thank you!
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03/29/2014
by Kenadie's supporters
Things are going well! Kenadie is happy going to school. She has even asked to ride the bus!! She's so independent. She is enjoying her time with family and living life with a constant smile. Thank you for your prayers!
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03/18/2014
by Kenadie's supporters
The past couple of days have been very exciting!! My welcome home party was this past Saturday (March 15th). I had a ball!!! Thank you to all of my family and friends that showed up. Also, I have been cleared to go back to school...yesterday was my first day back. Finally, I got a call from Make A Wish!!! I am looking forward to having the trip of a lifetime! Thank you all for your love and support. Until next time!
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03/12/2014
by Kenadie's supporters
Hello Everyone!!! It has been a while since we've updated. Kenadie has been having a blast being back home. KENADIE'S last day of radiation was this past Friday!!! Whoo hoo!!!! Also, she got the call of a lifetime from Make A Wish on yesterday!!!!  Thank you all for your prayers and support.


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03/05/2014
by Kenadie's supporters
Hello Everyone!!

Today is going well. 2 more days until radiation is complete!! Whoohoo!!! I'm headed to the hospital now to get some blood drawn...just making sure my counts are ok for chemotherapy tomorrow. More pictures have been added to the gallery. Have a look! 

Love to All!
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03/03/2014
by Kenadie's supporters
I am currently in my last week of radiation. I have 33 treatments total. I will be done on Friday! I am so excited to get home to my brothers and family. Counting down the days.
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