Van 4 Van Bernard

$66,454raised of $45,000 goal
100%

Organizer: Julie and Colin Bernard Beneficiary: The Bernard Family. Van 4 Van

This fundraiser is closed

At 10 months old Van Bernard was diagnosed with an incurable degenerative disease called Spinal Muscular Atrophy Type 2. SMA is a rare, genetic, muscle wasting disease that affects one in 6,000 babies. As such, Van has been in a power wheelchair since he was 18 months old, and has had numerous hospital stays due to double lung pneumonia. 

Van requires numerous pieces of specialized equipment to keep him healthy and out of hospital. Much of this necessary equipment is not covered under private insurance or our Provincial Government. So far, in his short 6 year life, we, his parents, have been able to provide life-sustaining equipment for our son with the help of various organizations. Standers, back braces, binders, foot orthotics, wheelchairs, nebulizers, ramps, lifts, a wheelchair accessible house and his cough machine all come with a hefty price tag. These are all important pieces of equipment and enablers for our little man Van and we do our best to make sure he gets what he needs to lead a long and productive life- as long as SMA will allow.

 We are blessed that he continues to thrive and grow into an intelligent, funny and always smiling little boy. But as he gets bigger so do our challenges. 

 We have exhausted all possibilities for funding assistance towards the purchase of a wheelchair van. These modified vehicles are roughly twice the cost of a non-modified vehicle.  Left with no other choice, we are asking for your help so we can get him to and from appointments and anywhere else he wants/needs to go in a safe and secure manner. Transferring him from his power chair to a car seat that is too small is no longer safe – both for him and the parent carrying him.

Thank you for taking the time to explore our request. Your donation would mean a great deal to our family.  Every little bit counts!

 Check out our video!

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http://www.youtube.com/watch?v=MakiK9BxFvw&feature=c4-overview&list=UU4b0vVUYX6kBP1HZnFmctLw

 

The Bernard Family

 

Updates

Updates

08/27/2014
by Julie and Colin Bernard
http://thechronicleherald.ca/metro/1232119-van-s-van-accessible-ride-opens-new-pathways-for-boy


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08/25/2014
by Julie and Colin Bernard
Tomorrow is the day !!!!
Thanks to all your efforts we are picking up our Ford Transit Connect wheelchair accessible van !!!
Watch Global Morning News where Brett Ruskin will be live on site at Ford Steele at 6am, 7am and 8am !

The big unveiling will be at 11am with taped news coverage airing at 6pm !
I will post a clip for those all around the world on Wednesday !

Thank you Thank you Thank you to each and every one of you !

The Bernard Family 
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08/14/2014
by Julie and Colin Bernard
August 14th 2014

We have just been informed that our Ford XLT 2014 is being converted NOW !!! We should have it within the next couple of weeks ! Words can not described how much all of your donations are appreciated  ! It still seems a little surreal but once that van is in our driveway our whole world will change... for the better.

My gorgeous, vibrant little man will be safe, I wont have to worry about his safety while transferring him AND we have ordered his new wheelchair !

These things would not have been possible without each and every donation!

Stay tuned for pictures !!!!

With utmost gratitude
The Bernard Family
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06/29/2014
by Julie and Colin Bernard
The Ford Transit Connect XLT has been ordered !!! (Albeit in silver ) We are just waiting for the conversion company to their thing !!! The Ford Dealer and the Conversion company have been brilliant ! Hopefully we will have the van in 5 to 6 weeks. I still cant believe it ! I am still amazed and so very blessed that we are able to purchase this for our family.

AND... we have chosen a new wheelchair for our little man ! The quote is coming in next week !($35k ish)  He chose blue with orange - Just like Hot Wheels- go figure !

I just extended the end date of this campaign so that everyone can see the pictures and get an update when we recieve the van.

But for more updates and photos please check out Van 4 Van Bernard facebook page !!!
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05/01/2014
by Julie and Colin Bernard
WOW ! We are still amazed at the generous donations that will help get the equipment Van requires to live a long and productive life ! A new wheelchair is on the horizon and as we wait to hear about the new wheelchair accessible van, we continue to feel the love from everyone around the world !

With utmost gratitude to every single person who donated, we thank you !
The Bernard Family
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03/29/2014
by Julie and Colin Bernard
We are just starting the Van investigation and are waiting to hear from a conversion company to see if the Ford Transit Connect is suitable for our boy ! We have had great support from the Ford dealerships and are still having a hard time believing that we are at this stage already !

Thanks your generous support we are hoping to have a van for the summer !
ROAD TRIP !!!!

THe Bernards
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03/29/2014
by Julie and Colin Bernard
We are just starting the Van investigation and are waiting to hear from a conversion company to see if the Ford Transit Connect is suitable for our boy ! We have had great support from the Ford dealerships and are still having a hard time believing that we are at this stage already !

Thanks your generous support we are hoping to have a van for the summer !
ROAD TRIP !!!!

THe Bernards
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03/24/2014
by Julie and Colin BernardShare This Update!


03/18/2014
by Julie and Colin Bernard
Well, we met and exceeded our goal thanks to the many many kind people in this world! Words can not describe this journey that my family and friends have been on since the launch of the campaign. Nowhere in my wildest dreams did we think that we would raise 45K in 14 days !!!!!  Its all because of YOU!

We like to think of ourselves as a strong family, but we do have days where we feel isolated and frustrated and that no one understands the daily struggles. This entire amazing experience has enlightened and blessed us with the realization that people DO understand... People want to help. We have met so many wonderful people who really do care, people we don't even know who reached out to help our family. For that, we are forever grateful in so many ways.

Thank you to everyone who has helped our little boy. Exceeding our goal means that we can start to look at buying him a new wheelchair and other pieces of equipment that he needs.

Stay tuned for further updates and pictures of Van and his new van as we continue on this amazing journey !


Sincere Thanks
From the Bernard Family

#caringcounts




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03/13/2014
by Julie and Colin BernardShare This Update!


03/12/2014
by Julie and Colin Bernard
A little media attention in the past few days. If you havent seen them check out the links below

http://thechronicleherald.ca/metro/1192791-crowdfunding-with-a-difference-van-needs-a-new-van

http://globalnews.ca/halifax/program/evening-news-halifax/

http://atlantic.ctvnews.ca/video?clipId=305567

More to come today ! This time on USA sites !



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03/07/2014
by Julie and Colin Bernard
Check out Van singing Hey Ho with his music therapist. Takes a lot of lung muscles to sing like this !!
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03/06/2014
by Julie and Colin Bernard
The Bernard family would like to thank each and every one of you for the overwhelming support we have received in less than a 24 hour period ! We are feeling very grateful and humbled at the moment.
If we can keep up this momentum our goal will be attainable !!! We can get my little man a van !!
Keep spreading the word !
More updates to follow !!

The Bernard Family !!
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