Tap to expand Fundraiser Details Nicholas was 7 years old when he was diagnosed with Stage III Neuroblastoma on November 2, 2012. He was born and raised in Glen Cove, New York by his loving parents Nick and Josephine Pedone. Contact the Organizer
Neuroblastoma is a cancer that develops from immature nerve cells found in several areas of the body. Neuroblastoma most commonly arises in and around the adrenal glands, which have similar origins to nerve cells and sit atop the kidneys. However, neuroblastoma can also develop in other areas of the abdomen and in the chest, neck and near the spine, where groups of nerve cells exist. Neuroblastoma most commonly affects children age 5 or younger, though it may rarely occur in older children. There is very little known about why Neuroblastoma occurs, or about what factors increase the risk for occurrence. 7 out of 10 cases are not diagnosed until the disease has spread to other parts of the body. Neuroblastoma accounts for approximately 8-10% of all childhood cancer diagnoses. This very rare childhood cancer has only 600 new cases per year in the United States or equivalent to 1 in every 100,000 children. There is no known cure for relapsed Neuroblastoma.
Nicholas’ treatment plan is aggressive with planned 6 rounds of chemo, possible 2nd surgery, stem cell harvest in Philadelphia and a stem cell transplant in Philadelphia with approximately 3 to 4 week hospital stay, radiation and immunotherapy…approximately 1 ½ years of treatment. A scary and uncertain journey we are forced to follow.
The money raised will be used for medical and living expenses not covered by insurance. A breakdown on how these funds will be used:
Not Covered Benefits and Medications
Travel Costs (hotels, food, gas, etc)
Non-FDA approved chemo drugs with participation of clinical studies
Supplements – Holistic medicine, vitamins, calcium, etc.
This amazing support system will help give Nicholas and his family the strength to deal with the emotional and financial challenges ahead. Once again, thank you all for your support and please keep Nicholas and his family in your thoughts and prayers.
Visit our website for our full story: www.nicholaspedone.com
IMPORTANT UPDATE: DONATION POSTING
AS PER YOUCARING.COM WHEN YOU PROCESS YOUR DONATIONS, MAKE SURE THE TRANSACTION IS DONE BEFORE CLOSING OUT THE WINDOW. IF YOU CLOSE THE WINDOW EARLY YOUR DONATION WILL POST WITH PAYPAL AND NOT ON OUR FUNDRASING WEBSITE.
IF THIS IS TO HAPPEN CONTACT US IMMEDIATLY @:
INFO@NICHOLASPEDONE.COM SO THAT WE CAN ADDRESS THE PROBLEM DIRECTLY TO YOUCARING.COM, AND THEY WILL POST YOUR DONATION.
WHEN SENDING US THE EMAIL PLEASE PUT "DONATION ERROR" IN SUBJECT LINE. WE WOULD APPRECIATE IT IF YOU CAN GIVE US YOU NAME, DATE, AMOUNT, AND TIME OF TRANSACTION. LET US KNOW IF THE DONATION WAS ANONYMOS OR NOT. THIS INFORMATION WILL BE TAKEN AND WE WILL MAKE SURE YOUR DONATION SHOWS.
THANK YOU ALL FOR YOUR SUPPORT
IF YOU ARE WILLING YOU CAN ALSO FORWARD ME YOUR PAYPAL CONFIRMATION WHICH HAS ALL THE INFORMATION ON IT.
YOU MUST HAVE A PAYPAL ACCOUNT FOR DONATIONS GREATER THAN $4,000 OR YOU CAN MAKE MULTIPLE DONATIONS AS GUEST IF IT EXCEEDS $4,000
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