Let Us All Support Jeff's Battle with Brain Cancer

For: Jeff Robinson
Organizer: Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
of $12,500 goal
100% Complete
This fundraiser is closed. Thank you for your support!

Dear Family and Friends of Jeff and Marti Robinson,

In October of 2013, Jeff was diagnosed with Glioblastoma, a cancerous brain tumor that is considered terminal. Since then, Jeff has faced a lot of terrible news: 5% chance of survival from a hemorrhagic stroke that lead to this diagnosis, 0% chance of communicating after emergency brain surgery, the probability of new tumors growing, two rounds of radiation, damage from stereotactic radiosurgery, ongoing chemotherapy, radiation scarring, diminishing abilities, and a median life expectancy of up to 15 months.

They are in month 11 and yet more tumors are threatening Jeff's life.

Jeff’s Neruo Oncologist is not optimistic, and has advised that Jeff's needs will be increasing as his abilities are expected to continually diminish. The Neuro Oncologist advised that Marti needs to line up additional help as soon as possible.

Jeff and Marti have the opportunity to have a close family member play the much needed role of Personal Care Assistant. They are making plans for their niece to take a leave of absence from her physical therapist job in California and join them in Minneapolis for the next few months. Unfortunately, her assistance will not be covered by insurance, so they need help both getting her here and covering some of her costs. She will stay with Jeff and Marti, and will help them with daily tasks such as cooking, cleaning, doctor visits, and caring for Jeff. Additionally, she will be on hand to offer much needed emotional support, and her assistance will help ensure that Marti can continue her freelance graphic design job (which pulls in that all-important paycheck) as long as possible.

Your generous donation will go toward round trip airfare from California to Minneapolis; meals; rent and other ongoing bills; and, with any luck, weekly compensation for their niece. We've butgeted out this cost and it amounts to $8,500. Any additional funds we raise will go toward out-of-pocket medical expenses and a trip to visit Jeff’s family once again. 

Jeff has been called a MIRACLE by several doctors, a term scientists don’t typically use. Jeff still being with us IS a miracle, and though the medical field has a grim outlook, we are all praying for another miracle to get them over this hurdle so they can have many happy years together.

There ARE long term survivors of glioblastoma – some have been living with it for anywhere from 3-13 years.


Jeff CAN be an outlier.

We are not done fighting.

Thank you for considering as large of a donation as you can.

We chose You Caring because every penny you donate will go directly to Jeff and Marti. 

If you would like to donate to Jeff and Marti directly, you can do so by mailing a check or money order to:

For the Benefit of Jeff Robinson
3636 27th Ave S
Minneapolis, MN 55406


by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet

Thank you, all of you, for loving and supporting Jeff and Marti over the past year. Whether through financial contributions, prayer, healing energy, love, donations of food, art, baked goods, your time, or comforting words. It was felt and beyond appreciated by Marti and Jeff.

Yesterday morning the world lost our friend, Jeff Robinson. Jeff was one of those rare humans, the kind you count yourself among the lucky to have known. That smile…

Over the past year and few weeks, Jeff and Marti have shown us the beauty of love, strength, anger, fear, resiliency, hope, and faith. Their vulnerability and grace during the past 13 months have been nothing short of amazing. What a wonderful gift to give all of us watching and supporting.

Please continue to keep Marti in your thoughts and prayers over the next several days, weeks, months. There continues to be a need for Marti to cover medical costs, along with appreciating words of kindness and love. Please check back to this page every so often, but more so, please visit Jeff’s wordpress site: http://dearjeffrobinson.wordpress.com and consider contributing memories of both Jeff and Marti.

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet

You have helped give Jeff and Marti the much needed to support in just two weeks! You ARE INCREDIBLE!

No words to describe the joy and love they feel right now!

We are going to continue to keep this fundraiser going, as their medical needs are going to continue to keep accumulating. 

Your love and support (financial and otherwise) is abundant.

THANK YOU!!!!!!!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet


You all are such a caring giving and loving community. We know that Jeff and Marti and feeling your love and support and it means so very much to them!

We're less than $2,000 away from our goal!!! Please share this site and Jeff and Marti's story with friends, family, and colleagues. Any amount donated helps.

For those of you who may not have seen it, the following is a recent post from Laurel's Facebook page:

"I spent a little time with Jeff yesterday. His language was surprisingly fluent, and his struggles to find the right words often lead to lovely and unexpected ways of describing things. I asked if he was excited at the prospect of bringing his niece from California to be his personal care attendant. His face got soft and he said, "She brings out my heart." 

We're so close to covering the costs of bringing her to Minneapolis for the next few months. Please consider donating if you are able! Every $10, $20, $50 adds up!"

Again, please share our YouCaring site with as many as you can. If you would like to donate to Jeff and Marti directly, you can do so by mailing a check or money order to:

For the Benefit of Jeff Robinson
3636 27th Ave S
Minneapolis, MN 55406

As always, thank you for your love and support!!!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Your love and support is overwhelming and so very helpful! Because of all your donations, Jeff and Marti were able to buy Kristan a plane ticket and are now able to support her first month here! This is so very important as it gives Marti the much needed relief for her to work to bring in money for their daily living expenses.

We upped the ask to $12,500 total as our previous calcuations were a bit off (hey! I'm social studies teacher, not a math teacher!). 

Just to remind you, this recent push for support is to help bring Kristan, a licensed personal care attendant, to come live with Jeff and Marti. Jeff can no longer be left alone. Any money raised beyond the $12,500 will go to cover Jeff's medical expenses.

Every penny counts and is so very appreciated!

Thank you thank you thank you! 

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
You all are so very wonderful! What an outpouring of tremendous love and support! Thank you thank you THANK YOU! 

Because of your genorisity, Marti and Jeff were able buy airfare and first month's stay for Kristan to come care for Jeff! She's coming October 14th!!!


We have less than half our goal to meet now to ensure we can keep Kristan here for at least 3 months. Please foward this fundraising site to all you know. Share it far and wide.

As always, THANK YOU so very very much, for all you give - monitary and beyond!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
WOW! Thank you to all for your love and support, not only financially, but through your prayer and kind words.

It means so very much to Jeff and Marti!

Let's keep this momentum going!!!

We only need a little more than $4000 to get to our goal! Please share Jeff and Marti's story on Facebook, Twitter, and email to spread the message to all. No amount is too small, it all adds up!

Again, thank you thank you THANK YOU for your love and support!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Hello, Friends and Family!

We've budgeted out all the expenses for bringing Jeff and Marti's niece, Kristan who is a licensed PCA, out to help care for Jeff while Marti continues to work. This cost adds up to just under $8,500. That puts our grand total of "ask" up to $12,000 since last October.

We're asking for all friends, family, aquaintances, 
ALL SUPPORTERS to help us raise the funds to help make it less stressful for Marti and Jeff during this difficult time.

hank you for giving as much as you can, when you can, as often as you can.

As always, thank you for your love and support!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Dear Friends and Family,

As hosts of this fundraiser, we've upped the amount of donations to $12,000 to reflect the current need. We've raised almost $5000 to support Jeff's medical expenses from last fall. However, now we need to help raise more than $8,000 to support getting Jeff and Marti's niece, Kristan, out here to give care to Jeff while Marti continues to work.

This is a crictical juncture. Jeff cannot be left alone anymore. 

Please consider giving, no amount is too small. Please share this site with others who you know would love to give.

As always, thank you for your love and support.

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Hello, Friends and Family of Jeff and Marti!

We're sending out a long overdue update to ask for support to Jeff and Marti! 

The latest news on Jeff's journey to great health from his CaringBridge site:

"Finally, the real meat of this update. Jeff's scan is remarkably clear. There is considerable radiation scarring but no sign of tumors.Anywhere. There is a tiny amount of shadowing where his tumor first appeared back in October, but Dr. T is unconcerned and stated Jeff's scans are "outstandingly good." ! (Go ahead.You can cry that good cry and smile that big smile. You'll be in good company.)"

That said, Jeff and Marti continue to have considerible financial needs, as well as healthy meal making support. As always, please give what you can (and as often as you can:) in whatever way you can.

As always, thank you for your love and support!

Go Team Robinson!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
It's been far too long since we've updated you all. Jeff is 1/2 way through his chemo/radiation. Even with all that comes with this kind of treatment, he and Marti are managing it like champions!

Right now is a perfect time to reach out to them if you haven't in a while. Send an email, text message, card. Perhaps you might offer to cook, clean, fold laundry or contribute a few dollars?

They're doing so well, but we're at that time of this journey where a kind word of support and love can do so so much to help both of them push on.

Thank you to all!
Christine, Julie and Laurel

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Jeff and Marti are in Florida visiting family and taking a much needed rest together. Don't forget to visit back to this site and Jeff's Caring Bridge for updates.
As always, if you can spare a few dollars (or more) please do so to help out Jeff and Marti!

Thank you!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
A wonderful message from Jeff's Caring Bridge site by Marti:


Jeff has begun helping with meals around the house. This mostly means warming things up, but he's gone a step further and added spices to some lovely chili a friend dropped off, assembling sour cream, chips and cheese to go with it, making and dressing salads, that kind of thing. As he said on facebook 
"I'm happy a small part is available in my brain. I will cook forever." Incidentally, that is the most coherent, zero spelling errors typing he has done. If he keeps this pace, I have no doubt he will be able to cook again for a living. 

He's also done laundry, which is considered a complex task because it involves more than one thing. (Sort, add detergent – in our case, pre-dissolve detergent, then add it, since we use homemade laundry soap, turn the washer on, be aware of when the load is done, move the items to the dryer, turn dryer on, be aware of when the dryer is done, bring the clean clothes upstairs, fold them, put them away.) He's also taken out the recycling and compost, tidied up around the house, is making the bed daily, and has started getting his own 8am and 8pm medication, as well as his own break-through pain meds, which also means writing down what time he takes them. He has been feeding our pets, getting the mail, getting his own breakfast and making coffee. Yesterday he asked what I wanted for dinner and I said "you know, I can make dinner – after all, you've made all the other meals today." He seemed grateful that he didn't have to do it all. It has been really important to him to help around the house, so I have to actually encourage him to not do all of it. 

We called Dr. Rausch to see if he could take an over-the-counter sleep aid since the steroid is really keeping him awake. They said yes and he slept through the night beautifully. 

Blessed and encouraged,

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Thank you, to all the supporters for your unbelieveable financial support, love and thoughtfulness! Thank you thank you THANK YOU!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Great News from Jeff's Caring Bridge site! Love to Marti & Jeff!

Titled: "Another Sunday, Beautiful Sunday"

"We're so happy to be home. Good God, so so so happy. 

Some friends came over yesterday to help sort through all the amazing goodies that have been donated for Jeff's Handcrafted and Local Goods Silent Auction. We had so much fun. It was great to just focus on something else, to laugh and spend a few hours with friends, to not think or talk about Jeff's health. 

Jeff sat on the couch during most of this, reading or listening to music or just hanging out. He was smiling often, and whenever I checked in, he was doing ok. Around 3:30 pm I sat up with a start. "Jeff!" I said, "I don't want you to start thinking about this or anything, but are you aware that you haven't had any supplemental pain meds at all today?" He replied "Yep! I'm doing great!" Amazing. He headed to the bedroom around 4:30 for some quiet time, but it was incredible that he could be in the living room with all the activity surrounding him and not be negatively effected or become overwhelmed. We had a nice evening together, and before bed around 9:30pm he took some Oxycodone to help him sleep. A nice long day without pain.

Other incredible news is that he has not back-slid at all. In fact, it almost seems like he's able to read better than before Wednesday. He's having similar issues with naming things and people, but I'm even seeing a small amount of improvement there. His short-term memory seems to be working a lot better now, and there has been zero physical weakness since we got home.

And I am not sick. It hit me hard for a day. ONE DAY. I have never, ever been sick for only one day. Usually if it hits me, I know I'm in for 1-2 weeks of feeling miserable. Not this time, thanking God. 

We're taking a break from everything today. Just relaxing and enjoying one another and getting a few things done around the house. I'm going to make my mom's dutch pancakes (kind of like a crepe) for brunch, do some more auction organizing, maybe clean up a little, and sit on the couch with my man til my butt falls asleep.

Feeling triumphant and steady. Feeling strong. Feeling like we will make every moment count, and that if it is the will of God, we will have many, many, many moments that will count. 

Thank you. For listening/reading/praying. For being there if its over the internet or in person. For keeping us in your thoughts. For your positivity and strength when I had neither. Community! Hazzah!"

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Jeff will be discharged today!

Good God, we have finally spoken with the doctor. Did it take a embarrassingly frantic & emotional phone call to the coordinator to make it happen? Yes. Its annoying how true the whole squeaky wheel saying is, at least in a hospital setting – because if you're courteous, understanding and patient, NOTHING HAPPENS. I have decided, though, to not carry this new-found wisdom into the real world, mostly because I am not comfortable with becoming that person

The bad news first, because that's how I prefer it: they are seeing parts of his brain light up more than on 10/20, which indicates to them that tumor is present. I believe it also indicates it is growing, though those words were not used by Dr. Jones. 

The good news: He had his drainage tube removed and OT and PT cleared him for discharge. Dr. Jones indicated that we should be good to go. We are both hopeful that discharge orders will be submitted soon so we can go home today. Just got the discharge orders! We're going home today!!

Dr. Jones was impressed with Jeff's recovery and even called him "sweetie" when asking him to repeat something she didn't hear ("What's that, sweetie?") I don't know who this person is, but she is very very different from when I first met her and I am grateful for that. 

Our helper/caregiver Greta thankfully agreed to come to the hospital so I could take a break to ready the house a little for Jeff's return and for the people that are coming over tomorrow to help organize for next week's silent auction. Earlier I was feeling like I bit too much off with this dang auction but am feeling more capable to prepare for it again. 

I have a cold and am trying to fight it. Its making life really difficult. The stress of the situation is hard enough without a cold on top of it. I also bruised my rib (or maybe even cracked it) when leaning in to give Jeff a kiss after he got out of surgery. Note to everyone with loved ones in the hospital: put the dang rail down before leaning in for a kiss and avoid this painful annoyance. 

I'm having a hard time facing the likely reality that we will have to go through chemo and/or radiation. It sounds like we will get the requested referral to Mayo and I was pretty blunt with our coordinator that I was done with HCMC. They are great doctors, but once you are not a trauma patient, you are really left out in the cold unless you PUSH. I am not willing to subject myself or Jeff to dealing with that on a long-term basis. I am feeling a little more open minded about seeing how Dr. Rausch (at HCMC) operates – maybe he'll be more available? I really don't know. I do know that I like the idea of Mayo for a number of reasons, not least of which they are a top medical facility in the country, and we have a recommendation for a specific doctor. The travel would be considerably more difficult, but still, its pretty much RIGHT THERE, so we're going to check it out as soon as possible.

I'm a little nervous about our planned trip at the end of December. Jeff can't start any chemo or radiation for a couple of weeks due to Wednesday's surgery and I don't know if you can start it and then interrupt it? I'm hoping to get some answers on Monday when we meet with Dr. Rausch, and of course from Mayo if we can meet with them next week as well.

Dr. Jones was kind enough to point out that their job is to give us the options, our job is to choose what to do. That is the first time I've felt like we have a choice at HCMC and though I know of course that we have a choice, I've been very, oddly, hesitant to insist upon that. 

I have to step up in a way I have never been able to. I have to remain calm and do the best thing for Jeff. I am not feeling very capable of this at this moment. This is definitely the weakest, the most scared, the least able I have felt to see this thing through. And not seeing this through is not a choice I get to make: that choice has been made for me. The choice I have now is how to react to it. Hopefully once I am feeling well and rested again, I will be able to be the person I've miraculously been able to be up until a couple of days ago. 

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
From Marti's FB site:
We are in the same room we were in October 19. Seems like some pretty funky odds. It's weird to be in this room again. Thankful my mom is going to spend the night with Jeff so I can try to wup this cold's butt by sleeping it off. If anyone wants to visit, feel free. He's drifting in and out of sleep, still pretty drugged up from anesthesia and IV pain medication, but would likely enjoy a visit from one or two people. If you come park in the HCMC ramp so my mom can let you use our pass - parking will only cost you a buck! I'll be back in the bright and early AM and will hopefully know more about length of stay then. Thanks to all for bearing with my frantic updates, and for keeping us in your prayers. This day has been hard.

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
From Jeff's CB Site:
Jeff woke up briefly, said "I am alive. I did it. Thank you Jesus. Praise the Lord," then drifted back into a drugged sleep. A few moments later he told me he loved me, turned to my mom and dad and said "I love you mom, I love you dad," then several minutes later, to me "I'm just glad. My life. Right next to you."  

We're the same room in SICU as we were 10/19. Really strange. 

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Beautiful Marti just sent this message:

"We have booked our all-important trip to visit Jeff's Aunt Helen and could not have done it without the donations pouring in. Thank you thank you thank you!

Please check out the hoots section to see the photo of Aunt Helen just after she got off the phone with Jeff!"

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
OOO! Forgot to add the address for the:



Sunday, December 15 • 3-6pm

Hiawatha Church Basement

4155 41st Avenue South, Minneapolis

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet

Jeff Robinson, Florida native, Minneapolis resident, gardener at Mpls Urban Edibles (http://www.facebook.com/mplsurbanedibles) and sous chef at Northbound Smokehouse and Brewpub (http://www.facebook.com/northboundbrewpub), had a hemorrhagic stroke while at work on October 19. He underwent emergency brain surgery and miraculously beat the 5% chance of survival and the 0% chance of communicating or otherwise functioning. A week after surgery he was diagnosed with an aggressive brain tumor. 

We are holding a silent auction and bake sale to raise money for his Medical and Wellbeing fund. 

The silent auction will be active from 3-6pm. 
Winning bidders can pick up their goods between 6:30-7:30pm.

Bake sale from 3-6pm.

*If you'd like to donate a gift certificate to or goods from a local business (coffee, bakeries, restaurants, retail, bicycle shops, garden centers, massage therapy, etc.), OR are a maker of things and would like to donate something handmade for auction, OR are a baker of things and would like to donate something baked for the bake sale, please send an email to drivebydesign @ gmail.com with HANDMADE in the subject line.*

For more information, please visit caringingbridge.com/visit/jeffrobinson2

If you cannot make the sale, and would like to donate to the fund, please visit http://www.youcaring.com/medical-fundraiser/let-s-get-jeff-back-to-cooking-and-gardening-/104597

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
If you haven't already, be sure to get down to Northbound Smokehouse for wonderful food, wonderful beer with all proceeds going to wonderful Jeff and Marti!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Hello, All!

When you make your donation, you'll see "Leigh Ann Martin" as the beneficiary of the amount you're giving (in the PayPal section). Leigh Ann is Marti's mom who lovingly set up an account for Jeff and Marti. Please do not let that stop you from giving what you can, when you can! We promise that all donations will benefit Marti and Jeff!

Thank you,
christine s

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Please continue to check Jeff's Caring Bridge site for up-to-date information. Jeff is back home now and they both will continue to need care and support from all of us. Please do what you can, monetary or otherwise, when you can.
Thank you thank you!

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
A message from Marti (from Jeff's Caring Bridge site):

Changing Needs and a Huge Thank You

By Marti Martin Robinson — 21 hours ago

Tomorrow we transition from having a staff of nurses, doctors and therapists at our beck and call, to being at home without any of that support. There will be no more call lights to push (although there has been talk of getting Jeff a bell... I'm not sure how I feel about that!).

We will be looking for some in-home care about 6 hours a day M-Sat, probably from 10-4, possibly only 4 days a week and up to 6. If you know of anyone who could help us out, that would be great. This is a paying gig. I may be home during this time, working, and will ask that I not be disturbed as much as possible. I may also be out running various errands for us. This doesn't need to be a nurse, just someone to hang out and make sure Jeff wears his helmet with the strap affixed when up and walking around, possibly take him (and Kismet, our dog, if they're up for it!) for walks outside depending on the weather, as well as fix him lunch and get him beverages and pain meds as needed. They may also need to take him to various out-patient therapies depending on what time of day these occur. He can move on his own and get in and out of a car without assistance, and doesn't need a walker or wheelchair so this helper doesn't need to be extra strong or anything. A bright, excellent, patient personality is a must.

Thank you all so much for being so supportive: your presence, prayers, making and/or delivering meals, help with financial/insurance paperwork, running grocery and pet supply errands, taking video of Sunday mornings at Hiawatha Church when we could not attend, lending us laptops and battery packs and cables for our iDevises, taking care of Kismet and Bits by feeding them and loving them, walking Kismet, cleaning our house, doing laundry and dishes, fixing our kitchen sink plumbing, helping with some graphic design needs, bringing in the mail, setting up benefits and donation sites, the initial set-up of this Caring Bridge site, staying the night with Jeff, massage and acupuncture therapies for both of us, hair cuts, providing essential oils and herbs and CHOCOLATE, traveling cross-country or down the street to visit Jeff and me, and every other thing big or small has been such a huge blessing to both of us and the people we have been surrounded by. We aren't done needing you, and I know you will continue to be there for us. We are so grateful for that. Thank you.

Blessings on all of you.

by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Set your calendar for Monday, 11/18! Head on over to Northbound Smokehouse to enjoy amazing food for lunch, dinner or (why not?) BOTH! All proceeds benefit Jeff and Marti. Check out the facebook event site for further info:


by Julie Cohen, Laurel Severns-Guntzel, Glenn Schmitt, Christine Sanguinet
Be sure to visit Jeff's Caring Bridge for up-to-date news on Jeff's amazing progress!



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