Kaitlin is an 8 yr old girl who is diagnosed with a rare and fatal neurodegenerative disease called late infanitle neuronal ceroid lipofuscinosis. At this time, the disease is neither preventable or treatable. Kaitlin has been given a life expectancy of 8-12 yrs old.
As Kaitlin gets older and her needs increase, it becomes harder to provide everything that she needs. Kaitlin has copays for appointments and prescriptions that are just not covered by insurance. These are out of pocket every month and a necessity to continue her quality of life. Kaitlin also is on a blended diet of all natural and organic foods to keep her body as healthy as possible as well as improve her seizure control. Even her grocery bill every month has become yet another hurdle in our lives.
We purchased a handicap van for Kaitlin's transport last year. This is the only way that we can get Kaitlin from point A to B safely now that she is wheelchair bound. The loan on the van is over $20k with a substantial monthly commitment. We have decided to start this fundrasier to help with Kaitlin's growing expenses and thank you all in advance from the bottom of our hearts. Being able to provide for my daughter is the most important thing in my life.