Allison, Fran (Annika's nurse) and I took Annika to her clinic appointment today with Dr. Aguilar (Rehab doctor from Children's - AKA the brain whisperer!!), Mary Jane (PT) and KB (OT).
WOW!!! It was such a wonderful report!!!! Dr. Aguilar had not seen her since April and she was very happy with Annika's progress! She is soooo much more alert!!!
She noticed that there was less tone in her legs - not nearly as "upset" when touched. She didn't pull back like she had when she was in the hospital.
Dr. Aguilar wants to decrease more of her medications (and she doesn't have too many now) so that perhaps by December, she will be off all of them!
She was also amazed at how different she looks! Annika has grown a couple of inches, her feet have grown, and, unfortunately, she has gained weight.... We will be decreasing her food intake for a while, and then on September 9th, she will start going to a GI clinic. There will be a nutritionist there as well as the GI doctors.
We were really flying high after the meeting this morning!!! Woohoo!!
Annika is 18 today!!!! We are so happy to be able to spend this day with her. She is our inspiration.....
At PT today, Annika operated a thumb switch to move some penguins up a slide. She did it a dozen times.
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Annika has been moving her right fingers, hand and arm a little bit more. We are encouraged each day with her progress - slow but sure.
Check out the video I got when Allison was asking Annika to move her fingers 12/28/13