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Help Raphael Elisha Meir ben Devorah Cohen

$149,280raised of $100,000 goal
149%

Organizer: Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino Beneficiary: Elisha Cohen

Help Raphael Elisha Meir and the Cohen family in their fight for his life.

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Fundraiser Details

Update (04/17/2014):

With heavy hearts, we regret to share that Raphael Elisha Meir lost his battle with brain cancer and passed away early the morning of April 17. There simply are no words to adequately say thank you to the countless friends across the globe who have supported the family with your prayers, words, and assistance.

 

The funeral will take place Friday in accordance with Jewish law and Raphael Elisha Meir will be laid to rest in Israel. The Cohen family now begins a very long road to healing. 

 

The process of rebuilding their devastated family will take time and will take help. Please consider making a gift to the Cohen family in memory of Refael Elisha Meir to help defray the costs of bringing Raphael Elisha Meir home to Israel for burial, the expense for his family to accompany him, and to help with the immediate months ahead. Your love, care, and generosity is deeply appreciated by Rabbi Yaakov, Devorah, and the entire Cohen family. 

Thank you so much for your chesed.



Update (12/13/2013):

Thank you for helping us reach our goal of raising $100,000 to assist the Cohens. The family is overwhelmed by the kindness and generosity of so many people who have expressed support for Raphael Elisha Meir. They are grateful for your donations, prayers, and words of support.

 

Raphael Elisha’s story has touched the hearts of thousands of people throughout the United States and around the world. It has inspired us to do mitzvahs and come closer to Hashem.  We are all praying to see the miracle of Raphael Elisha Meir’s recovery happen.     

 

Over the last weeks, a petition requesting a compassionate use waiver for a treatment from the Burzinsky Clinic has garnered over 60,000 signatures. Many individuals have written the family expressing concern over the clinic and its treatments. The Cohen family appreciates the concern and caring for Raphael Elisha Meir expressed, and is aware of the controversy related to the Burzinsky Clinic. Because the Burzinsky Clinic has committed to treating Raphael Elisha Meir free of charge, monies raised for the Cohens will not be used for this purpose.

 

We hope you will please continue to give generously to help defray the expenses the Cohens have and continue to incur. Thank you so much, and may we merit to come together to celebrate the complete recovery of Raphael Elisha Meir ben Devorah soon.




Update (12/4/2013):

Dear friends and supporters of Refael Elisha Meir ben Devorah,

 

The Cohen family is deeply grateful for your prayers, kind words of support, and assistance. Refael Elisha continues to bravely battle the cancer that has ravaged him. It is a fight no six year old child should ever have to endure, yet this sweet, beautiful little boy is courageously taking each day as it comes.

 

The Cohens are pursuing alternative and experimental treatments to bolster the months of traditional chemotherapy and radiation therapy treatments that Refael Elisha has undergone. Insurance does not cover the costs of these treatments and maintenance, but they may be the only hope left in the face of the doctors telling Refael Elisha’s parents that there is nothing else to be done. They are expensive and there are few options left.

 

We can’t give up and we need your help now, more than ever!   

 

Please continue to open your hearts and give to help the Cohens continue the fight against the medullah blastoma cancer that has attacked Refael Elisha. This devoted family is leaving no stone unturned, but they simply cannot do it without you.

 

In addition to the medical costs, the day-to-day expenses for a family of eight continue to add up. This beautiful family has given so much to the community. Please, help them with however much you can. Every dollar counts. We pray to the Holy One Blessed be He that your continued generosity and kindness merit a complete and total refuah shlema (healing) for Refael Elisha Meir ben Devorah.    



Update (11/13/2013):

The Cohen family is overwhelmed by the kindness and generosity of so many who have contributed over the course of the past days. With thanks to Hashem, the initial goal of $25,000 was met. Raphael Elisha Meir remains critically ill, but your help has given the family renewed hope.


The Cohens, out of modesty, did not want to ask for the amount they truly need. The reality though is that this wonderful family needs more than $25,000 to pay for the investigational medications from Israel and the doctors to administer it. None of these medical costs are covered by insurance. They also have to cover the basic necessities of life to support their entire family, including Raphael Elisha Meir's brothers and sisters. Rabbi and Devora Cohen are not working as they devote 24 hours a day to the needs of their little boy.


We ask that you please continue to share this website with as many people as you can via Facebook, Twitter, Email, etc. Please continue to give and ask your friends, coworkers, family members and your entire network to contribute the money and prayers that the Cohens so desperately need. Thank you so much and through the merit of your love and kindness may our prayers be answered. 




Original Post:

Dear family and friends in Houston and around the world,

Elisha Cohen's war against cancer rages on. It has been a very challenging year that has taken a toll on the Cohen family. Their beloved 5 year old boy, Raphael Elisha Meir, was diagnosed with  Anaplastic medulla blastoma brain and spine cancer in October, 2012. The day after Elisha was diagnosed, Elisha underwent surgery during which 70% of the tumor was removed. Following his surgery, Elisha suffered from posterior Fossa mutism syndrome, a common, debilitating side effect of neurosurgery which causes decreased muscle tone. This left Elisha unable to speak, eat, and walk.  Elisha had a very difficult year dealing with proton radiation therapy followed by chemotherapy. At the same time, Elisha underwent a rehabilitation process that has painfully helped him resume somewhat normal childhood activities once again. Elisha now talks, but he is still unable to swallow or walk. In June of 2013, Elisha received promising news that his tumor had been eliminated following an MRI scan. However, in early September of 2013, Elisha had his second MRI and received unthinkable news that the Cohen family was unprepared to hear. The doctors at the Texas Children Hospital observed that the tumor had returned and declared that Elisha's cancer had relapsed. This was devastating news for the Cohen's after physicians uttered the horrifying statement that, "nothing else that could be done for their sweet Elisha."

 

The Cohen family has been fighting this entire past year thinking that the worst was behind them, only to learn that their worst fear and nightmare became their new reality. There is very little research that has been done on this rare form of cancer. Even more disheartening, if there is a treatment for medulla blastoma, Elisha is ineligible because of his young age and his inability to swallow. In a desperate search for a non-toxic treatment and/or drug that could save Elisha's life, the Cohen's have identified an expensive drug. Elisha's parents feel that they shouldn't give up on fighting cancer. This is a desperate situation in which no one should ever be placed.  Now, the parents are financially challenged and are struggling to cover their basic living expenses while purchasing the aforementioned drugs which are not covered by the family's medical insurance drug plan. Elisha's parents are not working at present since they are both helping Elisha battle cancer. As a result, friends of the Cohen family have decided to attempt fundraising money for this family in order help alleviate the financial stress currently plaguing this already emotionally drained family. Please join us in making a difference in this family's life, a family committed to Torah, mitzvoth, and love of their fellow Jew.  You can donate whatever you feel comfortable with; everything counts. Also, you could forward or share this with your friends. The most we can do is help ease their financial plight.

 

Since we are using youcaring.com as the vehicle for accepting your generous donations, you can be confident in knowing that the aforementioned website is secure, and your credit card information will be protected. They do not charge a fee for running the site so all proceeds go directly to the Cohen family.

 

Thank you very much for your kindness and thoughtfulness. In the merit of your tzedakah and mitzvah may we see a complete refuah for Raphael Elisha Meir ben Devorah and all of those in need.  May you all be blessed with long lives and enduring health.

Contact the Organizer
Updates

Updates

04/17/2014
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino

With heavy hearts, we regret to share that Raphael Elisha Meir lost his battle with brain cancer and passed away early the morning of April 17. There simply are no words to adequately say thank you to the countless friends across the globe who have supported the family with your prayers, words, and assistance.

 

The funeral will take place Friday in accordance with Jewish law and Raphael Elisha Meir will be laid to rest in Israel. The Cohen family now begins a very long road to healing. 

 

The process of rebuilding their devastated family will take time and will take help. Please consider making a gift to the Cohen family in memory of Refael Elisha Meir to help defray the costs of bringing Raphael Elisha Meir home to Israel for burial, the expense for his family to accompany him, and to help with the immediate months ahead. Your love, care, and generosity is deeply appreciated by Rabbi Yaakov, Devorah, and the entire Cohen family.

Thank you so much for your chesed.






03/25/2014
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino
The Only Medical Hope for Rafael Elisha Meir

The Cohen family is living a nightmare which no one should ever be. Rafael Elisha Meir remains in critical condition with an aggressive brain cancer. At the moment, the Doctors at Columbia Presbyterian Hospital don't give the family any hope for treatment. The cancer has spread all over Elisha's brain and he has been unconscious for more than a month. Rafael Elisha Meir is connected to multiple machines which help him with basic human needs to survive like breathing. 

Just recently, the FDA approved the compassionate use of the Antineoplaston Therapy (ANP)for treatment of specific types of Cancer.  The FDA has recognized data of those who survived aggressive brain tumors due to the ANP, and is therefore after a long period of seemingly wasted time, now allowing it. There are currently 8 pediatric patients that need this medicine now. However, the FDA has put on the condition of giving this drug “only” if an oncologist requests this protocol as "Expanded Access" for Investigational drugs. 
 
Rafael Elisha Meir can't travel now due to his critical condition. As a result of this, the family would need an oncologist in the NY/NJ area. The family is in touch with other children that are ready to get on a plane if they get the signal of a cooperating oncologist. It is beyond words to express the sadness of the family that FDA ended approving the drug at this moment when Rafael Elisha Meir is in such critical condition. Time keeps not running in their favor.

The family recognizes that ALL is in Hashem's will, if they get the medicine or not. Hashem knows what is best for sweet Rafael Elisha Meir. 

In the meantime, If you find one brave courageous oncologist or oncologists willing to examine and treat up to eight pediatric brain cancer patients who have run out of treatment options, and now require a Compassionate use IND Emergency Treatment protocol from the U.S. Food and Drug Administration. 
 
The ANP Coalition needs your help now. Please visit www.anpcoalition.org or call (925) 699-9116. You could also contact the Cohen family at rafaelelishacohen@gmail.com  
 
If you want to learn more about Rafael Elisha Meir's fight with cancer or you want to help in other ways please visit https://www.youcaring.com/ElishaCohen and put Rafael Elisha Meir ben Devorah in your Tefillah.

Thank you very much for helping the Cohen family during this critical time. In the merit of your tzedakah and mitzvahs may we see a complete refuah for Raphael Elisha Meir ben Devorah and all of those in need.  May you all be blessed with long lives and enduring health
Tizku l’mitzvot
 





02/04/2014
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino
Dear Friends,
Much has happened since we last posted an update. The Cohen family has relocated to New York where Rephael Elisha is receiving care from specialists at Columbia University. They are so grateful for all the kindness and support that has been given to them there. 
Please continue to have Rephael Elisha Meir ben Devorah in your prayers. He is currently in the hospital in critical condition. 
Here is an update that Rabbi Cohen wrote at the beginning of the week:
We've been in the PICU all last week recovering from a seizure. MRI done on Friday and it was briefly revealed to us that the disease has gotten worse. We haven't reviewed the scans with our doctor yet so we don't know to what extent.

That will be this coming Monday. Meanwhile we have been moved from the PICU to the oncology floor where he continues to have seizures.

It's scary from all sides.

G-d willing the Doctors will still be willing to implement the original plan that we came to Columbia in the first place.

Columbia does have an awesome integrated staff with Alternative medicine which we are very excited about.





12/13/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino

Thank you for helping us reach our goal of raising $100,000 to assist the Cohens. The family is overwhelmed by the kindness and generosity of so many people who have expressed support for Raphael Elisha Meir. They are grateful for your donations, prayers, and words of support.

 

Raphael Elisha’s story has touched the hearts of thousands of people throughout the United States and around the world. It has inspired us to do mitzvahs and come closer to Hashem.  We are all praying to see the miracle of Raphael Elisha Meir’s recovery happen.     

 

Over the last weeks, a petition requesting a compassionate use waiver for a treatment from the Burzinsky Clinic has garnered over 60,000 signatures. Many individuals have written the family expressing concern over the clinic and its treatments. The Cohen family appreciates the concern and caring for Raphael Elisha Meir expressed, and is aware of the controversy related to the Burzinsky Clinic. Because the Burzinsky Clinic has committed to treating Raphael Elisha Meir free of charge, monies raised for the Cohens will not be used for this purpose.

 

We hope you will please continue to give generously to help defray the expenses the Cohens have and continue to incur. Thank you so much, and may we merit to come together to celebrate the complete recovery of Raphael Elisha Meir ben Devorah soon.






12/12/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino

Thank you again for all your support.

Please continue to pray for Raphael Elisha Meir ben Devorah that he should have a complete recovery.

We urge you to please sign the petition at the WhiteHouse.org website to help get approval for Raphael Elisha to receive Antineoplaston Therapy at the Burzyinski clinic.

It will take only 2 minutes of your time to help save this precious child's life!

The link is at https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW.

Thank you!!!

Here is the text of the petition:

WE PETITION THE OBAMA ADMINISTRATION TO:

authorize the FDA to grant a compassionate use exemption to Refael Elisha Cohen for Antineoplaston therapy.

The Cohen family, of Houston, TX, is facing a battle none of us should have to go through - aggressive brain cancer in their 6-year old son Refael Elisha. Having recently received the devastating news from their doctors that "there is nothing more we can do for him", the Cohens are turning to a last resort - Antineoplaston Therapy at the Burzyinski clinic. However, the FDA pulled their approval for this treatment in 2012 pending further clinical trials. We are told that the FDA is nearing approval to resume this treatment, but Refael Elisha does not have time to wait.

The FDA has the power to approve a "compassionate use exemption" so Refael Elisha can undergo this therapy to try and save his life.

We are asking the FDA to grant this exemption so we can continue to fight for his life.






12/04/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino

Dear friends and supporters of Refael Elisha Meir ben Devorah,

 

The Cohen family is deeply grateful for your prayers, kind words of support, and assistance. Refael Elisha continues to bravely battle the cancer that has ravaged him. It is a fight no six year old child should ever have to endure, yet this sweet, beautiful little boy is courageously taking each day as it comes.

 

The Cohens are pursuing alternative and experimental treatments to bolster the months of traditional chemotherapy and radiation therapy treatments that Refael Elisha has undergone. Insurance does not cover the costs of these treatments and maintenance, but they may be the only hope left in the face of the doctors telling Refael Elisha’s parents that there is nothing else to be done. They are expensive and there are few options left.

 

We can’t give up and we need your help now, more than ever!   

 

Please continue to open your hearts and give to help the Cohens continue the fight against the medullah blastoma cancer that has attacked Refael Elisha. This devoted family is leaving no stone unturned, but they simply cannot do it without you.

 

In addition to the medical costs, the day-to-day expenses for a family of eight continue to add up. This beautiful family has given so much to the community. Please, help them with however much you can. Every dollar counts. We pray to the Holy One Blessed be He that your continued generosity and kindness merit a complete and total refuah shlema (healing) for Refael Elisha Meir ben Devorah.    






11/13/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino
The Cohen family is overwhelmed by the kindness and generosity of so many who have contributed over the course of the past days. With thanks to Hashem, the initial goal of $25,000 was met. Raphael Elisha Meir remains critically ill, but your help has given the family renewed hope.
The Cohens, out of modesty, did not want to ask for the amount they truly need. The reality though is that this wonderful family needs more than $25,000 to pay for the investigational medications from Israel and the doctors to administer it. None of these medical costs are covered by insurance. They also have to cover the basic necessities of life to support their entire family, including Raphael Elisha Meir's brothers and sisters. Rabbi and Devorah Cohen are not working as they devote 24 hours a day to the needs of their little boy.
We ask that you please continue to share this website with as many people as you can via Facebook, Twitter, Email, etc. Please continue to give and ask your friends, coworkers, family members and your entire network to contribute the money and prayers that the Cohens so desperately need. Thank you so much and through the merit of your love and kindness may our prayers be answered. 





11/12/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino
It has been a rough  few days... talking to doctors all over the globe following leads  trying to find something ...
We did start the investigational medicine from Israel and a few other things.
Refael Elisha has been stable BH, the steroids have given him some relief.
We hope the medicine will kick in fast as Refael  Elisha MRI revealed a beast ...We are praying and hoping for miracles .We appreciate the support  around the world that has been showered upon us.
Our hearts are broken but hopeful that all our prayers will be answered really soon.
Thank you all for your continued support...

Yaakov & Devorah Cohen





11/07/2013
by Jennifer Rosenzweig, Devorah Kraines, Chaya Parkoff, Donniel Ogorek, Gita Holodovsky, Malka Finman, Jennifer Barnes and Raphi Sonsino
We need spiritual HELP!!
This year has been a long painful physical and emotionally journey!
We have been blessed to learn so much, to love so much and to be loved more then we could have ever imagined!
We are grateful and thankful to the Almighty for giving us LIFE!
We would have never chosen this battle but never the less we have learn and grown so much! 
Rafael Elisha evokes so much love and kindness .May this be a merit for a Refua Shlema! a full speedy recovery for him!!!
Update: Rafael Elisha has not been feeling good the last few days. His head has been hurting; he cries out to G-D and says HASHEM please help me! My six year old understands that only G-D can make this miracle. Its heart wrenching to see your child in pain .when he cries out to Hashem we cry with him…May our tears and all the holy tears of our friends open up the gates of haven! May cancer be gone for good!
We are excited about a new drug that is coming from Israel, where they are seeing good results BH!
Your Help is needed!
1-Please PRAY PRAY PRAY for him & for us!!! Refael Elisha Meir Ben Devorah.
2-Please do a Mitzva in Rafael Elisha’s Honor…give to someone, forgive someone let go of grudges…
Do this for Rafael Elisha PLEASE!!!! This will shake the heavens! It must!!!!
3-To my Israeli friends –can someone do 40 days in the kotel for us?
Can someone go to Kever Rachel?
Blessings on to you all for your continued love and support!!!
Yaakov & Devorah Cohen



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