YouCaring.com - Free Online Fundraising
It's simple and 100% free!Create Your Fundraiser »
Search fundraisers

Help David Walk Again

$5,225raised of $13,000 goal
40%

Organizer: Tori Pulkka Beneficiary: David Ramstad

After an undiagnosed freak infection almost left him paralyzed from the chest down, David Ramstad is fighting to recover his ability to stand, and walk. We would deeply appreciate your help.

This fundraiser is closed
Tap to expand
Fundraiser Details

The Short Story

David got sick and multiple doctors could not figure out what was going wrong.  They got distracted by little health problems showing up in test results, while still missing what was actually wrong.  By the time a new doctor finally solved the mystery, David was paralyzed from the chest down.  Following emergency spinal surgery, recovery of feeling and control was slow.  The insurance company government programs determined that his rate of progress no longer warranted the level of treatment actually required to make significant strides.  In the meantime has been unable to work during the protracted illness and recovery.

So, we've turned to family, friends, friends of friends, and even strangers to help us pay for the care needed to help him gain back a functional level of mobility.

Thank you for your supportive thoughts and financial contributions.

The Long Story

On January 12th, 2013, David Ramstad turned 65 years old.  He wasn't quite as energetic, flexible, or strong as he had been 20 years prior, but few of us are.  He still had plenty of drive and abilities, and was in the early stages of growing a new business.

On January 29th, Dave developed a fever and a severe ache in his rib cage.  He thought he was coming down with the flu, but the rest of the common flu symptoms did not arrive.  He still was not feeling well by February 2nd and went to urgent care.  At urgent care they ran blood and urine tests.  They ran a rapid flu test and ruled that out, and decided to put him on antibiotics to treat an infection, even though they were not sure what kind of infection.  They also took an x-ray.  He was in urgent care for 7 hours before he was released.  Upon getting back the results of the urine sample, they determined he had a urinary tract infection, and called in an order for different antibiotics.  He was told to follow up with his primary care physician in a week.

Dave improved during the week in some ways.  His fever was under control, but his rib cage was still aching.  His left foot became swollen and his left knee was having some numbness.  He was using a walker to help him get around when he saw his doctor.  She reviewed the test results from urgent care, and ordered a bunch more blood tests.  She was bothered by the swelling in his foot and referred him for a same day ultrasound to look for a blood clot; there was none.  The blood tests did show he was in the early stages of diabetes, but still at the stage it could be easily managed by diet.  She referred him to a nutritionist and also to a patient education program to learn to use a glucose monitor.  His x-ray showed "something" in his abdomen, but the quality of the x-ray wasn't good enough.  She referred him for a CT scan of his abdomen.

The CT scan determined that the "something" was just a benign lipoma, and was not causing any problems.  It also found an aneurysm near his spleen.  He was referred to a surgeon for a consultation, but it was considered non-emergent.  He was also referred for a colonoscopy.

By February 28th, he was still meeting with doctors and going for tests and follow-ups.  He met with his primary care physician again.  There were a lot of little things wrong, but they were not finding anything that was a strong indicator to why he had gotten so sick and wasn't making a full recovery.  She told him that the whole team of doctors had looked at his test results, but were confused about his symptoms and his progress.  Blood tests still indicated that he most likely had some kind of infection.  The pain in his rib cage was not subsiding.  She told him to continue to schedule with referrals he was racking up and she would see him again in two weeks.  He was frustrated with the process, but trying to be patient.

A couple of days later he began having more trouble walking, and eventually was unable to, even with a walker.  On March 7th, he called 911 and got an ambulance ride to the ER.  An ER doctor took Dave’s history and after a very brief examination announced, that Dave had either a tumor or an abscess on his spine, and it was in the process of paralyzing his lower half completely.  This doctor sent Dave for an MRI to confirm the location and sent him for emergency surgery.  It was not a tumor.  It was an abscess pressing on the nerves in his spine.  The neurosurgeon removed a portion of the bone and drained the abscess.  Then he was given very strong antibiotics to wipe out the infection that led to the abscess.

In the ICU, Dave found that he was able to move his feet, but had no control over them.  This was good news, as by the time he was rushed into surgery, he was not able to move them at all.  He was numb from the chest down.  He was not sure if that only became true post op, or only became noticeable post op, because he'd been so focused on not being able to move his legs.

Next they had to install a PIC line in order to deliver his daily very heavy antibiotics.  He was to be on these IV antibiotic doses for six weeks, followed by an oral dosage for an additional six weeks.  After a couple of days he was moved out of the ICU and into rehab, to begin the process of gaining some control over his lower body again, and to learn how to care for himself without this control.   

His insurance decided that he wasn't healthy enough to be worth the money of having him do rehab in the hospital, so they made him move to a nursing care facility.  Staying at the hospital with the higher level of care and wider range of equipment is more expensive than a nursing facility. Because Dave was not yet strong enough to meet the insurance criteria for being worth the higher cost of the better facility, he was forced to move, even though it meant a disruption in his continuity of care less than one week following surgery.

At the nursing care facility Dave is striving to get better.  It has been a lot of effort, but he is making progress.  He still has a long way to go.  Unfortunately once again insurance has determined that he isn't getting better fast enough, and has decided they will no longer pay for the rehabilitation level of Physical Therapy and Occupational Therapy sessions per week, treating him as a long term disability patient instead of one expected to recover.  Having less sessions makes a huge difference in the amount and speed of progress he can make, which can potentially negatively impact his long term quality of life.   The longer you go without using muscles, the more difficult it is to relearn the use of them.

Using parallel bars, Dave can now stand up for 30 seconds at a time, multiple times during a session.  Last week, he could not do this.  He is motivated and hardworking.  He knows the huge difference it makes to be able to stand briefly, how much easier everything will be, if he can walk several feet with a walker.  It means the freedom of being able to transfer into a car, and it means avoiding the large financial burden of having to purchase a wheelchair van.  This knowledge is a strong motivator.  

It would really make a big difference right now if Dave could make more of his medical and health decisions based on what he believes is right for him, and was not trapped by what insurance is willing to pay for.  It would help so much if he could put his energy into gaining strength and mobility and not into arguing with the system to convince them not to give up on him.  Dave hasn't been able to work since January, and has been racking up medical bills during the last few months.  Dave has a lot of fight left in him, and if you are able to help provide some financial strength, it will give him invaluable options to pursue additional healing, and make choices that make sense for the future.

Maybe you are here because you know one of his two children (the youngest of whom is 17 and just starting college), his four step children, or one of his two grandchildren.  Maybe you remember him from when he and his wife owned and operated Sea Thai in Seattle for 13 years.  Perhaps you knew him during his 18 years working as an engineer for the Applied Physics Laboratory at the University of Washington, or the decade previously when he worked for Naval Underwater Systems Center (NUSC).  Maybe you attended school with him at the University of Nevada, Reno, or Basic High School in Henderson.   If you are lucky enough to know him personally, then you know how good he is at problem solving, and how willing he is to try to help others with their problems.  He's working just as hard at solving this problem he is presented with, but this time he can use some help.

Maybe you don't know him and have just found your way here through random surfing or through six degrees of separation.  Thanks for reading this far.  Thanks for being open to the idea of how each of us can make a difference in the lives of the people we share this planet with, even if you can't contribute financially.

Dave has helped others in many ways, from mentoring people he has worked with, to troubleshooting a computer problem for a customer whose laptop is acting up during lunch at Sea Thai.  He's the kind of guy who pulls over to help when a car is broken down on the side of the highway, or once he has figured out how to correctly fill out bureaucratic paperwork, will help anyone else with the same problem.  He's the kind of guy who will help you move (but he might want dinner for it), or the kind of guy that will drive to another state with no notice because he got a call saying that somebody is ready to leave their abusive relationship.

Right now he is doing what he can for himself, and the rest of his family is too.  He is taking steps to sell the family home to help pay for what insurance isn't covering.  His wife has gone back to work as a cook.  His 17 year old daughter has switched jobs to get more hours so that she can contribute more.  We don't expect others to do all the heavy lifting, but we'd really love and appreciate a boost right now.

Physical Therapy starts at $80 per session, and goes up depending on the length of the session.  It's more for specialized therapy, like Aquatic Physical Therapy, which has very strong advantages.  Getting to a medical appointment requires  a "cabulance" right now, which costs $100 each way.  He would like to have at least six PT sessions per week (in order to have qualified for the hospital rehab, he would need to be doing FOUR 45 minute sessions per DAY, so six per week is not as much as it sounds like).  Plus some PT could be done safely and effectively on his own, when he can afford to buy the requisite equipment.

There are many other important things that insurance won't cover.  He has the use of a wheelchair, but it is the one the facility provided, with no shopping around for one that is comfortable for his condition.  He cannot sit for longer than 2 hours in the chair he was given to use without being in agonizing pain and having his legs go numb. This leaves him in bed a lot of the time, which has a set of negative impacts on a patient.  We want him to be able to sit for longer.  There are special alternative pressure mattress pads for hospital beds to prevent the development of bed sores, but insurance will not preemptively cover such a thing, instead waiting until there is an existing non-healing wound.  We don’t want to wait.

Thank you for reading this far.  If you can help my father out with a donation of any size, it would mean so much to the whole family.


-Tori

Contact the Organizer
Updates

Updates

06/15/2013
by Tori Pulkka

For this update I have good news and more good news.

Good news: This week he walked 142 feet without stopping. Way better than that, the first 120 feet was actually pretty good. Heels lifting, knees being, remembering and convincing his extremities to do the things that make for proper walking (and a lot less chance for injury). He has also been able to leave the care center on excursions a couple of times, riding in the car (someday, he hopes to be able to drive again). It was really nice to have a change of scenery and see a little of the outside world again. They've started working on how to walk up a step. He has also started some practice on balance boards. He also got to try out a lift recliner. The seating was the most comfortable he has been in many months, and the lift feature did make it so that he could get back out reasonably. He will definitely be looking to get one for home when he can.

More good news: The insurance has reviewed his appeal, and has agreed to let him stay at the care facility for one more month. This is such good news, as he really isn't ready yet, and hasn't had enough training in the new life skills he will need upon release. I am so relieved about this. Even with your generous help, we haven't raised anywhere near enough to pay for a longer stay on our own, so we really were not sure what we were going to do. While it can be depressing and he looks forward to being out, it is still the safest place for him.

Along with that good news, I also have some amazing news.

Ready?

Today during PT he took six steps all by himself - without the walker! He was also able to stand on his own for almost a minute. This is more than I had dared to hope for. My daughter graduated from high school today, and this news made for a very nice gift. It's been a good day.


Share This Update!


06/02/2013
by Tori Pulkka
Here is video of him walking!

http://vimeo.com/
mstori/davewalking
Share This Update!


05/31/2013
by Tori Pulkka
I've got some good news and some bad news.

The good news is that Dave made it 62 feet on a walker today!  He is still very shaky and unsteady, but SIXTY TWO FEET!  I hope to be sent some video of him walking soon.  They don't have the right cable to get it transfered yet.

In other potentially good news, he has been cleared to exit the building in a wheelchair, and try to transfer from the wheelchair into a car.  He is hoping to go on an outing tomorrow riding around town.  He hasn't been anywhere that was not for a medical appointment in months!  He is really looking forward to a change of scenery.  Also, if this works, he'll be able to get to appointments without the expense of the cabulance.

The bad news is that he got a letter from his insurance company and they will only cover 6 more PT and 6 more OT appointments, period.  After that he will need to pay for 100% of all additional PT and OT appointments directly, and he still has a lot more than 12 appointments of improvement left in him.  Right now even maintenaince of his progress requires appointments.

They also may only pay for the nursing facility for two more weeks.  He is still waiting for additional information on that aspect.

So, today I am feeling a mix of joy and frustration.  I am also, feeling so much gratitude for your help and support.  Thank you for your donations.  Thanks to the children drawing pictures to send.  Thank you for helping to connect him to a world that stretches beyond the walls of a nursing home and the limits of insurance regulations.  It means so much, both in the obvious material way, like being to pay for important healthcare, and in the less tangible, but equally vital sense of hope that you are providing.

-Tori
Share This Update!


05/24/2013
by Tori Pulkka
Dave walked 25 feet using a walker!

It still takes a lot of work and concentration and isn't very smooth or efficient, but this is amazing stuff!

The PT people had him sign a release so they can start video recording some of his sessions.  They are very excited by the amount and speed of his progress.

Thank you for your help and support!  Every dollar is helping to make a huge difference in his future.  He is so grateful and astounded by your generosity.  It's a source of strength.
Share This Update!


05/15/2013
by Tori Pulkka
Today I got an email from my father:

"Walked the length of parallel bars twice.  It wasn't pretty, but it's a good start."

He also included a photo of the parallel bars.  I added it to the gallery so you can see how far he walked today.  It may not be many feet, but it is a very long distance from where he was a month ago.  

On the recumbent cross trainer he has moved up to the level 4 resistance setting and is working to strengthen his legs further.  He also sent me a photo from this piece of equipment because he likes the view of the rhododendron through the window.

Thank you so much to all the suppporters who've helped him get this far.  He still has a lot of hard work ahead, gathering strength and adjusting to all the changes that need to happen in his life, but you're helping him with these vital steps.

Thanks to the generous support of friends, aquaintances, family, and even strangers, along with the phyical therapy he also now has an alternating pressure mattress pad to reduce his risk for pressure sores, and other healh support items to aid in his recovery.  In further good news a better wheelchair has been ordered which should give him more mobility and ability to sit comfortably and enjoy the world instead of having to so much time stuck in bed.

It is so reassuring for me to see the pieces coming together to give him the brightest future possible.  It means so much to have each of you rooting for him.

-Tori

Share This Update!


05/07/2013
by Tori Pulkka

In just 6 days we've reached 1/4 of our goal. It is amazing.

I added a photo to the gallery. My father sent it to me of a piece of PT equipment called a Recumbent Cross Trainer. He had told me a about it a couple of times, and I was having a hard time imagining what it was.

The pedals and the arm work in tandem, so somebody with little leg strength can use their arms to help them along. It is a good machine for Dave to work on because it helps both with strength and with retraining the brain to use the nerves to control the limbs correctly.

Last week had gotten to the point where he could use work it with arms and legs both for about 13 minutes total, with breaks in between. Six minutes-Rest-Three minutes-Rest and so on. This was good progress. It wasn't that long ago that he couldn't control his legs at all.

Then the Physical Therapist told him, "I'd like you to try to do 20 minutes, legs only."

Dave asked, "Can I stop to rest?"

"If you HAVE to, but I think you can do it."

Dave worked the machine, legs only, which is more difficult than getting an assist from his arms, for 22 minutes!

This is great news!

It also made me think of a TEDx talk by exercise scientist, Professor Tim Noakes, on The Mindset to Succeed

http://www.youtube.com/watch?v=dYWLfPmnJSI

"What we really need in life is a coach who will give us the self belief to do the extraordinary."

When the insurance company no longer thinks the cost/value ratio of the intense rehab makes sense, it isn't just financially damaging. It is psychologically damaging to the patient.

The amazing thing about what all of you are doing - what every dollar is doing - is that it helps him get better. Of course it helps because the money can be put to good use, but it also helps because with each donation comes the notion that YOU BELIEVE HE CAN GET BETTER. That is powerful.

We appreciate every single donation, no matter the size, because it means so very much. Thank you!

-Tori


Share This Update!
Supporters

Supporters

Comments

Comments


Spread the word
More photosView Gallery

Gallery

Widget code for Help David Walk Again

Copy the embed code shown then paste it on your site. You can select from 3 premade sizes.

x

Just copy the code above and paste it on your site!