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Delaney Brown / Team Laney

$57,100raised of $30,000 goal
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Organizer: Susan Berube Beneficiary: Delaney Brown

Delaney Brown passed away Christmas 2013. Laney was laid to rest on 12/30/2013. Thank you very much for all of your love and support through this horrible ordeal our family has gone through

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Thank you very much for all of your love and support through this horrible ordeal our family has gone through. The outpouring of kindness and giving has overwhelmed us. The family will no longer be accepting donations form this site. If you would like to donate to help other children who are suffering with this awful disease you can do so by going to http://www.pennstatehershey.org/web/fourdiamonds/

Delaney Brown passed away Christmas Day 2013. Laney was laid to rest on 12/30/2013. 
Delaney was diagnosed May 2013 with AML Leukemia. Below is Jennifer Capone/ Brown's entries as Delaney fought bravely to fight this terrible disease.

December 30 2013
Yesterday was a Laney's public viewing. It was filled with tons of loving people sharing stories of hope and inspiration that Laney had brought them. Her pictures flashed on multiply screens so that no matter where you were you had those bi...g blue eyes gazing at you. Today was Laney's private funeral services. All our closest family and friends gathered together to celebrate Laney's life. It was a beautiful service filled with tears and laughter. We then took Laney to her final resting place on this earth. We thanked God for putting her into our lives then said "see you later". We dropped a bed of pink roses atop her casket as tears steamed down our faces. It was so hard to leave that cemetery knowing that tomorrow would feel so empty and alone. We left and had a meal with our family then decided to go back to check on her. Just the four of us were there at her gravesite. We prayed together one last time before getting in the car. Since Laney passed I have asked her everyday to give me a sign that she's with me. I asked for her to come in my dreams or let me find a note that she had written to me that never got delivered till this moment but I have received nothing like that. As we were ready to leave the cemetery Jacob pointed to the sky and said "look at that cloud". As we all looked up, there it was. It was our sign. In the clouds over her gravesite was alligator. I rushed to take a picture before it dissolved away.  Little things like that will continue to show me that she's okay. I imagine tomorrow will be hard as well. Tomorrow will be the first day we wake up and don't have a task to do or a ceremony to plan. It will fill empty just like my heart does right now. Please continue to pray for strength for myself and my family.See More



December 25, 2013
I want to Thank everyone for you generosity, love and support. Delaney Brown has passed away this Christmas morning. We are all deeply saddened. I have copied the latest post from Delaney's Mother. Jen Capone/Brown.

*** Laney Update ***
My heart breaks right now. Our little angel on earth earned her pink glittery angel wings in heaven. She took her last breath at home in her bed at 3:10 surrounded by all her family and friends. I miss her so much already.


On May 27, 2013 Delaney Brown was diagnosed with high risk AML Leukemia. She has been fighting this deadly disease for 7 months. This battle included multiple rounds of chemo and a stem cell transplant. She just turned 8 years old. Her birthday is 12/20/2013. On December 17th 2013 Her family was given the devastating news. The following post was made to her Facebook informational page.

“Today we were told the worst news of our lives. Laney has 70% cancer cells in her blood. If they would treat the cancer the virus that she has would kill her. And if they treat the virus the cancer will kill her.
They gave her a couple days to a couple weeks to live.
My heart is breaking. I sit here looking at her face trying to remember every contour of it, I breath deeply ...against her skin trying to always remember her smell. Every time she speaks I try to listen for the different way she says certain words so that I never forget. I keep putting my lips against her warm skin because I never want to forget how that feels. I'm devastated and I'm hoping that I will wake up from this nightmare.
We told Laney and she said she wanted to be the one to tell Kylee and Jacob. She told Jacob that when she's gone he is to be a good big brother to Kylee. And she thanked Kylee for being a great sister and her best friend. They all cried in each other's arms. I have never felt this type of pain in my life.
We will be taking her home on hospice tomorrow and will be trying to let her have as much fun as she can handle. We will watch her blow out her eighth birthday candles knowing that she won't have a ninth. We will also ask Santa to come early this year because Laney has been such a good girl. Please pray for Laney and our family. Please pray for a miracle. We will be spending every second with her till God decides he needs another beautiful angel up in heaven.”

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Updates

Updates

01/15/2014
by Susan Berube
January 15 2014
*** Laney Update ***
Copied post from Delaney's Mom
These past two days I have been trying to focus on Jacob and Kylee. This last year has been hard on them as well. They are back in school and are doing well. We started to get back into the swing of all their extracurricular activities that
 have gotten wiped from our calendars since Laney was diagnosed. 
I have been trying to keep my mind busy because every time my mind wanders it wanders right to Laney and I get sad. I have been trying to pray for strength especially for Jacob and Kylee. I'm still really angry at God right now but hope he hears my prayers anyway. 
I also have been doing some research. One thing that I did not do after Laney was diagnosed was goggle the statistics of her disease because I felt like if I did then I won't have hope. I searched for how much of our federal money goes into pediatric cancer research. I came up with an amount of 58 million. That seems like a lot of money till you realize the total budget for cancer research from our government is over 9 billion dollars. That means for every dollar given to cancer research, they cut a penny in half an give that to our kids. It that insane or is it just me!! Now my numbers may not me 100% accurate because I'm not the best when it comes to finding things on the web. So I was going to ask if you all could find me some numbers of your own as to how much funding pediatric cancer gets? Since Team Laney reaches far beyond our nations borders into many different countries, I was wondering what other countries provide to their sick kids?
Then I decided to look and see what research studies used that 58 million. I was specifically looking for Laney's rare disease of AML with monosomy 7. I could not find one study in the past year done on her disease! That's not failing, that's not even trying to find a cure. So I want to ask if you search her disease can you find any done? Even in other countries? 
That is so disheartening. Children don't do anything to their bodies to deserve cancer and we are giving them pennies to fight it. Just sad 
I think Laney was deserving of at least one research study in a years time even if it's rare.
Missing her beautiful smile....

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01/09/2014
by Susan Berube
January 9 2014
*** Laney Update ***
Copied post from Delaney's Mom
It has been two weeks since you left us and I still don't believe it's true. I keep feeling like you are playing one of your pranks on me. I feel like your just playing hide and seek and that I just can't find you even thou I search for you
 for hours. I'm not going to lie I feel broken and my faith shaken. The only solace I have is hearing your voice that I recorded the week before you left. I haven't dreamt about you but that doesn't stop me from begging God to give me that gift every night before I close my eyes. Time hasn't made it easier, my heart just grows emptier with the days. I look at your smiling face in pictures and wish I could just touch it one last time. I miss you so badly Laney :'-( 
Love ya, Love ya, Mom

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01/02/2014
by Susan Berube
January 2 2014
*** Laney Update ***
Copied post from Delaney's Mom
Grief is horrible thing. Every morning when I open my eyes I have to come to the realization that she is no longer here. Throughout the day I go through every emotion of the grieving cycle, anger, sadness, etc.... By the time I lay my head down I'm emotionally drained an yet I know when my eyes open the next day, I have the exact same mental anguish to go through again. 

Today I will be venturing out to look for a headstone for her. Making her death even more of a reality. I remember when her and I would go shopping for shoes and cute outfits and how happy we were doing that. Now the very last thing I have to buy you is a stone. My last gift to you will be a pretty as you were. Wonder if they come in pink??
Missing you always!!!
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01/02/2014
by Susan Berube
January 2 2014
*** Laney Update ***
Copied post from Delaney's Mom
Grief is horrible thing. Every morning when I open my eyes I have to come to the realization that she is no longer here. Throughout the day I go through every emotion of the grieving cycle, anger, sadness, etc.... By the time I lay my head down I'm emotionally drained an yet I know when my eyes open the next day, I have the exact same mental anguish to go through again. 

Today I will be venturing out to look for a headstone for her. Making her death even more of a reality. I remember when her and I would go shopping for shoes and cute outfits and how happy we were doing that. Now the very last thing I have to buy you is a stone. My last gift to you will be a pretty as you were. Wonder if they come in pink??
Missing you always!!!
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01/01/2014
by Susan Berube
January 1 2014
*** Laney Update ***
Copied post from Delaney's Mom

In leaving 2013 I am also leaving a part of my heart. 2013 has been without a doubt the worst year of my life but has also given me gifts that will forever be engraved on my heart. Most parents don't get the blessing I had of spending entire days with my undivided attention on loving my child. We talked for hours and played games even if it was in a hospital room. 

My resolution this year is to make a difference just like my baby did. I may not be ready in the next day, week, or month but I will. I don't want to see babies die of cancer. I want us all to take a stand to make a difference. 
I miss my Laney so badly and I don't want another parent to feel this pain. 
Make a difference in 2014!
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12/31/2013
by Susan Berube
Delaney Brown was put to rest on December 30 2013. There has been many request for me to re-open the donation portion of this site. I will continue to copy posts from Jenn.

December 30 2013 *** Laney Update *** Copied post from Delaney's Mom
Yesterday was a Laney's public viewing. It was filled with tons of loving people sharing stories of hope and inspiration that Laney had brought them. Her pictures flashed on multiply screens so that no matter where you were you had those bi...g blue eyes gazing at you. Today was Laney's private funeral services. All our closest family and friends gathered together to celebrate Laney's life. It was a beautiful service filled with tears and laughter. We then took Laney to her final resting place on this earth. We thanked God for putting her into our lives then said "see you later". We dropped a bed of pink roses atop her casket as tears steamed down our faces. It was so hard to leave that cemetery knowing that tomorrow would feel so empty and alone. We left and had a meal with our family then decided to go back to check on her. Just the four of us were there at her gravesite. We prayed together one last time before getting in the car. Since Laney passed I have asked her everyday to give me a sign that she's with me. I asked for her to come in my dreams or let me find a note that she had written to me that never got delivered till this moment but I have received nothing like that. As we were ready to leave the cemetery Jacob pointed to the sky and said "look at that cloud". As we all looked up, there it was. It was our sign. In the clouds over her gravesite was alligator. I rushed to take a picture before it dissolved away.  Little things like that will continue to show me that she's okay. I imagine tomorrow will be hard as well. Tomorrow will be the first day we wake up and don't have a task to do or a ceremony to plan. It will fill empty just like my heart does right now. Please continue to pray for strength for myself and my family

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12/25/2013
by Susan Berube
December 25 2013
*** Laney Update ***
Copied post from Delaney's Mom
My heart breaks right now. Our little angel on earth earned her pink glittery angel wings in heaven. She took her last breath at home in her bed at 3:10 surrounded by all her family and friends. I miss her so much already.
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12/23/2013
by Susan Berube
December 23 2013
*** Laney Update ***
Copied post from Delaney's Mom
These past two days have been rough and filled with scary moments. 

As you gathered outside our house to carol we were bringing Laney home from an infusion clinic where she was getting platelets. During the infusion I notice that her fingers were blue and i asked the nurse to check her oxygen level. It was 60%! I was terrified. The nurse that volunteered to come in and open the center on her day off just for Laney was fabulous. We got ahold of the doctors and got some orders to give her Lasix (a diuretic). That seemed to work well for awhile till we got her home. I kept looking at her breathing and started to panic. I didn't know if she was getting enough oxygen and didn't have the equipment to give me the peace of mind. We made a decision and called the paramedics. As jungle bells and other carols are being sung for Laney she was surrounded by nurses and paramedics assessing her breathing. The paramedics checked her oxygen level which ended up being okay. She still requires oxygen otherwise her levels drop very fast. Her dad and I had to have the discussion as to what we would do if something would go bad quickly. Would we keep her home or take her to the hospital. That is something we really didn't talk about before but who in their right mind would want to.
Today we had the same thing happen again with her oxygen level and Laney began to panic screaming that she couldn't breath but was too scared to realize that she needed her mask on to make to better. She looked like a deer in headlights. Flashbacks of her face when she was hallucinating flashed through my head. I was trying to stay calm on the outside but was freaking out on the inside. My mom looked like she was going to cry as Laney resisted putting her mask back on. I thank God that I am a nurse and have a nurse as my best friend who just happened to be here when it happened. Between the two of us we were able to calm her down enough to get her mask on and get her levels up. 
We then talked to the hospice nurse about breathing treatments to help her more. She called the doctor tonight and got the orders. We gave her first dose not to long ago and she looks so much more peaceful now. She doesn't seem to be struggling as much as before. And even talked to us and opened her eyes afterward which she really hasn't been doing to much of. For the first time in the past couple days her breathing almost looks normal. 
Please continue to say strong prayers for a miracle. We have not lost hope and never will. God bless.

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12/21/2013
by Susan Berube
December 21 2013
*** Laney Update ***
Copied post from Delaney's Mom
Last night Laney felt pretty good. She didn't need to much medication over night but this morning when she woke up she had a good amount of nausea. We got it under control enough for her to cross another item off her bucket list.... she wanted to be a baby sitter. We had a friend of the family bring over their 7 week old baby for Laney to "take care of". She fed him and sang him lullabies. She rubbed his little belly while he slept. She honestly didn't want to give him back that is until he pooped. She adores babies so this brightened up her morning greatly. Following that she began to get sicker. Her nausea was causing her to cry out and all I could do in that moment was cry. The fabulous birthday that i envisioned in my head didn't come to light. Laney didn't get to blow out her candles or enjoy time with her friends because of how terrible she felt. I texted the NP and she called me and walked me through what I should do to make her feel better.... thank God! We wrapped up her cake and she will blow out her candles whenever she is feeling good enough to truly enjoy it. And her friends are on call to come back over and celebrate as well. It is so upsetting to see her like that. After we got that under control Laney got to fulfill another one of bucket list items..... to talk to Taylor Swift!!! Laney was so nervous to talk to her because she is such a "famous celebrity". I was actually worried that when Taylor Facetimed her that she would be to scared to talk but Taylor was fabulous!! She really engaged Laney in conversation. Laney lit up and had a huge smile on her face. I can't thank Taylor enough for taking time out from her family to make Laney's birthday very memorable. We will hold that memory in our hearts forever. 
Kylee had a good birthday too. She did end up spending time with her friends at The Works with her aunt so that Laney could rest quietly. She also had a jungle theme to her half of the birthday which included a visit from a real live lemur and a little monkey thing (but I can't remember the name of it). She loved it. 
We then got a citation from The House of Representatives declaring Delaney as an ambassador of hope and the inspiration of a united community in West Reading. She has touch so many hearts and brought so much good into this world that they wanted to recognize her for her achievement. They also are developing a bill that will provide more funding to childhood cancer research in Laney's name. I don't have much information on that yet but if it means that one less child suffers and one less family experiences the heartbreak our family has been dealing with then it will be such a beautiful thing.
Thank you all for respecting our privacy during this time as well. Everyone has been so respectful when coming to house to drop things off and look at lights and we are just extremely grateful for that. We also need to thank the West Reading police department for how vigilant they have been over Laney and our family. 
Please continue your prayers. You all are amazing. God bless and good night.

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12/18/2013
by Susan Berube
December 18 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today we were told the worst news of our lives. Laney has 70% cancer cells in her blood. If they would treat the cancer the virus that she has would kill her. And if they treat the virus the cancer will kill her. 
They gave her a couple days to a couple weeks to live. 
My heart is breaking. I sit here looking at her face trying to remember every contour of it, I breath deeply against her skin trying to always remember her smell. Every time she speaks I try to listen for the different way she says certain words so that I never forget. I keep putting my lips against her warm skin because I never want to forget how that feels. I'm devastated and I'm hoping that I will wake up from this nightmare. 
We told Laney and she said she wanted to be the one to tell Kylee and Jacob. She told Jacob that when she's gone he is to be a good big brother to Kylee. And she thanked Kylee for being a great sister and her best friend. They all cried in each other's arms. I have never felt this type of pain in my life. 
We will be taking her home on hospice tomorrow and will be trying to let her have as much fun as she can handle. We will watch her blow out her eighth birthday candels knowing that she won't have a ninth. We will also ask Santa to come early this year because Laney has been such a good girl. Please pray for Laney and our family. Please pray for a miracle. We will be spending every second with her till God decides he needs another beautiful angel up in heaven. 

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12/17/2013
by Susan Berube
December 17 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney is still not feeling great. Over the weekend Laney had nosebleeds which lead to nausea and vomiting up blood. Her platelets have been really low because of the antiviral medication that she needs. So she did receive 2-3 platelet transfusions. She has not had any more hallucinations since Thursday night ...thank God. She is also still having fevers on and off as well as nausea and vomiting. All her testing that has come back so far is okay except for the virus. They feel all her symptoms are related to the virus and subsequently also related to the treatment for it. Basically Laney feels the way people do when they go to the MD they say "it's a virus" and then they tell you to wait for it to pass and send you on your way. An eventually your body fights it off but for Laney she doesn't have the cells that do that for her. So if you can imagine how you felt the last time you went to the doctor for a "virus" then you can certainly relate with how Laney feels right now. They are using the antivirals to bridge the period of time needed till her immune system kicks in. She is having a good amount of pain tonight in her ribs because of all her coughing and vomiting. They are working on looking at her medication and seeing if they can get better pain control. I hope she starts feeling better soon. Her and her sister's birthday is on Friday and she will be so upset if she has to stay here for her birthday. Unfortunately I'm pretty sure that we will be here. My sister in law is working hard on still trying to make it special even if we are here. Well that's it for tonight. God bless and good night.
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12/14/2013
by Susan Berube
December 14 2013
*** Laney Update ***
Copied post from Delaney's Mom
After I was done my post for Thursday things for Delaney went from bad to worse. Earlier in the day Delaney began to see things that weren't there. For example when her pop-up was sitting on the chair next to her she believed she saw a pipe break underneath him and that he was getting splashed with water. She also thought that she had seen her grandmother staring at her in the gift shop and hiding behind the counter. We were able to tell her at that point of those things were not real and she believed us and we went on with our night. Well as we were getting ready for bed, the nurse was in the room giving her medications. Laney shouted out that she'd seen mice in the corner of the room. She was extremely adamant that they were there and it took us a little bit more time to prove to her that they weren't. After calming her down we crawled into bed. I planned to sleep in the bed with her to make her more comfortable. She closed her eyes and when she opened them back up her eyes got as wide as can be and she started to cry and scream at there was a bat above her head. I've never seen such terror and her eyes. She was flinching as if the bat was coming down at her and it was startling her. I was trying to scramble for the lights as my husband was going out to get the nurses. I thought that when I put the lights on that maybe things would be better. But boy was I wrong. The second I turned on the lights she was focused on getting the blankets off of her getting out of bed. When she looked down at the blankets and her legs all she seen was bugs crawling all over her bed and all over her. She screamed in terror again. She couldn't get away fast enough and everywhere she went that they were there. At this point I am just in tears watching my little girl go through this. I know how I feel when I have a spider or a stinkbug on me I pretty much freak out. I cannot even fathom what that little girl went through thinking she had tons of bugs crawling all over her. I'm looking at her face and knowing she is seeing what she is seeing 100% and there was an nothing I was going to do convince her otherwise. I felt so helpless and scared. The only thing that comforted her was taking a picture of where she thought she had seen the bugs and then showing her the picture which didn't have any of the bugs on it. The doctors and nurses begin to brainstorm to try and figure out exactly what was going on with Laney. The charge nurse Lauren came up with a solution that she had seen in the adult patients in the cancer center. Laney was on a very strong intravenous antifungal medication. They had just started it three days prior and the charge nurse had said that she had seen hallucinations from that medication in the past in the adult population. Delaney had never received this medication IV before so the doctors decided to hold her dose for midnight and not started the next day until her primary doctors came in. It took her a long time to fall asleep last night, we left the TV on and watched Christmas shows until she dozed off. In the morning when she woke up all was better. Her eyes weren't blurry anymore and she wasn't seeing or hearing anything funny. It seemed that all her hallucinations were related to that antifungal medication. They still decided to do the spinal tap today just because of all the viruses they keep finding in Laney and to verify that she doesn't have some unknown virus, bacteria, or fungus in her spinal fluid. They did the test today around noon and Laney did pretty well through it. We won't get the majority of the results back till the beginning of next week but they were able to look and see if there were any unusual blast cells a.k.a. cancer cells. They did find a couple white blood cells in her spinal fluid but looking at them under the microscope they seem to be normal white blood cells. Thank God!! They are still going to send it out for a flow cytometry to make sure a hundred percent there are no cancer cells in there but as of right now what they can visually see is none. She also had gone a little over 24 hours without a fever yesterday into today which was extremely exciting. But then tonight before I was ready to leave to come home she ended up spiking a fever again . Other than that, today all her other symptoms have improved greatly. Now we just have to try and get this fever under wraps so then hopefully she can be on her way and home in time to celebrate her birthday. Please continue to send up prayers of health and comfort for Laney. These last couple days have been extremely hard on her mentally and physically. Thank you and God bless!
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12/13/2013
by Susan Berube
December 13 2013
*** Laney Update ***
Copied post from Delaney's Mom
These past couple days have been really rough on Laney and hard for me to see her so uncomfortable and sad. But I'm happy to say that her fever, pain, nausea, and vomiting have all improved. We still have some issues but they are less frequent then Monday & Tuesday. She had been receiving a lot of medications over the past couple days for pain and nausea that we thought were making her a little loopy. She was seeing things that weren't there and talking to people that weren't there. Her vision was also very blurry and she had trouble focusing. So yesterday they pulled back on some of medication to try and get a good balance of comfort and not being to loopy. So today was a better day and she didn't need many medications at all but unfortunately was still having visual hallucinations unrelated to when medications were given. 
So tomorrow they will be doing a spinal tap on her. They want to check to see if there are any viruses in her spinal fluid. They will also be checking to see if there are any cancer cells in the fluid as well. They said there is a very small chance that they will find any cancer there but they just want to be sure. It is so gut wrenching to even think about that. And scares me so bad to see her hallucinating.
Please pray hard that they don't find any cancer and that it is something treatable!!!

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12/10/2013
by Susan Berube
December 10 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney feels absolutely awful today 
She has had a fever NONSTOP today as high as 104 degrees. They have been giving her Tylenol but it's not bringing it down. She has body aches and bad pain in her neck & spine. She has so much pain when she tries to get up, it breaks my heart. She also has had nausea and vomiting all day. They have been giving her everything they can but she's still getting sick. Due to the antiviral medication she is on it has a side effect of dropping her platelet count which it has done. Delaney has had a bloody nose every time she blows her nose. She even received a platelet infusion this morning but still has had bloody noses since then. 
They said that she is positive for two different viruses now, the adenovirus and the rhinovirus. She also has C-Diff again. This is a triple whammy on her body and she is really feeling it. 
It has been a long time since she has felt this bad. Please continue to pray for her recovery and comfort. Thank you. God bless!

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12/09/2013
by Susan Berube
December 9 2013
*** Laney Update ***
Laney is being readmitted to the hospital 

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12/09/2013
by Susan Berube
December 9 2013
*** Laney Update ***
Copied post from Delaney's Mom
I just called my husband to see how Laney is doing and didn't receive a good report 
Since the tube feeding incident Friday she has barely eaten anything unless it it forced. She is saying that she is just to tired and has been laying around sleeping on and off the past two days. She doesn't have any fevers or anything that would seem to make her "medically" sleep all day and not eat. I don't know if depression can effect kids Laney's age but honestly that is just what it seems like. She is sad a lot about her birthday and Christmas coming up. And the fact that she is not home is coming up more and more often. I really think she's home sick and depressed. But who can blame her for feeling that way. She hasn't seen her house or slept in her own bed since July. She just seems more teary eyed and tired. It makes me so sad :'-(
I feel like she is tired of fighting. But we will continue to fight for her. God bless!

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12/07/2013
by Susan Berube
December 7 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today has been awful. Laney went to clinic and didn't gain any weight. They decided to put in a nasogastric tube in to give her nutrition overnight with the hopes that she still would continue to eat during the day to get her daily caloric intake in. Laney was so upset and anxious but they gave her some Ativan before doing the insertion to help relax her. Well she was so brave and did really good till they got it in then she started to vomit. We left clinic and the vomiting has continued all evening long. She tired to eat some ice cream thinking it would feel good on her throat but she threw that up too. Pretty much every time she moved her head and the tube rubbed on the back of her throat she would vomit. She has always had a hyper-gag reflux and this just made it ten times worse. So pretty much she has eaten anything, puked all evening long and the tube feedings haven't even started yet.
The nurse finally came tonight to give us education on setting up her pumps and doing her feedings. Laney threw up while she we there. Then she started to flush Laney's tube and after 2mls of fluid went in she was throwing up again. The nurse decided to call the on call doctor and let him know what was going on and he instructed her to pull the tube out and we will discuss other options in the AM. 
Laney was crying her eyes out tonight. She said this was the worst day ever and that this entire month has been a "bummer." I think she forgets all the other more horrible days she had in the past but I guess that's a good thing. She does look absolutely horrible tonight and with her being so sad and emotional it has just made me cry. 
She needs more nutrition so we will see what her primary doctors think tomorrow. Hopefully we can come up with an alternative.
Thank you for all the love and support. Laney prays every night before bed and she alway includes thanking God for all the love and support for Team Laney. God Bless!

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12/06/2013
by Susan Berube
December 6 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today was a better day then yesterday. We focused on fun and of course eating. We went to the Christmas tree shop and got to look around. We found some decorations to brighten up the apartment and make it more in the holiday spirit. Then we decided to go to Hershey's Chocolate World and ride the chocolate world ride. What's better then a chocolate ride to make her happy and the smell of chocolate to encourage her appetite. She also got to make her very own chocolate bar from start to finish. She really loved that! She was smiling so big under that mask  And she can't wait to take her sister there and show her how it's done. 
Laney hasn't been upset today about not being home. We did discuss her birthday a little bit. She did have one request for her birthday and that was a piñata, so we will be sure to make that happen. 
She also has been eating nonstop since yesterday. I am so proud of her for trying so hard to gain weight. I'm sure I have gained enough for the two of us but I'm not sure they will take our collective weight gain into account... LOL. She has eaten everything from milk shakes to Shepard's pie. Clinic is tomorrow so that will be the moment of truth. 
Thank you so much for the continued prayers!

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12/05/2013
by Susan Berube
December 5 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today wasn't the greatest day. At clinic they said that Laney's viral count is still going up. And if it keeps going up it could cause serious issues. They checked her blood to see if she has any T-cells (virus fighting cells) that could help bring the counts down on her own but she doesn't even have one  So the only thing she has to fight it is what they infuse into her. She got immunoglobulins today and will get antivirus medication every five days. Laney platelet count also went down.The antiviral medicine has a side effect of dropping platelet counts so they said that is the cause of it. They are planning on monitoring her extra closely, so we will be back to clinic days three times a week. She also hasn't gained any weight yet. We have been trying to get her to eat some calorie filled food but surprisingly it's easier said then done. We have till Friday to bulk her up or she will be getting a feeding tube. Tonight we are baking cupcakes and hopefully she will be eating a bunch o them.
Laney usually doesn't complain about being up at Hershey but today was different. She asked me if she would be home for her birthday, on the 20th, and I told her with her virus issues that I wasn't sure that it would happen. She just started crying and said how much she wanted to go home. It completely broke my heart. I hate seeing her so sad especially because it is so unlike her. 
This next month is going to be hard on her. This is usually her favorite month of the year because of her birthday and Christmas. We are just going to have to try and make it extra special for her in whichever ways we can.
Please continue to pray for her. I have seen the power of prayer in the past and feel that Laney is where she is because of it. Thank you for your support. God bless.

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11/30/2013
by Susan Berube
November 30 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a great day yesterday. We sat at the table and gave thanks for all the good things in our lives, family, friends, and health. Having our family together is the most wonderful feeling ever. If you asked me six months ago what these holidays would look like I probably couldn't have even imagined they would be this perfect. I loved hearing all the kids play and laugh. Even when they were bickering it was music to my ears. 
Laney ate a nice good meal as the doctor ordered then even had seconds and dessert. Hope we can give doctor Greiner the weight he wants. Laney strives to make him proud so I'm sure she'll make weight by Monday lol 
This morning we went to go see the movie Frozen. It was definitely a cute movie and Laney and her sister spent the entire movie laughing. She really liked the snowman character. 
We also got the perfect Laney tree for the apartment. It's pink!! We decided to do a little tree up at Hershey then a bigger tree at home. That way no matter where we end up, we have a tree ready to go. 
I just need to say that I am also so thankful for all of you in our lives. You picked me up when I felt hopeless and always encouraged me to stay strong for Laney. And now here she is in remission and is so happy. I couldn't ask for anything more.
God bless you all and good night!
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11/28/2013
by Susan Berube
November 28 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a long day at clinic today. She had to get her antiviral medication again so that required IV fluid before and after the medication was given. Her lab work is all still great... yay! She did lose some weight since Monday so she has strict instructions to eat a hefty Thanksgiving dinner. Daddy went to clinic today with her so that Kylee and I could have some one on one time together which she was very excited about.
Tonight we are preparing for Thanksgiving, making desserts. The girls have been a huge help in the kitchen. 
There are so many things that I am thankful for this year but of course by far I'm thankful that Laney is healthy enough to celebrate with us. 
I hope you all enjoy your Thanksgiving day tomorrow. God bless!!

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11/25/2013
by Susan Berube
November 25 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a good weekend hanging out with her sister and daddy. This morning she went to clinic and everything still looks good. She did get an infusion to help prevent the pneumonia which she gets every couple of weeks. But other then that dad said that it was uneventful.

He did inform the doctor of our flood issue this weekend in the apartment. And after hearing what happened they were concerned that there could be a possibility of mold so to be safe they are having us stay at the Ronald McDonald house. They are going to be bringing a mold specialist in to evaluate the air quality hopefully soon because I was so excited about cooking our Thanksgiving turkey and having out first "normal" holiday. On Memorial Day she was admitted. Then on Labor Day she was admitted again. So I was really hoping that maybe we could get through this holiday under our own roof even if it isn't home. Guess we will see. 
In other exciting news.... the girls got their passports today so we can start talking about her Make A Wish soon.... Yay. That really is the one thing that Laney is really looking forward to. Probably even more so than Christmas. And with this chilly weather I can't say that it hasn't been on my mind either 
Pop-pop & Barb came up to visit tonight and brought us dinner which I was extremely thankful for. I don't get much sleep in between working and driving up here so that was nice not to have to worry about what I was going to make for them. 
Laney and Kylee are playing a Lego video game now but I will soon be putting them to bed. We are really excited to because Kylee has off all week and gets to spend it here with me and Laney.... just the girls 
Well good night and God bless.

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11/21/2013
by Susan Berube
November 21 2013
*** Laney Update ***
Copied post from Delaney's Mom
Well today didn't go exactly as planned. We planned on going to Build-A-Bear then go for a bike ride. We went to Build-A-Bear and Laney made a cute panda bear with a flashy dress and pink heels. But while we were in the middle of making her new buddies birth certificate we got a call from our nurse practitioner. She said that Laney's blood work from Monday came back and showed that the viral count that they have been keeping a close eye in had gone up a significant amount. So they wanted to admit her while she is asymptomatic and give her medication to bring that count down before it started to effect her organs. So here we are at Hershey again but hopefully just for the night. Today marked her fourth week since she was discharged so that's a pretty long stretch of time out. 
Laney was here for about an hour before she was saying how bored she was so this will probably be a long 24 hours.. Lol. 
Thanks for the continued prayers.
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11/19/2013
by Susan Berube
November 19 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney is doing fabulous as always. It's funny every time I look at her I seem to find more more things that make her look healthier and healthier. Her little eyebrows and her eyelashes are all starting to grow back and her little face turning back into Delaney's face. At clinic today all her labs were good except for her magnesium level. With her being off the TPN they are keeping a close eye on her electrolytes. So they added some magnesium to her IV fluids that she gets twice a day and also started her on oral multivitamins, flinstones. She also tested positive for C-Diff again so she has to be started back on her Flagyl. That's the medication that added to her nausea and vomiting a couple weeks ago so I'm kind of bummed she needs it again. This time I'm putting it in capsules so hopefully that will help a little. Besides that clinic was very uneventful except for when Laney YouTubed funny animal videos and found one of fat dog trying to jump from one sofa to another. Needless to say he didn't make it and dropped like a brick which completely cracked her up. She made sure to show her doctor and nurse practitioner which they enjoyed as well. 
When we got back we played Just Dance and now were watching a movie. 
Thank you all again for your prayers and support 
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11/17/2013
by Susan Berube
November 17 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a good night last night and a fun morning. It took a while for our family to get up to Hershey last night so we were super bored till they got there. We had a late dinner then just hung out. It is so awesome when we are all together. Them picking on each other and laughing is music to my ears. This morning Laney was teaching Kylee a new rainbow loom design. They made a ton of bracelets. I guess I will need to replenish their supplies. Time flew by this morning and before I new it, it was time to drive home to work... bummers  Well at least we have Thanksgiving break coming up and that will mean an extended time together... Yay! 
Well I hope you all enjoy your night. God bless!
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11/14/2013
by Susan Berube
November 14 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney I doing good today. We did venture out to the grocery store this morning but besides that we stayed in the warm apartment. Laney wanted some hot chocolate with marshmallows. Today was a perfect day for that. We played some games today and I lost pretty badly, multiply times. I don't even take it easy on her, she is just that good. 
She helped me cook dinner. She just loves cooking and baking, maybe she'll be a chef when she grows up. 
Tonight she is looking at "fashionable dresses" online. She is picking out all the ones that she plans on wearing when she's older.... Prom dress, Sweet 16, etc. Listening to her talk about her future plans just warms my heart. Yes she will be here and be able to do anything she puts her mind to. I thank God every day for giving her this miracle. 

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11/13/2013
by Susan Berube
November 13 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a lazy day today. We snuggled under some blankets and watched movies and television all day. It was way to cold to venture out today. We were kind of bummed because we didn't get any snow up here. We kept hearing about all the flurries back home. Laney did do some face timing tonight with her sister, her THON friends, and now Face Timing with one of her favorite nurses who moved. Tonight she is planning on staying up late to watch Chris Angels magic show because she loves magic and he is suppose to be using alligators in one of his tricks tonight so Laney's excited about that. Good thing she doesn't have clinic in the morning because the show only starts at 10pm so it would have been rough waking up in the morning. 
She is still medically boring and feeling good!!!! 
Hope you all have a snuggly, lazy night as well. God Bless!!

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11/12/2013
by Susan Berube
November 12 2013
*** Laney Update ***
Copied post from Delaney's Mom
Well I'm back in Hershey after my weekend home for work and Laney is doing great. This morning at clinic her lab work showed that she has started to make her own platelets.... woohoo!! That is just one step closer to not being dependent on transfusions. They also decreased her antirejection meds again. She is almost at half the dose that she originally started on. The eating and drinking is slowing kicking in but she still is requiring her IV nutrition at night to maintain herself. 
This weekend Delaney and daddy went to the movies to see Thor. She really loved it. She also has been using her bike and when I came in today I noticed her walking doesn't seem as stiff as when I left on Saturday. 
I've been a little emotional today. Kylee seemed sad this weekend to me and I know its because I really don't get to spend that much quality time with her. Jacob and her have been so patient in sharing me between Hershey and home but I honestly feel like the longer we are apart the harder it gets for them and myself. I can't help but to feel like a bad mom to them  Hopefully tomorrow I will feel a little stronger then I do right now. Thank you for the continued prayers and support during our ups and downs. I know all our prayers are being heard because I truly feel it in my heart. God Bless.

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11/10/2013
by Susan Berube
November 10 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today is the day that I celebrate the life of someone whom I've never met. On this day four years ago a family was celebrating the birth of their little girl. And at the same time making a very selfless decision that I will be grateful for for the rest of my life. Today is the birthday of the little girl whose cord blood was donated to Delaney that saved her life. This family and this child gave a gift to myself, my family, and my daughter that I could never repay. They will probably sit down today, sign the Happy Birthday song, and watch their little girl blow out her candles never knowing what a huge impact they've made on a stranger's life. So I'd like to say happy fourth birthday wherever you are in this world and I hope all your birthday wishes come true because you have made every wish of mine come true. 


To all of our team Laney fans out there. If you're expecting your own little bundle of joy please consider doing an extremely selfless act of donating your cord blood so that one day you and your child might be responsible for saving another child's life.

God bless!
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11/09/2013
by Susan Berube
November 9 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had another good day. I love that I get to say that so often now. We started out going to clinic so that she could get her infusion that helps prevent her from getting the pneumonia. While we were there her belly got upset again but they give her some medications to help and it did. We came home and had some lunch except Laney because she still wasn't feeling great. I was exhausted so I laid down to take a nap while Daddy hung out with the kids. Well when I woke up I came out to the living room to see a new bike in the room and a huge smile on Laney's face. Apparently daddy was talking to Laney about starting to do move physical exercise. Her walking is still pretty slow and very stiff looking. So he had an epiphany that a bike would be great exercise for her because it's very low impact and I would have to agree. She was in need of a new bike anyway so it worked out. She ended up riding half way around the block while we walked the dogs.... Yay Laney!! 
After that I made dinner, salmon that Laney requested, and pop-pop visited. Her belly felt good tonight so she was able to eat. Then came her request for dessert. See over the past couple weeks Laney has had different cravings so we make a trip to the grocery store almost every time. We have hopes that eventually she will be off the TPN after she starts eating more. Tonight the craving was S'mores. We now realize it is possible to toast marshmallows on an electric stove and very well at that. 
Now we are just hanging out. Hope you all have a great night. Good bless.

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11/06/2013
by Susan Berube
November 6 2013
*** Laney Update ***
Copied post from Delaney's Mom

Laney is feeling so much better then she had been. The last time she vomited was Friday... Awesome!!! She still has some bouts of nausea but definitely less then last week. Laney is starting to eat more as well which is very exciting 
We did some dancing this morning. And have been watching movies and took a ride in her jeep earlier today. 
When i was driving back up here on Monday I was actually crying with joy. We may not have the ideal life right now but all the important parts are healthy and happy. Life is good and couldn't be more grateful for every person that God has put in my life. 
God bless!!! 
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11/04/2013
by Susan Berube
November 4 2013
*** Laney Update ***
Copied post from Delaney's Mom

Yesterday and today Laney has been feeling much better. The changes that they made to her medications on Friday definitely helped. She still has some nausea but nothing compared to how bad it had gotten on Friday. She has been taking little nibbles of food here and there so that's also an improvement. 
Today she was with daddy and sissy all day because I'm home for the weekend working. They ended up going for a walk today. They took the jeep with and had Laney do some walking in between driving. She still is pretty weak and really doesn't like doing any physical activity. It helps that her sister is there though because Kylee is a ball of energy so that encourages Laney to do physical activities with Kylee. So our goal will be to encourage her to take walks and gain strength back. 
Prayers are appreciated 
God Bless!

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11/02/2013
by Susan Berube
November 2 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney's day started out a little rough with lots of nausea, vomiting, and belly pain. We took her into clinic to get checked out. They still really aren't sure the cause but don't want to treat until they are 100% sure on the cause. If it is graft vs host then it wouldn't be a bad thing because they would really like to see some due to it increasing her chances of staying in remission without relapse. So if that's the case they don't want to treat to soon because that will lessen the graft vs leukemia effect. And also if it's an infection and they treat with steroids,for graft vs host, it could cause the infection to spread. So what they decided to do is take her off a couple of the medications that were being tapered and that would have finished there treatment cycle in the next day or so. In total the got rid of three medications, two of which can be very hard on the belly. They were also going to talk to the GI specialist again and get his opinion on possibly doing another scope early next week to get confirmation on the cause then planning to treat accordingly.
As for tonight Laney is doing pretty good. We just got home from a trip to the zoo in the dark at Zoo America. This was our first outing where we had her out on her TPN and I feel we did a really good job. It kind of felt like packing your first borns diaper bag for the first time. You keep looking over, and over every item, double and triple checking to ensure you brought enough stuff to cover any and all situations that may arise while your out..... then while were there we only used the bottle of water we packed and nothing else...lol.
Kylee and Laney had a ton of fun with their flashlights checking out all the animals in the dark. Laney was also invited back by one of the managers of the zoo to see an alligator up close and possible touch it because Laney expressed that they were her favorite animal. We will have to check with the doctors before we would plan that for sure.
Tonight Laney and her sister are putting together some puzzles and just hanging out.
God bless!!

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10/31/2013
by Susan Berube
October 31 2013
*** Laney Update ***
Copied post from Delaney's Mom

Well Laney went to clinic today and her major issue at hand is still her nausea, & vomiting. They changed some of the medications around in hopes it may be more effective. She did good all day after the change then she got sick again tonight  I feel so bad for her because she has been puking for so long. 
They also feel that this could be part of the graft vs host that they are wanting. They really aren't sure but are considering scoping her again to find out for sure. 
Besides that all her counts are great and in between the nausea and vomiting she feels good. 
Tomorrow we don't have to go to clinic in the morning so that will be nice.
So instead we will have a surprise for Kylee.... Laney is able to come down to Kylee's school and watch their Halloween parade they are having as long as Laney feels okay!!! 
Laney is so excited to be able to see her sister and all her friends (even if it is from the germ free environment of the car). 
Please continue with prayers of healing. God bless & good night.

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10/29/2013
by Susan Berube
October 29 2013
*** Laney Update *** 
Copied post from Delaney's Mom
After four plus months in the hospital as a parent you tend to get out of shape. So I decided to start working out today and borrowed my friend Insanity workout video. About half way through the "fit test", I'm laying on the ground huffing and puffing, having no intentions of continuing the other half of the "fit test". Then out comes Laney dragging her fan from her room, plugs it into the wall, turns it on, then tells me to "get up and keep going"!!! 


Apparently if you kick cancers but you can kick mommies butt as well... Lol.
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10/27/2013
by Susan Berube
October 27 2013
*** Laney Update *** 
Copied post from Delaney's Mom
Laney is doing really well. She has been feeling relatively good except for some intermittent bouts of nausea. We think all the medications on an empty stomach might be part of the problem so we have been encouraging her to eat a little during pill time. She hasn't gone to clinic since Friday so th
ere is nothing new to report there. 
We have just been enjoying some normal family time watching movies and just hanging out. I'm still really reluctant to take her anywhere even during the parts of the day that are not as busy. I know this week we will probably have to venture out and do something so that she doesn't go stir crazy. I just need to come up with something creative that doesn't require her to be around people.
That's all I have for you. No news is good news 

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10/24/2013
by Susan Berube
October 24 2013
*** Laney Update ***
Copied post from Delaney's Mom
Today was fabulous! This was the first time Laney has ever let the hospital without having any cancer... Yay! She was really nervous leaving but all the doctors and nurses assured her she would be fine. The nurses threw confetti and clapped for Laney has she walked off the floor and I have to admit I had to choke back tears in that moment. These people have been a huge part of our lives for so long it truly almost felt like leaving friends. Every doctor, nurse, and aide that cared for Laney during her stay will forever hold a huge part in my heart. When we got to the apartment Laney requested some homemade food, meatloaf. So we cooked up a yummy meal and had some of our family visit. Then we had to get down to business, the nurse came from the home care facility to do some education on the IV medications. Daddy was giving the task of starting her IV nutrition and he did really well considering he has no healthcare experience at all. Now we are just relaxing and loving it :-) I hope your day was great as well. God bless and good night.

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10/23/2013
by Susan Berube
October 23 2013
*** Laney Update ***
Copied post from Delaney's Mom

Laney had a great day! Today is one of those days where I feel extremely grateful and very lucky in this crappy situation. Laney's labs are good. Her nausea is still an issue but it is getting better. 
Laney has been apprehensive about the thought of leaving the hospital because she has been here soooo long and she feels safe and loved here. So today we got to take a baby step toward leaving the hospital. We got to take her on a day pass to the apartment we will be staying at. This was a perfect idea because she realized she really likes it there. While we were there we baked cupcakes and cookies for the nurses. It's funny because all the things that I complained about having to do 5 months ago like doing dishes, cooking, and laundry felt extremely good to do today. It's "normal" and it feels great. 
When we came back to the floor we thought it would be fun to do a Halloween candy hunt. We had picked up some bags of candy on the way back to the hospital. Then the nurses hid the candy in the hall and Laney and some of the other kids on the floor got to find it. She had a fun time 
She is starting to have some belly pain now and some diarrhea. So hopefully that goes away for her quickly.
God bless and good night.

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10/22/2013
by Susan Berube
October 22 2013
*** Laney Update ***
Copied post from Delaney's Mom

Laney is doing very well, thank God! All her labs are good and they are transitioning her to taking all her medications by mouth. She is still battling intermittent nausea and vomiting but they are hoping that improves over time. 
She spent the morning hanging out with daddy. She also spent some time on her scooter riding around the lobby. Then we got a special visitor, baby Anthony. Laney loves babies and has been waiting soooo long to see him till her counts came up a little. 
We also got the keys to the apartment we will be staying at. We took some of her things over there today and got to check out the place. It is very nice. I am so thankful to the Penn State kids out there who are canning for the funds to provide such a nice place for Laney to heal over the next couple months. I am extremely excited to be able to take her there in the next couple of days. 
Thank you for the continued prayers for Laney's recovery. God bless

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10/20/2013
by Susan Berube
October 20 2013
*** Laney Update ***
Copied post from Delaney's Mom

It has been 30 days since Laney got her transplant. And she is doing really well. She does have some intermittent nausea but that seems to be getting less as well. They started transitioning her to take all oral medications and right now she's taking two of her pills by mouth that she needs to. All her labs look fabulous and the doctors are very pleased with how it is going. They are going to be taking her off of her antirejection meds soon in the hopes that she does get some graft versus host disease. They do this because studies have shown that a very small amount of graft versus host also has a graft versus leukemia affect. So that can only be a benefit to Delaney considering she went into the transplant still having leukemia cells.
Delaney is having a fun time right now playing with her sister. We decided that because of Laneys counts coming up so nicely that tonight would be the first night that Kylee would get to sleep over again. It is really great to get to see them spending some time together again.
Please continue with all of the prayers and support for this week coming up in hopes that Laney might actually get to be discharged within the next week or so. God bless!

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10/18/2013
by Susan Berube
October 18 2013
*** Laney Update ***
Copied post from Delaney's Mom

We got some results back from Laney's tests. First off her blood work was wonderful today. No bad cells. Then we got her chest X-ray back which was normal. The results of her stomach biopsy came back normal so they feel her symptoms are just related to her mucusitis healing. So all of that is good.
Today they started to look into her heart rate which has been elevated for the past couple days. They did a cardiac ultrasound today to see if there were any heart issues from the chemo and radiation she had received. They also started to decrease her IV nutrition in the hopes that she starts eating a little more and will be able to start taking all her medications by mouth. If she starts eating, drinking, and taking her medications by mouth over the next couple days there is a chance she could be discharged some time early next week.... Yay!
Now she won't get to come home, she will have to live in an apartment that is very close to the hospital for three months or so, give or take. It is funny because she almost seems scared to leave. She has been hospitalized 135 days out of the past 144 days so in a way I feel like she is almost institutionalized. She feels safe here and I really can't blame her because every doctor, nurse, and staff member at this hospital has shown her so much love. But moving forward is always a good thing. And I think when she finally gets to leave she'll enjoy her freedom again.
Today Laney went outside for the first time in over a month. She would have preferred to stay in bed so she needed a ton of encouragement to get her moving. But after she was outside I think she enjoyed it weather she would admit it or not. Tonight we were working on a new kind of rainbow loom bracelet that our nurse friend Kami showed us. She is also nibbling on some chicken nuggets. The only time she has any kind of appetite seems to be in the evening. That's about it for today. God bless and good night!

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10/17/2013
by Susan Berube
October 17 2013
*** Laney Update ***
Copied post from Delaney's Mom

Delaney started her day in the OR getting an EGD and colonoscopy to find the cause of her nausea and vomiting. She did really well through the procedure. They did end up finding a bunch of white patches throughout her stomach. They took biopsies of those areas. The doctor feels it is probably some sort of infection, fungus, yeast, ect. We will hopefully get the final results tomorrow and then they will start treatment to improve it. Today her nausea hasn't been as bad as the past couple days and she ate some pizza tonight.
Her labs were really good today. No blast cells... yay... and all the other labs looked good too.
Laney also had a nasal swab done which showed a new virus as well as the rinovirus that she had previously. They did a chest x-ray to make sure this new virus hasn't been the cause of her respiratory rate going up. So she received medication for the viruses this afternoon. It has been a very busy day from a medical standpoint. 
From a non-medical standpoint Laney and I played The Game of Life which I won then she played pop-pop and beat him pretty badly. She was very proud of herself 
We also got some exciting news yesterday... Laney's Make A Wish was approved!!!! The doctor just needs to sign off on it and then she can really get excited about her Disney Cruise!!!! 
Now she is working on her pink minion pumpkin and it is turning out really good. She is so artistic just like her daddy. 
Thank you for the continued prayers and support. God bless and good night.

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10/16/2013
by Susan Berube
October 16 2013
*** Laney Update ***
Copied post from Delaney's Mom

Laney has had an okay day. This mornings labs showed a very small amount of blast cells  The doctors assured me it is completely normal to see some during this stage of the transplant process. That didn't help the nauseating feeling I got in the pit of my stomach when I seen it. Tonight I will be praying extra extra hard that they aren't in the blood work tomorrow. Weather it's normal or not I would highly rather prefer not seeing them. 
Also her belly had been really upset again this morning. They did another abdominal X-ray and brought in a pediatric GI specialist to take a look at her. The GI doctor decided it would be a good idea to do an EGD and colonoscopy tomorrow. They will do some biopsies of her stomach and GI tract to see if she is having some graft v.s. host disease or if there is any other issues with her GI system. Her belly issues seem to get better in the evening for whatever reason and tonight she ate almost an entire little bag of chips. So hopefully tomorrow gives us some answers. 
She also has been up and walking in the hall with much encouragement. She has gotten used to having everything brought to her and now we have to start easing her back into self sufficiency. 
Other then that we haven't had much else happen.
Please say prayers for good labs tomorrow for my peace of mind. And also pray that we get some answers as to what's going on with her GI tract tomorrow too. 
God bless.

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10/15/2013
by Susan Berube
So many brave children out there. Click here to watch this video:http://www.wimp.com/bebrave/
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10/15/2013
by Susan Berube
October 15 2013
*** Laney Update ***
Copied post from Delaney's Mom

Overnight last night Laney's belly was really bothering her. She ended up vomiting multiply times. So they ended up doing an abdominal X-ray and CT scan. They both came back negative which is good. They are just watching her closely at this point. Throughout the day she had some more episode of belly pain. But tonight she actually tried to eat some Stromboli and she liked it!!! She only ate one bite but at least she didn't spit it out because of it not tasting good. Maybe her belly issues will start turning around soon. Her counts are still good and no blast cells so....yay!! 
This weekend when I was home to work I found a lump on our dog Mia. After work this morning I took her to the vet and was praying that they wouldn't find cancer because I don't know how I would have told Laney or my other kids that. They ended up doing a biopsy and the vet feels that it looks like a lipoma which is good and not cancerous. We will have the final results tomorrow. So I'm grateful that I don't have to tell my kids the dog has cancer too. 
Our closest family friends came up to visit tonight and we had such a great time visiting with them. With her being in such strict isolation she has really been missing her friends.
Tonight will be an early night for us, Laney and I are both beat. So I hope you all are having a wonderful night. God bless and good night.

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10/14/2013
by Susan Berube
October 14 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laneys ANC is 618!!! And NO BLAST CELLS,,,, yay!!! She is now allowed to go out in the transplant hallway and walk around if she wants
She still has a fair amount of nausea and vomiting. I'm really hoping that goes away soon so they can start to decrease all the IV medications that she's getting.
She is hanging out with Daddy and Aunt Nelly while I work this weekend. So I'm sure fun is on their agenda. They were working on some new nail art designs last night and are planning on doing my nails when I come back up tomorrow.
Please continue with your prayers. My family and I are grateful for all the love and support you have shown us. God bless!!

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10/12/2013
by Susan Berube
October 12 2013
Copied post from Delaney's Mom
*** Laney Update *** White Blood Cell count is .72!!!! And she has an ANC!!!!....322!!! NO BLAST CELLS!!!!! Can I get an AMEN!!!!! Thank you Lotd!!! This is best lab results in have ever seen in the last 4 months!!! Thank you God!!! This is a great day :-) :-) :-) :-) :-) :-) :-)
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10/11/2013
by Susan Berube

October 11 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney counts creeped up a little more today so that's exciting. She did have some nausea and vomited once today. I can't wait for that part to come to an end. It makes her so uncomfortable and it is really hard to watch her get sick every day, She also had a chest X-ray which showed some fluid on her lungs so they started her on a diuretic today. She will have to take it everyday from this point on. Today she spent some time with grandma and her aunt. I drove home to go to Kylee's open house tonight at her school. She got to take us around the school then we picked out a book at the book fair for Laney. It was nice to get to see all my kids today even if it was for only a short time. I'm grateful for another good day. God bless!


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10/10/2013
by Susan Berube

October 10 2013
*** Laney Update ***
Copied post from Delaney's Mom

Laney had an uneventful day. She spent more time awake today then yesterday so that was nice. Her white blood cell count dropped a little from yesterday but they are okay with that a well. We pretty much just occupied our time playing games and watching some television. This evening we assembled a Lego pool so that was fun. Other then that no news is good news :-)Thank you for the prayers and support!


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10/08/2013
by Susan Berube
October 8 2013
*** Laney Update ***
Copied post from Delaney's Mom
Laney had a good day yesterday and today. Yesterday her Toys R Us purchase came in the mail which was very exciting. She put together the Lego house with daddy then beat me in The Game of Life, Sorry, and Break the Ice. I didn't even take it easy on her, she's just that good
Today her white blood cell count is 0.32 so we can officially say now that she is engrafting..... Woohoo!!!! Her counts are coming up slowly but that is exactly what the doctors expect and they are very happy with that. Her eyes are really red today. They look like raccoon eyes. She has been itching them and with her low platelets the doctors feel she may have rubbed he eyes so bad that it broke blood vessels around her eyes. After sleeping till 4pm she finally decided it was time to get up. All her grandparents came to visit tonight and spent time with us building Legos and watching TV. Besides that everything is just how they want it to be. Tonight Laney and I are watching a movie then we will get her showered and ready for bed. Thank you for the continue prayers and support

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10/07/2013
by Susan Berube
October 7 2013
This video was sent to me to share witn Laney.  Video for the song Overcomer.
You are an Overcomer sweetie. http://www.youtube.com/watch?v=b8VoUYtx0kw
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10/06/2013
by Susan Berube
October 6 2013
Copied post from Delaney's Mom
*** Laney Update ***
*** Laney Update ***
Laney had an okay day. Today she was dealing with a fair amount of nausea and vomiting. She said that just felt really icky in her belly today. They are giving her everything they can to help with it but she really didn't think that it was helping to much. Her white blood cells creeped up a little more today to 0.14. I'm not sure if counts going up is the official indicator that she engrafted or if there is something else they look at to say she "officially" engrafted. Guess we will just wait till tomorrow to she if she keeps her upward trend.
Other then that she has been watching movies with her Daddy. She is excited because the delivery date for her online Toys R Us shipping is tomorrow. So hopefully she'll get them.
I really hate having be away from her to work. I know she is good hands but I still would like to be by her side when she isn't feeling the best.
Please continue with prayers for engraftment and strong, healthy, cancer-killing, new cells. I'm going to be off to work again but God bless & good night.

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10/06/2013
by Susan Berube
October 6 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney had a good day. She slept most of the morning because Daddy let her stay up extra late last night. When she woke up she spent some time with her sister and played some games. Besides that it was very uneventful day which is a good thing. 
Well I'm off to work tonight. I just called to check in on her and she was sleeping again. Hope she's having sweet dreams. God bless!
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10/05/2013
by Susan Berube
October 5 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney still doesn't have any white blood cells but miraculously is healing without them. The sores on her lips are completely gone. She did have a fair amount of throat pain in the beginning but that has gone away too. The thick mucus from the mucusitis is gone. The virus that was in her bladder is now gone or so low it would almost be considered normal without any antivirals given. All of this will only 0.06 WBCs which to the doctor is the equivalent of zero. I do believe in miracles. And I do believe God has blessed Laney and these doctors & nurses. I love when things happen that don't truly have a definitive explication 
With Laney not having pain all week they have been tapering her Morphine drip every day. But unfortunately because of that Laney started with abdominal cramping. They feel she is having some withdraw symptoms. So they increased her dose slightly tonight and are going to taper it slower. They also checked her pancreas levels to make sure she didn't have pancreatitis and they were normal. Also her liver function and kidney function tests have been normal. So that's been Laney's only real complaint today. 
Because of the virus being negative in her bladder they decided to take out her catheter. She has been doing really well with that too.
She did have some nausea and got sick once this evening and was being given medicine to hopefully help with that. 
Laney and I had a pretty laid back day. She painted a poster for our NP Terry who will be running for Team Laney in the 5K at Hershey on Sunday...GO TERRY!! She had school today which she thoroughly enjoyed (insert sarcasm)... Lol. But besides that we just watched some TV and she napped. Kylee and Daddy came up tonight to visit so Daddy will be staying with Laney overnight and I brought Kylee back to the RM house for the night. I feel like I don't get to see her and Jacob as much as I would like to lately so I'll be enjoying some quality time with her tonight. And will head back to the hospital in the morning.
God bless and good night!

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10/03/2013
by Susan Berube
October 3 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney had a great day. She got some more sleep last night and today. She didn't have any fevers today and her blood cultures haven't shown anything yet so that's good. They also did a chest X-ray last night which looked good as well. The doctors are pleased with how she is doing and that couldn't make me happier. Tomorrow it will be two weeks post transplant...woohoo! I'm getting anxious because we are coming close to the estimated date of ingraftment. I can't wait to see her numbers go up WITHOUT any blast cells, God willing. 
She did some painting then we have been on a HGTV kick watching house shows. We love the property brothers and house hunters

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10/01/2013
by Susan Berube
October 1 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney had a good day today. Nothing has really changed with her medically. She is still having her urination issues so they did offer to put a catheter in her so that she could get more then an hour long block of time to sleep before needing to get up to the potty. She declined even thou I thought it would be a good idea. She finished building her Lego cruise ship with her daddy. I think she has her Make A Wish request on the brain. She wants to do a Disney Cruise but were waiting to hear if that got approved or not. Daddy and Laney also finished decorating the room this weekend while I was at work. I told Laney that I was going to take pictures and post them but she said "why don't you just do a video". So that's what we did. Please continue with all the prayers, I truly think they are being answered. So here is Laney's Halloween decorations video.....
I hope this link works
https://www.facebook.com/photo.php?v=304774286331748&set=vb.253030198172824&type=2&theater

If this link did not work you can go to https://www.facebook.com/teamlaney7
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09/28/2013
by Susan Berube
September 28th 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney had a rough night overnight with her constant need for the potty and not being able to hold it. She got up almost every 30 minutes at one point. I felt so bad for her plus that meant we got very disturbed sleep. She thankfully isn't having any pain which is wonderful it just the rest of UTI type symptoms that are a pain. Laney has been on a baby kick lately. I think it is because every time we turn around another nurse is having a baby or is pregnant. So the nurses brought a friends baby over for her to look at from her bed in her room. Laney was so excited and just keeps talking about all the babies she will get to watch when she's healthy. 
I left in the afternoon and she was with daddy and mom-mom the rest of the day. As I was leaving the hospital I got to meet a wonderful family, the Whiteheads, who had their struggle with cancer and watched their daughter become very sick. Their daughter is one year cancer free.... What an inspiration to see her doing so well.They had come to visit the awesome nurses and brought a little gift for Laney. After crossing paths with them in the parking garage I headed to the Laney event. It was an absolutely beautiful day. I can't thank my family enough who organized the event and all the people who came out to support her was awesome. 
I will check in later at the hospital to see how she doing but at last check in she was napping so now it's time to get ready to go to work. Thank you for all the prayers and support

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09/28/2013
by Susan Berube
September 28th 2013
Copied post from Delaney's Mom
*** Laney Update ***
Laney had a pretty good day today. Her pain is under control as well as her nausea. Her newest issue is with her urinating. She was having pain when she went to the bathroom which then turned into frequency and urgency. They sent her urine out for a bacterial urinary tract infection. That came back negative for any bacteria. Next they sent it out for viruses and that ended up coming back positive for a virus. So there is a medication that they could give her but it has a side effect of lowering blood counts which is the opposite of what we are striving for. So they opted to use an antibiotic that has been shown to keep the viral count down till her white blood cell counts start coming up and fight the virus off themselves. But until then she has to deal with UTI type symptoms till her counts come back. She has wanted to try and eat but nothing she has tried has tasted right so she was a little bummed about that tonight. Other then that we have just watched some movies and hung out.
I will be headed back into town tomorrow to go back to work and also stop in at The Day for Laney event. Hope to see you all there supporting Laney!!
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09/27/2013
by Susan Berube
September 27th 2013
Copied post from Delaney's Mom
*** Laney Update ***
Today has been a good day. Laney spent the day with daddy and her aunt Nelly watching movies. Then pop-pop came up this evening and they played games. Which she won! Right now she is in the process of baking cookies in her easy bake oven. 
She has been having some side effects from the one medication she's on like her hands feel like they are burning. She is also really shaky. Her blood pressure was still elevated today so they started her in some blood pressure meds. Besides that she is happy go lucky. I asked her if there was anything she wanted me to put in her update and she said to tell you it was a boring day lol. But in this situation boring is good 
Have a good night and God bless!

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09/26/2013
by Susan Berube
September 26th 2013
*** Laney Update ***
Laney's blood pressure was a little elevated this morning. And her weight was a tad higher then the other day too. Being that she hasn't eaten anything in almost a week they related the weight gain to extra fluid. She also needed to get red blood cells and platelets today which would just add more fluid to her. So they ordered her some Lasix which is a diuretic that makes you pee the extra water out. Well after the sixth or seventh time in the bathroom this morning Laney came to the realization that she isn't a fan of Lasix but is grateful for cottenell extra soft toilet paper 
I also woke up this morning feeling not so great. I think it is my allergies/sinuses but to be safe I had to call my mom up to come sit with her till JJ got done work. I hope it's just allergies because I would be devastated if she got sick because of me. I let the doctors know when they rounded so I'm sure they will be keeping a close eye out for that just like they do everything else. I'm at the RM house pumping myself full of OJ and meds.
Laney slept most of the day with my mom there. She was extremely excited tonight when she found out that one of her favorite nurses Kristin would be her nurse tonight. Laney requested to have her as her nurses the next two nights because her last day at Hershey is tomorrow. Laney was so upset when she found out that she was leaving that she cried. Laney looks at these nurses as her friends now and in some cases like their her big sisters like Kristin. 
So daddies at the hospital now with her, Kristin's her nurse, they are watching a movie, and all is well.
Thank you for all the support during our ups and downs. Love you all! God bless and good night.

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09/25/2013
by Susan Berube
September 25th 2013
Copied post from Delaney's Mom
*** Laney Update #2 ***
Laney had a really sad evening tonight.
It started when we face timed daddy, Kylee, and mom-mom who were at home. They were excited to show us all the Halloween decorations they had put up at the house. Kylee took us section by section showing us each part of the house. When she got to the window decals Laney said, "oh look those are the decorations that we usually part uptogether". At that she started balling her eyes out. I quickly ended the FaceTime with daddy and sissy to comfort her. I tried to ask her if she missed home or was she sad she didn't get to decorate. She said that she just wanted her life back. Totally broke my heart  Who would have thought that something that I found very insignificant like putting window decals up would have such an impacted on my little girl. That was a moment I clearly took for granted in the past but meant the world to her. Other example of how I took time for granted. 
I told her that we are getting so close to her cure and we will be a family again soon. That calmed her down and I tried to occupy her mind with making bracelets. We did that for a couple hours then it was time to shower and get ready for bed. 
I went to the hallway to get towels and was shocked to hear my husbands voice. I turned around to see him with three bags full of Halloween decorations. I opened the door to her room and told her she had a surprise. When she seen her dad her eyes lit up and she had a smile from ear to ear. He pulled out all kinds of decorations from his bags as she got more and more excited. She said he is the best dad ever!! Which I would have to agree with because it was 10 o'clock at night and he had to still drive back home after putting up some of the lights and work in the morning. 
She was so excited to show all the nurses who knew decor. After all the excitement she finally just closed her eyes to sleep. She just got done talking to her sister (in her sleep) and telling her that she loved her and would see her in the morning. I'm so glad she is being blessed with happy dreams of her family. 
Anytime she is down we will pick her up, dust her off, and tell her she can do anything that she puts he mind to including beating cancer. 
I thank God for for my wonderful family tonight.

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09/25/2013
by Susan Berube
September 25th 2013
*** Laney Update ***
Copied post from Delaney's Mom.
Today is day 5 post transplant and she is doing good. The doctors said it wouldn't be until day 18ish till we will start seeing her labs go up. So we have a long waiting game ahead of us. Laney was definitely feeling more awake today. She had a good nights rest after watching a movie with The Rock in it who she found to be very hunky... Lol. She has been working on some rainbow loom bracelets to try and keep up with all the orders of people that want her to make one She also did another magic trick performance today for some of the nurses. It cracks me up how theatrical she gets when performing now. She really puts on a show. She is still talking in her sleep a lot from the medicine. She even has facial expressions and everything while talking. She also offered her dad the biggest piece of cake in her dream and when she woke I asked her why she didn't give it to me. She just laughed.
I am going pretty stir crazy being in that room all the time. I never realized till now how much time we really did spend touring the hospital till we can't do that anymore. Delaney on the other hand doesn't seem to mind or notice. She thinks it's great that the nurses still pop their heads in and check on her. It also gives her an opportunity to get her socializing in because she was so used to just walking up to the desk and chatting before. 
I hope all of you are hugging your kids tight and enjoying some family time. God bless!!

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09/24/2013
by Susan Berube
September 24th
*** Laney Update ***
Posted on the 23rd by Delaney's Mother
Laney is doing okay today. She still has some pain and nausea but that is what they are expecting. It is tolerable for her at this point with all the medication increases. She slept a lot today. Every time she fell asleep she would start talking in her sleep about playing with her sister an seeing her best friend Addie. With all the medications she's on she is a little loopy when having conversations with her. It actually made me laugh today because she was like talking to a drunkin baby. I would rather her be loopy and tired then in pain and sick to her stomach. She did try to do some exercising today on her bike but that didn't last to long but I was proud that she tried. It was a really uneventful day but for us that's great. Good night and God bless!
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09/22/2013
by Susan Berube
September 22 2013
*** Laney Update ***
Nothing has really changed for Laney since yesterday. She is on 100% IV nutrition and taking nothing by mouth. She is still having some throat pain so they increased her Morphine drip today. She is also still battling bouts of nausea and vomiting. They made adjustments to nausea meds as well today. With all these meds going she stays really tired and sleeps often. Which is a good thing because I'd rather her sleep then be in pain or have nausea/vomiting. When she is awake and feeling good she still wants to play games and bake in her easy bake oven. 
Today I was feeling a little down. Not because of anything in particular I just really hope these next couple weeks go quick. As wonderful as everyone has been here I definitely am looking forward to not being here soon. While she is sleeping I really have nothing else to do but sit around thinking. I sat here today feeling bad for myself and the entire situation. And I REALLY try not to do that because I know their are other people out there that have it worse then my family right now. Sometimes thinking can be your worse enemy. 
Well we are watching a Barbie movie then going to get her showered. Hope you all are having good days. God bless!
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09/22/2013
by Susan Berube
Sptember 22 2013
*** Laney Update ***
Today Laney and myself are really tired. Last night we didn't get much sleep. She is hooked up to a lot of IVs and they decided to beep on and off all night long and every time the nurse left the room. Laney was also talking in her sleep last night to her sister. It was so cute listening to her dream about playing with her sissy. They have really missed each other. Thankfully Kylee was able to come to visit today. Delaney made her chocolate chip cookies in her easy bake oven and also made matching rainbow loom bracelets for each of them to wear. We played some games today when her aunt and grand mom came to visit. She is still having throat pain and some nausea but other then that she is in good shape considering she just had her transplant three days ago. Thank you for the continued prayers 
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09/19/2013
by Susan Berube
September 19th 2013
The transplant is over and now it's time for a nap. She'll be monitored every 15 minutes for the next few hours. It will be about 30 days till we know the results! Now we wait for God to do his work!! Go Laney!!!!
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09/19/2013
by Susan Berube
September 18th
*** Laney Update ***
An update from Delaney's Mom from last night.

Over night Laney did very well. She didn't have any fevers and managed to keep her medications down. She did have some throat discomfort but nothing that required her to need medication. 
This morning when she woke up she did complain about really bad pain in her throat. Our nurse quickly brought the doctors in to see her and they ordered her pain medication. It was awesome how they responded so quickly to get her pain under control. It worked so well that shortly afterwards Laney was asking to eat macaroni and cheese and ring bologna. I thought the ring bologna was a weird request but whatever keeps her happy is fine with me 
The doctors said that she was starting with mucusitis. This can cause irritation and ulcers of the mouth, throat, and entire GI tract. We were told to expect for her to get it because of all the radiation and chemo she has had. They are also going to start a PCA pump on her tonight because the mucusitis will probably get worse before it gets better. They will also consider putting her on IV nutrition (TPN & lipids) as early as tomorrow. 
Well tomorrow is the big day!!! At 10am tomorrow morning Laney will be getting her transplant. She will be getting her cells from an umbilical cord of a little girl born in Virginia on Nov. 10, 2009. I would love to thank that family personally but as of right now I will just have to send out a FB thank you. Thank you for saying "YES" when asked about donating your umbilical cord cells. Because of that decision you are helping to save my daughters life and I am grateful for you where ever you are now. 
I am so excited for tomorrow and only nervous about weather it will work or not. Laney is going into this transplant still having cancer and we are hoping that these cells engraft, proliferate quickly, and kill every last left over cancer cell. Essentially we are looking for these cells to be bad ass for lack of a better descriptive word. 
So please pray tonight that these cells do just what they need to do and do it quickly so her cancer doesn't have time to get going again. Pray that God is with Laney, our family, the doctors, nurse practitioner, and the nurses as we go into Laney's big day tomorrow. Please ask him to be with us over the next couple weeks as they will be difficult as well. 
I never ask anyone to share any of my posts but tonight I'm going to do just that. Please share this post with your friends and family. I need Laney to have as many prayers as physically possible tomorrow. From coast to coast and even globally. 
Laney is getting ready to get a visit from her big brother and little sister shortly so I will end this by saying God bless and I will update you all again tomorrow.

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09/18/2013
by Susan Berube
September 18 2013
*** Laney Update ***
An update from Delaney's Mom.
Last night was rough for Laney she had fevers all night and was vomiting. She still had a fever this morning but they were able to finally get it under control. Since then she has had a good day. This morning was her last dose of chemo hopefully for the last time ever in her very very long life... Yay! She has absolutely no white blood cells as of this morning which is good and scary at the same time. She requested some toasted strudels today to eat but thats about all she ate today. Tomorrow she will just get her immunosuppressants. When she gets these she requires a lot of monitoring with frequent vital signs. She had a slight drop in her blood pressure with them today but they were able to bring it up with a fluid bolus. She is still in good spirits just very tired with all the medications she is getting. We only have two more days till transplant so we are super excited and nervous all at the same time. Thank you again for all the prayers
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09/16/2013
by Susan Berube
September 16th 2013
Poted by Delaney's
*** Laney Update ***
Laney is not feeling good at all right now. They added a second chemo med this morning and also an immunosuppressant. She had some nausea and vomited this morning and now has a fever and nausea. They are doing blood cultures again and starting her back on all the antibiotics. I'm making this short because she doesn't feel good 
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09/15/2013
by Susan Berube
September 15th 2013
An update from Delaney's Mom.
So we are VERY used to the ups and downs related to this cancer. And today I must say was an up day. Laney had a great day. No fevers. No nausea. No vomiting. Stayed awake all day doing painting, playing games, and watching TV. She even managed to eat a small amount of food today. She has been laughing and smiling all day.... love it!! Her sister even got to come up and see her today!! Her blood cultures have all been negative so they pulled back on some of her antibiotics and her Benadryl premed. We are half way through her chemo. We just have tomorrow and Monday yet. After that she begins her immunosuppressants. We thank God for the good days and ask him to support us on the bad. God bless and good night!!
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09/13/2013
by Susan Berube
September 13th 2013
This is a copy of a post made by Delaney's Mom today.
Delaney received her first dose of chemo this morning at 8am. She has pretty much slept the majority of the day. It's hard to she her so lethargic when it isn't her norm. Her nurse just kept reassuring me that it is okay and she needs her rest. She is just wiped out from the radiation and now we add the chemo to it which just makes it worse. She really wasn't having any other symptoms till this evening when she vomited. She hadn't really eaten at all today so it was mostly bile. They gave her more medications for nausea which in turn put her back to sleep. She also tested positive for the rinovirus aka the common cold. They think between that and the radiation was the cause for her fevers. Thankfully she had no fevers today. Tomorrow will mark the half way point in the transplant preparation. Her labs are doing what they want and expect so that's good. The doctor also said she is doing "good" in his perspective as well. 
My husband got up here tonight so I am finally able to come out and grab some fresh air. It feels good to sit out here and just clear my head. It's funny when she got admitted to the hospital I had to wear a sweater to stay warm and now here I am again bundled up to be outside. I see some of the leaves changing and think to myself that we got here when flowers were blooming. But in truth I would watch the leaves change, snow fall, and flowers bloom all over again or as long as it takes to get her better. There were times a couple month ago when her transplant seemed so far out of reach. And every time we thought we were close the wind would be knocked out of our sails. These doctors and nurses are doing an amazing job and I thank God everyday that they can help cure my baby with his guidance. I ask as always to continue to pray for her healing and give her the strength to get through these next couple weeks. God bless!!
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09/13/2013
by Susan Berube
September 13th 2013
This is a post made by Delaney's Mom on September 12

Laney had another fever last night so they did more blood cultures she also had conflicting lab work this morning. She received blood yesterday but her hemoglobin stayed about the same as yesterday. They thought that it may be related to a viral infection or could have been a mess up with the labs. So to be safe they gave her more blood. Her hemoglobin after that came up a good amount so I'm hoping it was just a lab error. 
Delaney also finished her last two rounds of radiation today... Yay!! The radiation team had a banner, certificate, and gift bag for her. I can't thank them enough for the compassion they have shown Laney over the past four days. We got this hurdle down and will start our next one tomorrow.
Tomorrow begins her four days of chemo therapy. I feel so bad that she has to go through this right after her radiation but I understand the necessity of it to try and get rid of as much cancer as possible. 
She has been in good spirits today she did some more face painting. She also did some exercising after her second round of radiation today. Her energy is definitely coming in spurts. She takes multiply naps a day then tries to have some fun in between.
Please continue to pray for her because these next couple days will be rough. I know it is just another step to her cure. God bless!!

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09/12/2013
by Susan Berube
Posted September 11 2013
This is a copied post from Delaneys Mother
*** Laney Update ***
Laney is having a better day today than yesterday. She went for both her radiation treatments without getting sick. She also seemed less nervous today as well. She did spike a temperature again today of 103.2 so that was a little concerning. The doctor did come in and explain that it could just be part of the radiation and that most kids who receive radiation get fevers. But of course they are not taking any chances so they added another antibiotic to the mix and did another set of blood cultures. The blood cultures from yesterday have preliminarily came back negative so that's good. She is also receiving some blood right now because her hemoglobin was low this morning. Her white blood cell count is coming down nicely so that's a good thing but her infection risks goes up as that goes down. 
Delaney has been in better spirits today when she was awake. I think she needed to hear the doctor tell her it isn't abnormal to have fevers. She has even eaten a little bit more today then yesterday. Some family came to visit and she even found some energy to preform her magic tricks which she loves doing. Laney has also picked out the pictures of the animals that she wants daddy to paint on the window this time. This window is going to be safari themed  We may have more animals picked out then we have window space but we will figure it out. Daddy started with the Nile crocodile to her request. 
She is such a fighter and will get through this for sure!! Please keep the prayers coming  God bless and good night.
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09/10/2013
by Susan Berube
Tuesday September 10th 2013
This is a copied post from Delaney's Mother that was posted today.
Laney is not having the greatest day today 
She ended up vomiting half way through her radiation treatment. Unfortunately even after getting sick she needed to finish the other half of her treatment which she did end up doing. When we got back to the room they took her temperature and it was elevated too. Laney started crying and said that she wasn't doing that good. I think she took the fact that her temperature was elevated very personally because she works so hard to stay germ free. She felt like she failed in a way.... breaks my heart!! I explained to her that it might not be an infection and might just be related to her radiation and her body reacting to that. That made her feel a little better. They ended up doing blood cultures, giving her more IV fluids, and starting her on antibiotics just to be on the safe side. She needs to receive Benadryl round the clock with her antibiotic because of her allergy to it. So between that and all the other medication she is very sleepy. She also hasn't really eaten today either so I think her appetite is decreasing as well. 
It is so hard to see a little girl that usually has such high spirits to be down. I knew this ten day prep was going to be hard but we are only on day 2 and she is going through things already. Please pray for her physical discomforts and emotional pain to go away.

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09/10/2013
by Susan Berube
Delaney had her first radiation treatment at 7am. She received medications to help her relax and to help that she didn't get any nausea. They worked so well that she slept through the entire thing. She even asked in the afternoon if she had already gone yet. I, on the other hand, cried like a baby after leaving her in that big empty room that I knew she would be alone in during her treatment. She ended up sleeping most of the morning away after her treatment. 
At 3pm she had her second treatment and that one didn't go as smoothly. She was awake and aware and scared  She was upset and crying.... it broke my heart.The radiation team was very patient with her and us. They let us stay by her side the entire time till they started the radiation and then even after they closed the big lead door they let us talk to her over the microphone and play her favorite sounds from her ipad over the speakers. 
When she came back to the floor she ate a small dinner, preformed some magic tricks, and even painted nurse Susie's face with a kitten. Overall she just feels tired right now. 

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Widget code for Delaney Brown / Team Laney

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