This page is managed by myself, Stephanie Roose- I am a friend of the family and Desi's Guardian Angel :) I am a cancer survivor and have been blessed to be on this journey with Desi & her family. If you would like to reach out to me my number is 760-485-3955 & my email is firstname.lastname@example.org.
Desi's mother is, Laura Palada and I share updates from her on this page as well.
Desi was diagnosed on April 16th, 2014 with Stage IV High-Risk Neuroblastoma. She has been undergoing chemo treatments at Loma Linda University Children's Hospital and is currently a week away from treatment #3.
Desi's family would like for her to be seen at Memorial Sloan Kettering Cancer Center (MSKCC) in New York. They specialize in Neuroblastoma and have a higher percentage rate of survival with Neuroblstoma than any other hospital in the US.
They also have a resection surgeon there who performs 2-3 surgeries a week. He has a signature way of being able to remove 100% of the tumor.
The hospital is also the ONLY hospital in the US that uses the 3F8 Monoclonal Antibody (MAB). This MAB uses a radioacitve isotope to guide the medicine to the protein on the outside of the cancer cell, latches on and then communicates to the cancer cell that it is "OK" to accept the chemo and then the cell dies.
Cancer cells are very intelligent and 3F8 has found a way to out smart them!
Why don't her parents just take her there? Good question! They can't! Desi's insurance does not cover her going to to MSKCC, they only cover her at hospitals that are part of the Children's Oncolog Group (COG).
But, COG has a MAB too Ch.14-18... why not just use that? Ch.14-18 does not have the radioactive isotope and has been proven to be not as effective as 3F8.
This is the reason why we are aggressivley fundraising for Desi, she MUST get to MSKCC. There IS no other option. In order to give her the best odds at survival she must make it there!
Did you know that just by you sharing this site you are helping? YES! Share, Share & Share more; the beauty of social media is that it spreads and grows!
Also, donate! It is in our DNA to share, help and support others. Skip your morining coffee, or make a contribution to Desi- you will feel fulfilled by helping!
So donate, help get this little girl to MSKCC!