Hello everyone. First I need to express my deepest gratitude for the outpouring of support that has come through your well wishes, your unbelievably generous donations, and your constant reminders of love and thoughtfulness. I’m not even sure where to start this update. I wish there had been time to write every day so far, as each day has been filled with events and feelings that many people have probably been curious about. Unfortunately there really has not been an available moment until now. But I must tell you, it’s all your love and support that has kept our spirits out of dark places.
So the update: In the last several days we have moved out of crisis mode. Thankfully, because I don’t think Amy (or any of us) could have handled any more of it. For a little over the first week it was constant management of Amy’s pain. The pain meds never seemed to come often enough, and the effects of them made her brutally nauseous. For days she was writhing around while also throwing up every hour or so, except she had nothing in her stomach. Then came the migraines, which lasted for 4-5 days with only an hour or two of a break from time to time. And hanging over all of this was the uncertainty of exactly how severe her injury was. And waiting seemingly forever for each surgery and wondering what each would entail. Having to have her body moved every time a new test was ordered became a panic for her and the rest of us, as the aftermath of shifting her body with all of its broken bones, took hours. While she was in surgery, it was a small break from the constant care tasks, like moving her legs a centimetre at a time just to relieve a bit of pain, but the constant care was substituted with frantic worry and fear, waiting to find out how it went. After the first surgery, the surgeon told us that there is only a 50% survival rate from an injury as severe as Amy’s and that she was in the good 50%. We felt thankful that they waited to tell us that. Both surgeries went well, better than expected, but now the long haul of recovery begins. Currently, she has an “external fixation,” which is basically stabilizing rods that are screwed into her pelvis and protrude from her hips, joining together across her abdomen - sci fi? Yes. For the next three months she will be wearing this contraption while her bones fuse back together. During this time she cannot bear any weight on her legs. Translation: She will live in bed for the next three months. Because she needs constant personal care still, she will have to enter a convalescent home for that period or possibly a family member’s home, (which would need all of the required medical equipment purchased or rented and to be adapted for accessibility needs) or both. After the three months of rest, Amy will be transferred to a rehab centre with the goal of climbing stairs. The estimates for this goal range from two to three months.
Now is the part where we have to call/meet with social workers, Community Care Access Centre, doctors, rehab homes and therapists, and figure out where to go from here. We feel as though we’ve entered phase two, but it’s a long complicated one, and we’re kind of feeling our way in the dark. Finding answers about care, figuring out access to funding, etc., requires many phone calls, sometimes to the same place three times for three different answers - the truth is, we have no accurate idea of what lies ahead, logistically or financially. Though the first three months are not without their own financial challenges, it is once she leaves rehab that her financial needs will be greatest, and where your donations will help most. This is because it appears that OHIP only covers medical needs while a person is in a care facility, most of her rehab costs after this point will come out of pocket. During the next 6 months in total, day-to-day needs such as personal care, meal preparation, and child-care will be a consistent aspect of Amy’s needs which will be the most financially draining. It is your donations that have given us the peace of mind that she will have the care she needs to recover fully.
Last week, we raised the financial goal amount substantially. At that time, we were even more in the dark and, well, panicking. We still believe that the total cost will end up being in the $30,000-$40,000 range, however, we do not feel like setting that goal at this time makes sense based on the variables. We feel that raising funds through other means, like an event or two, might be the best way to move forward in the upcoming months. For that reason, we have decided to bring the financial goal on this website back down to $25,000. We want to stress (stress, stress!) that everyone’s donations have left us feeling so relieved – that this goal of $25,000 is an enormous accomplishment and that you have all contributed to us reaching it is impressive and truly amazing! People have come out of the woodwork to help out. From old childhood friends to complete strangers, we have had offerings from so many. Through a facebook friend we have even been housed while in London at A Bed and Breakfast owned by a woman who I now consider a friend. Thank you so very much and I will update again when we know a little bit more.
Much love to everyone,