Help Xavier’s, Heart Failure Transition and Recovery Care

For: Xavier Jones
Augusta, GA
Organizer: Xavier Jones
Help Xavier’s, Heart Failure Transition and Recovery Care (Xavier Jones)
$2,475
of $5,500 goal.
Raised by 30 donors
45% Complete

The Story

On February 27th 2017 around 8pm my life permanently changed. I went in the Hospital that night unknowingly with the onset Congestive Heart Failure. I swelled with so much water, that my pours were literally leaking. That was my body’s way of alerting me to do something or it was going to quit. This form of Congestive Heart Failure took my hearts ability from its normal 55% to between 10% and 15% working ability. My Doctors are alarmed at 35% because anything under that is grounds for a major operation. There were two procedures done to get me to where I am now. A Heart Catheterization Procedure was done in a lifesaving effort to see what my heart looked like and to see what its ability was. The second procedure was done to open a passage for blood circulation by way of a Stent there were four blockages and three are being managed with medications. But this ordeal is not over by a long shot. My heart is at this very moment working at 15% and this puts me in line for a defibrillator and a Pace maker implants, that is the potential bad news.

Look I am blessed, we caught allot of things in time. This should have been so much worse and thank God it wasn’t. Earlier I said the phrase, “potentially bad news,” here is the great news, my Heart did not receive the expected damage that others in my condition would have. Thank God for so many of your prayers and the awesome show of support from friends, family and an awesome medical staff from the Augusta VA hospital, I have a good fighting chance, and a Golden opportunity to recover on a greater scale. So my Doctors have planned a regiment that will give me a good chance at recovery and a stronger heart.  Through medication, a good diet, exercise, and monthly if not weekly checkups, we will see how the regiment goes “God willing.” If it goes well, there will be no need for a Pace maker or what have you.

But my medical condition and the regiment will not afford me to work normally, and this affect my work and the funds that would have been made to help these medical, logistical and transitional issues. The recovery which will take 9 months, this journey will be long with many changes. There will be interruptions and permanent sweeping change of everything I do. I now have to change the way I do everything. I need to lessen the financial burdens but the simple truth is “I don’t have it...” I am blessed the Augusta VA has lessened the financial blow, but the truth is I still have at least 7 to 8 months to go, and another procedure coming. My VA Medical bill is over 5000.00 and growing thank God my a few friends, family mainly my Sister and Mother have been kind enough to help me through the starting transition. But we have used up what we had financially getting started. Any relief of Medical Bills, nutritional needs, Transitional and Logistical needs in the way of donations will be humbly and gratefully appreciated. It is in times like these, where the love and kindness of the Village and its Interdependence along with God’s blessings that truly makes the difference in situations like these. I am blessed that I have friends and a community that I can go to. Whatever help, prayers donations will be very much appreciated. I am starting out with a manageable goal of $5500.00 on the site. Whatever you feel lead to do, I am grateful for anything you can do. Bless You and thank all of you in advance, and I will be posting my progress and advancements on a weekly basis, From this point forward this will no longer just be my journey, “It will be our journey together whatever the outcome is… Again thank you, thank you all so much…

Fundraiser Updates

Posted on September 3, 2017

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Posted on September 3, 2017

So it is September and both July and August proved to be a Huge learning experience in Change and Transition. There are things that One's Doctors and nurses share that if you are the one in transition you tend to step up to a task, but you always hear the Cautionary caveat of, Take it easy, go slow, Take your rest where you need them, and pace one's self. Even after all of that, it is human nature to fall into a mindset of normality, even where it does NOT exist.
My mentor once told me that"Experience is NOT the best Teacher. "Wisdom is..." Unfortunately, we as humans tend to fall prey to hubris. And no matter how small the hubris is the outcome is the same. 
We ignore wisdom for normality where it doesn't exist and we end up learning from Experience. In my unlearning of bad habits, I walk away with a better health and understanding. It is the Understanding part that staggers me. We assume that we already know soooo much and we have many friends and family sitting right next to us to help us and we let perception and pride dictate recovery. Noooo, July and August taught me well, change is better when you listen to solid advice and work from consistency. It is there where the true recovery mechanism truly shines in that recovery starts in the mind and heart. 
Thank you all for your support and help. I would not be recovering as well as I would without your support, concerns, and literal care. Clearly, I still have ways to go but I am committed to this transition. I will be rebooting some of my efforts seeing how some things work so much better with help than by myself. Right now it is 1:11 PM at the Clubhouse, I am finishing the effort I started with my Move and Transition. There are still a few things I need to do like finish this fund raiser and complete moving and placing material I will no longer be using. And as far as The funds already collected, it did what they were slated to do. 
Lessen the burden of some bills, help with the move and downsizing of my old Domicile as I transition to smaller digs. Helping Change my health through Fresher foods and along with much-needed medications that are designed to help make my heart stronger. Getting Item that helped with making changes in the way I did Things like those 150 lbs. bags I slung on my back for 25+ years. And that list goes on, none of which would have been possible to do without your help.  
As we approach the fall, I will have to ramp thing up for Octobers meeting with my Heart Failure team. It will be there that the Prayers and planning will be needed most. God willing I have made enough changes to my system and heart to avoid Open Heart Surgery. I will be happy with a procedure that just gauges the strength of my heart. Right now we have just about reached the halfway point. I still need to raise $3025.00 to cover the Basic needs. It isn't lost on me that this is happening at a time where our Country is seeing unprecedented needs Everywhere Texas, Louisiana, California, and The North East have seen their share of sheer Heart break. Believe me when I say that I haven't said much because of the sheer size and scope of the needs all around us. I have planned to do my part as well. Please forgive me for posting any of this. I am already countering with my family where I can, and many of you have graciously found cool and innovative ways to help. I will be working hard to get well, and equally hard to pay back and or pay forward all that you will do and have done for me. Thank you again in advance. I am washing a ton of clothes that Great that I can no longer wear. I plan on giving them to several donation sites for starters to pay it forward. In that small way, I can help some people while I transition in return for all of you helping me...  Please, again share the link to those who wish to donate and share to anyone you may know Thank you all sooooooo much for your love and support.


Posted on August 9, 2017

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Posted on August 9, 2017

It is August, The next month, I fear this month more than any other for this is the month of Action and real Change. This is the month that I Minimize my life to almost nothing, In fact, if there "EVER" was a time for me to be creative it is Now. My Business partner is going to the Hospital soon for a much-needed surgery, I am in the middle of restructuring my Art Program at Perfect Storm, I have to be 95% moved out of an old Apartment by the end of August, and have to find a way to bleed off, sell, or store Items I need to sort through which is what is left from a robbery from awhile back. My regiment of Medications is going up to see if there can be any Real change to my heart, That fact is I need help Now more than ever before. "I had a moment while I was in the old apartment. I looked up the set of stairs that I bounded up when I first moved in. Back then the concern was How do I raise the money to refurbish this place into a thriving art Studio. Now here I am a year and Some months later, Ironically, this is the month that I found that I was Robbed awhile back, I was glad I was by myself... My knees buckled and I had to grab the stair well guard rail. I cried like a baby. So much emotion, I just had to let it out. No Art Studio, Years of Art Work gone, facing a set of steps that a year ago I could climb with ease, that now I am so easily winded by. The thought that Perfect Storm could get lost in this, or worse that I would end up with the pace maker and heart defibrillator for the rest of my life. Thank God for all of you. YES, God keeps me going, and it isn't lost on me the many methods he will use to achieve this, and all of you being major parts of that method. So if you are wondering what is going through my head, the above is just some of it. I feel bad at times bringing this to all of you when I know you all have your own situations to deal with. it is a bitter sweet perception in that I am blessed to one have all of you, and two; to be close enough to share this with all of you... I say this because Many of you have supported me earlier on when I opened this campaign. Many of you expressed that you would like to do more but simply do not have it... LISTEN, as I told one supporter who did manage to get me in a second stage support, She lamented that she gave so little... NONE SENSE! I owe you all a debt that I can never repay... I make it through these rough moments to awesome moments support by YOU ALL. I fight for my health and a better me so that I may be able to give back with an eqaul measure or more. We are approaching the half way point. The link helps allot when spread far and wide. I am going to expand my social net work to place the link in other places. Please pass this on, I can use your help here and I will let you know if I will need any other support. as I said This is a HUGE Month for me... Love you all and thank you for listening, Peace be with you all...

Posted on August 3, 2017

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Posted on August 3, 2017

It is now August, and the beginning of the end of Summer if not the end of summer for many. This summer was a Test of will and endurance. I have learned a lot about, pacing one's energy, and balancing work. There were a few times where I over did it, "Lessons Learned..."  I am now at 26 Donors, 240 Shares and $2300 of the $5,500 Goal, just about the half way mark. I want to finish if we can, I get my operation conversation in October, and I would love to have as much in place and done by then. "Listen, none of this would be possible with out all of your help. To the people that pass on the links to crucial supports, THANK YOU, to the People that felt that they could not support, Know your prayers, and physical support was enough, THANK YOU! To supporters who have donated THANK YOU, and to those that shared what they had, Bags of Natural foods, support with classes, Rides to doctors or coming to the rescue when I get stranded THANK YOU, THANK YOU, THAAAANK YOU! This journey will be going on long after this fund raiser is over, The path and Direction of this Journey are Guided by your Prayers, Concerns, and Support of All Kinds.
Every Penny has made a difference. I now have a better health code for myself because of this, I am healing faster for every purchase of natural foods and oddly enough, I figured that eating healthier not only would drop my weight but curve my cravings for the processed stuff which not only drops more weight but gives me more energy and saves the funds for more natural foods and medications. I and my sister are writing a format for this as a result of this and are looking to share this with all.
Let finish this Please keep passing this link to everyone and then that you know. It has helped so much I look forward to sharing more update and thanks to another friend of mine who gave me his old iPhone I can do pictures and video now. I just have a learning curve with the smartphone to learn, know now that a flip phone can't do the job. ;)

The link is  https://www.youcaring.com/xavierjones-846180 Please pass it on. Love you all, I am feeling better and working through my recovery. The Transitions still have a ways to go, but I will get there with God and your help... Peace be with you all...

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