It has been 10 days since our journey began…
Tinley is 13 months and from birth she has had a heart murmur, which was known to us as an "innocent heart murmur". At her one year checkup, the doctors suggested an echocardiogram for further evaluation.
On March 7th we went in for her heart echo, it was there that we discovered that she has a rare congenital heart defect called Atrioventricular Septo Defect (AVSD). AVSD is a condition where the heart has not fully developed. The condition has left Tinley with three holes in her heart and a malformation of the two valves within the heart (Tricuspid & Mitral valves). These valves are normally separated by heart tissue which divides the right side and left side of the heart. In Tinley's case, the tissue that divides the heart (atrial & ventricular septum) has multiple holes in it. Because the heart did not fully develop, this caused the two heart valves to be connected as one, this is known as a common valve.
We were referred to the University of Michigan Motts children's hospital for additional follow-up and open heart surgery.
Within a week, we were scheduled for an EKG, a second heart echo, chest x-ray, blood work and a heart catherization.
All tests (except the heart catherization) were completed on March 16th, on March 17th we were suppose to return back to Michigan for her heart cat procedure. But to our surprise and to God’s glory, the heart catherization was cancelled later that evening! Tinley’s pulmonary heart pressure had decreased to a safe level within a week! Which now meant that we would be able to have the open heart surgery within 30 or so days.
While at Michigan we learned that the surgery would take 3-4 hours and that she would need to be in PICU the first week. The doctor said that we should plan on Tinley being in the hospital for a month with an additional 2 – 3 weeks at home after she's released.
We are anticipating living in Ann Arbor for the next month, your support will allow us to remain near Tinley and to see her through the surgery and post recovery care.
We plan on posting all updates here, please check in often to see how's she doing or signup below for alerts.
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We appreciate your thoughts and continued prayers. - ❤ Baranowski's