Posted on January 27, 2018
Here is what has unfolded lately.
I was in the shower and noticed a little bit of milk on my nipple. Thinking it might be soap, I squeezed my nipple to be certain... and sure enough I was lactating. Very strange, because the whole point of a double mastectomy is to be without milk ducts and breast tissue, right? I rang my plastic surgeon who thought it might be residual milk since I had recently weaned Donovan. I hoped that to be true.
I went to my oncologist who thought it might be nipple discharge... but I knew it was milk. She also at that time discovered a few lumps that she felt were suspicious near where they removed lymph nodes. When she saw that I was indeed lactating, she agreed it was milk and that this WAY OUT OF HER SCOPE. Always comforting to hear from your doctor, right?
I left her office feeling confident the lumps were just scar tissue, but there was a part of me that got questioning it when fear struck. When the day of the ultrasound came, I felt a bit vulnerable, but also empowered by the word. As the ultrasound tech began taking measurements of round things on the right breast, I couldn't help but wonder if history would be repeating itself. She left the room and told me to stay undressed. That a radiologist would be coming in shortly to talk to me. That is exactly how it went down last time... and I couldn't help but prepare for the worst. I immediately sat up... and stood in my power. I concluded that if the news was bad, that Gods word be true and every man a liar. The Lord already told me by his stripes I have been healed. So I waited.... to see if she was going to come back and lie to me or not. She came back and said that I can go ahead and get dressed. The radiologist said everything looked normal... and what the tech had been measuring was some fluid behind the scar tissue... that was all normal. Praise Jesus I might have YELLED. She smiled and agreed.
But my doctor appointment marathon was not over. Next up, my surgeon. He confirmed this was not residual milk from breast feeding, I was indeed lactating. Which he also knew nothing about and had never seen before. Years ago after miscarrying and dealing with infertility after Italia was born... I discovered via MRI that I had a pituitary adenoma also known as a prolactinoma. It was a small like tumor/cyct in my brain that secreted prolactin in my blood causing me to never fully stop lactating. Because of this, I wasn't able to get pregnant for years. Desperate to have a baby to complete our family, they gave a me a drug to essentially lower the prolactin in my blood and within three months I was pregnant with my rainbow baby, Donovan. I was told these tumors are not very rare at all, and mine was small enough to live with my whole life and not be of any concern. Only trouble would be if it grew and effected optical nerves.... or caused a hormone imbalance I couldn't live with.
Currently, I had to get Erin Brokovich on my case, because no doctor knew how to help me here. I printed our pages of research showing them to my doctors.. all of them agreeing there was a link to high prolactin levels and higher risk for breast and prostate cancers. My surgeon even made copies of my research because he was so intrigued. In my research it suggests prolactin secreting pitutary tumors can cause headaches, auto immunity, vision issues and yes, breast cancer. This was not something I was willing to let linger anymore.
Next week, I will meet with a Brain/Pitutary specialist at MD Anderson in Houston. No time to play around. Bottom line, the tumor needs to be removed or shrunk by either medicine or surgery. The medicine has pretty strong side effects and is not guaranteed to permanently shrink the tumor, the surgery has its own set of risks. The great news is that I would be a candidate for endoscopic transsphenonidal surgery... which means through the nose. Either way, I feel thankful and ready to KILL this thing that has for years caused me so many issues.
If you should feel led to help financially, we would really appreciate it. No donation would be too small. Even gas or hotel money in Houston is a huge help for us as we are currently living paycheck to paycheck from the mounting doctor bills. The possibility of another surgery is also a financial burden. But we know God will provide. He always does.
Bold prayers are appreciated. Wisdom for Doctors at MD Anderson.Resolve for this tumor. Wouldn't it be amazing if the Lord straight up removes it himself? I know he can.
Thanks for following along and encouraging and supporting us.I will keep yall updated
His divine power has granted to us all things that pertain to life and godliness, through the knowledge of him who called us to his own glory and excellence. 2 Peter 1:3