Posted on March 2, 2016
Posted on March 2, 2016Today was my first day back at work. I loved every minute of it. When my students went home, I felt accomplished and happy. My fear was that I would not be able to adapt back into my classroom after so long off but I was in my element. It felt so good and my students were happy to see me, were attentive, and the day couldn't have gone better. But I am tired, this is the most I have done without resting in between tasks in months.
Its been 3 months already (tomorrow) since my transplant. It amazes me how much has changed in the last year and a half. I was correctly diagnosed in August 2014 - finally after 10 years of doctors telling me something else I knew was incorrect - I was listed on the kidney transplant list after many tests in January 2015, my kidneys died in March 2015, I started dialysis in April 2015, and received my new kidney in December 2015. All this happened with 2 kids, working full time, going to school full time, and managing a house. I am AMAZED!
Thank you for all you have done to help me and my family. Whether it was prayer, monetary, meals, calls, childcare, etc. you made a difference in my healing and YOU ARE LOVED!
Posted on January 26, 2016
Posted on January 26, 2016I had a bit of a scare last week. I didn't tell anyone about it, not even my dad, for fear of jumping the gun and I am glad that I didn't. My creatinine levels had increased quite a bit in a week's time, along with my blood pressure, and eGFR. It is really scary when the word "REJECTION" is used a few times in the span of 30 minutes. The doctor said that he wanted to monitor my Prograf levels (one of the anti-rejection drugs) and ensure my blood pressure medication was at the right dosage before they worry. However, that word rejection was all I could think about from last Thursday to yesterday.
I was really happy and relieved when I found out yesterday that my test results improved and they took rejection off the table. All of my issues were/are medication related. They are reducing my Prograf again since last Thursday and, after some serious issues with my digestive/bowel system, they are reducing the Cellcept as well. Cellcept is the other anti rejection drug that I had lethal doses of in my system back in December. Now, they are climbing up there again. It is amazing to me how precarious the medication can be.
I am walking a lot more. I got in over 2 miles today with the dogs in tow. I have to now watch my calories since my appetite has returned in full force with the help of the Prednisone. So the exercise makes me feel better and less hungry. I just still can't keep up with the housework, but I'm trying.
Dad's body is making adjustments to having one kidney instead of two. He is struggling with a rash on his chin that acts like boils. I had this same thing a few years ago off and on when my kidneys really started having issues. His will recover as it becomes accustomed to doing all the work. But I know the pain that comes with the rash and I don't want it happening to him.
Please pray for my medication issues to be remedied and that dad's kidney will regulate and normalize. We appreciate all your prayers.
Posted on January 16, 2016
Posted on January 16, 2016My dad came up on Wednesday for his follow-up with the surgeon. He was told that they were satisfied with his progress and he didn't have to return until the beginning of May and was released to nephrology. I am so happy that he is healing well and is healthy. But I am sad he doesn't have to be up here again for 4 months. Hopefully a non-medical related visit is in the near future. He looks so good and is eating normally. We went to his appointment and he was wearing the shirt I got him that said "Of Course I am an Organ Donor, Who Wouldn't Want a Piece of This?" Everyone loved it and he enjoyed showing it to everyone.
The greatest part of our visit was asking a lot of questions regarding the surgeries and how the kidney was connected. We found out how he attached dad's kidney to mine (he even drew a picture, signed, and dated it), why my new kidney works harder than the one he has left, and why it doesn't last more than 12-20 years. Its an interesting explanation and now we will each be able to explain it to others easier. The whole process is fascinating.
I got to take him to one of my favorite restaurants in Menlo Park down the way from Stanford. We shared a pastrami sandwich and bread pudding, both were amazing. I was so happy to have a date with my dad and then we were joined by the lovely couple who took such amazing care of my mom while dad was in the hospital. It was awesome to get to spend some time getting to know them better.
When he left I was sad to see him go. Now that I have a piece of him in me, it really hits me when all of him leaves. But I know mom misses him very much when he is gone, so off he went yesterday late afternoon.