Benefit for Adalyn Dawn Hayes

For: Josh and Stephanie Hayes
Seagrove, NC
Organizer: Katie Harrelson
$420
of $10,000 goal.
Raised by 8 donors
4% Complete
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The Story

Adalyn Dawn Hayes was born February 5th, 2017 weighing 4pounds 15 ounces and 17.5 inches long to Josh and Stephanie Hayes. While Adalyn was in utero, Josh and Stephanie were notified of a congenital abnormality present called VACTERL association. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. Adalyn has three of the characteristics associated including tracheo-esophageal fistula, vertebral defects, and also cardiac defects. Due to severity of the tracheo-esophageal fistula, Adalyn required a lengthy three hour surgery in attempt to correct it. Unfortunately, the surgery needed to be stopped due to complications and an additional surgery (her third surgery total) will be performed March 20th in hopes to fully repair the tracheo-esophageal fistula. Adalyn required a second surgery to place a gastric tube in order to ensure adequate growth, in preparation for her next surgery (3/20/17). There have been additional complications with Adalyn such as a significant degree of scoliosis related to her VACTERL, a small brain hemorrhage which caused hydrocephalus, and an unknown source of infection which caused fever for several days. A MRI has been completed to further evaluate the hydrocephalus and scoliosis. Stephanie, Josh, and the NICU team at Duke made the decision to closely observe the fluid increase and if necessary choose another option such as a shunt or reservoir to draw the fluid off. Thankfully, the most recent ultrasound revealed the fluid amount has stabilized and nothing further is needed at this time! Adalyn has a contagious smile with beautiful bright eyes. She enjoys being read to by Stephanie and Josh, and was able to be held by her Grandmother Linda last week for the first time. Although there has been numerous setbacks and unforeseen obstacles Adalyn and her family have had to endure, they continue to push forward, trusting in the Lord to supply all their needs. We know the Lord can and will do just that. But we would like to lessen the load for the family and provide some additional financial support during these trials. After Adalyn has her third surgery, she is expected to remain in the hospital until the beginning of May. Medical expenses add up very quickly and once Adalyn is finally home there will also be additional services needed to ensure her cognitive and physical development are within normal limits. Those services will include: physical, occupational, and speech therapy. All Stephanie and Josh have asked for are prayers and believe me, I know they are flowing over their family. But let's go a step further, let's give this family the gift of time, free of financial strain, let's allow Stephanie and Josh to be at the hospital with Adalyn who needs them more than ever!

Fundraiser Updates

Posted on March 21, 2017

Posted on March 21, 2017

Update from Steph: 
We are asking that everyone take a minute and lift up Adalyn. She is having some issues with being on the ventilator and they have even mentioned having to switch over to a jet (a machine that breaths really fast for her) she is still retaining fluid from surgery and also needs to start urinating more so that fluid decreases. They are going to recheck her blood gases (which tell how well she is doing on the ventilator) at 4 and come up with a new game plan if she has not improved. Josh & I are hanging in there but at the same time are nervous and hate to see our sweet baby girl like this. Please #prayforAdalyn

Posted on March 21, 2017

Posted on March 21, 2017

Message from Steph: 
Praise report: It has been such a long morning and we have been on the edge of our seats but our God is good and faithful and Adalyn's surgery was successful and went great. We still have a long recovery ahead and a lot of obstacles to overcome but we serve a mighty God and with Him all things are possible. Thank you all for the many prayers, calls, texts, and messages. We are truly blessed.

Posted on March 19, 2017

Posted on March 19, 2017

Thank you for helping me spread the word to support this amazing family! Since I posted last night there were 140 Facebook shares and $250 raised. Thank you so much for your support! 
-Katie Harrelson 

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