Seth was born full term (a little over-due!) but with three birth marks. One on his back, left foot, and left hip. We’d been following them making sure they didn’t change, get any bigger and always had the pediatrician take an extra close look at our regular visits. I was more concerned about the one on his hip because it had what are best described as “skin tags” on it and was worried these would bother him as he got older because they were right where his pants would sit.
At Seth’s two month check-up the pediatrician mentioned the texture of the one on his hip had changed a little bit so let’s have a dermatologist take a look just to be safe. I made an appointment at the local dermatologist she referred us to. We went for our appointment and pictures were taken to send out to her extended network to which no one had a good idea of what it might be so it was decided a biopsy would be done. We had one of the “skin tags” removed and a little of the tissue under that taken for analysis. Again it couldn’t be determined what it was so at that point I opted for a second opinion and got a referral to Boston Children’s Hospital Dermatology. After numerous visits we were referred to the Jimmy Fund Clinic at Dana Farber because the cells could be cancerous. We soon found our Seth had ATRT a rare form of childhood brain tumor.
This fund is being used to help with medical expenses, costs of going to and from the hospital as well as staying at the hospital, along with day to day expenses as Seth's treatment requires a lot of time out of work.
We appreciate everyone's support.