Battling to Win - Help Serena Beat Lyme!

For: Serena Hockey
Grandview, MO
Organizer: Serena Hockey
Battling to Win - Help Serena Beat Lyme! (Serena Hockey)
$10,999
of $20,000 goal.
Raised by 29 donors
54% Complete

The Story

My Story

I was studying in Kansas City in 2014 when symptoms of neurological issues, pain, debilitating fatigue, cognitive difficulties, breathing issues, dizziness, nausea and more began to take over my life in more major ways, rather than just affecting it here and there.

It may have begun from various illnesses in Asia, Africa or England anytime from 2011 onwards. Or it may have been that I had the bacteria present in my body earlier, becoming activated later on.

After a barrage of tests, the closest the medical doctors could come up with to explain all the symptoms was Chronic Fatigue Syndrome or Myalgic Encephalomyelitis. More recent testing has shown Borrelia, which is the bacteria associated with Lyme Disease.


Trying to Heal

Over the past few years of trying to rest, seek treatment and heal, the symptoms only seemed to get worse. It became normal for me to be stuck in bed for 70-95% of each day, needing to be laying flat and sometimes not even able to read or keep my eyes open. I remember the first time I used a wheelchair to travel, being too exhausted and in a fog to be self conscious about it but thinking how this could become my normal.


Hope for the Future

In February a way was made miraculously for me to go the Hansa Center in Wichita, Kansas to get treated. The Hansa Center is considered a leader in Biological Medicine and people fly from all over the world (including Australia!) to be treated there. Yet it is less than 3 hours drive from where I am now!

Not only did God put it on some hearts to give so that I could go, but He also made a way for an appointment for me within a week! Normally it takes at least 2 or 3 months. 

Every day there during my doctor appointments and therapies I found more answers about what was really going on. I’m encouraged too by having met other patients who have seen great breakthrough in their time there.


I do believe that God has not finished with me yet

I believe He has called me to partner with the healing of children both here and in other nations. One of my dreams is to be able to complete a degree that will give me skills to work with children from hard places/traumatic backgrounds. But in order to do that or anything else I have to heal first. Jesus is so with me in this story and I know that whatever suffering I go through, will be used for His glory and used for good in my life too.

God provided for my original 2 week treatment at Hansa in February, and spoke to me specifically about going there. I now have my follow up visit scheduled for the week of May 22, and know that I will see even more improvement.


I need your help

Lyme is a costly disease that takes up finances as well as destroying peoples lives. I'll be returning to the Hansa clinic in May and again in the fall for 5 days of intensive therapy. Each of these trips will cost me almost $7000 including travel and accomodation expenses, but I know that I'll see fruit and faster recovery from each visit. In between, I'll be following my doctor's protocol, which is essential to my healing, but costs for supplements and medicine are expensive and add up quickly. I do need help with finances and prayers for this journey.

I have so much hope in Jesus and how He has led me so far. Thank you so much for your prayers and generosity. You are a gift to me!

Love in Jesus,
Serena

Info on CFS/ME
Info on Lyme
Info on Hansa

Fundraiser Updates

Posted on August 15, 2017

Posted on August 15, 2017

Just over a month ago, I was able to begin neurofeedback treatment which is helping to heal the damage to my brain! I am so thankful for all your prayers and generous giving. Please continue to pray for provision to continue with neurofeedback, doctors visits, and other treatments beyond the end of this Friday. This costs upwards of $1600 a month (depending on changing protocol etc). I am in need of $1350 by the end of this week in order to continue neurofeedback next week (lease of neurofeedback equipment, heart rate variability and bemer sessions all from the same place - the bemer and heart rate variability increase the effectiveness of the neurofeedback).

A praise report - recently I have noticed a good improvement in pain levels! I'm not noticing wondering pain (pain that jumps from one part of my body to another) anymore! This could be a result of neurofeedback, because with lyme patients, the brain can begin telling the body that there is pain in lots of different parts even when there shouldn't be. My brain is healing! :) :) :) 

Thank you so much again for your support! I have so much hope for healing and in Jesus' plans for my life!


Needs summed up (although I always seem to forget something):
By Friday 18th August: $1350 to continue neurofeedback treatment (300 has already come in! Yay Jesus! and thank you friend who gave!)
Monthly: Upwards of $1600/month
By October 13th: approx $3500 for next Hansa visit including accommodation and other travel costs
When the Lord provides: $1700 to purchase a biomat - this will reduce how many times I need to go get another treatment, meaning I can do it in my own home. This will be a lot easier on me physically as well as helping to reduce inflammation, improving sleep, improving my body's core temperature etc. 


Note: on Facebook I had said 1140 to continue neurofeedback - I had miscalculated the costs, so it's now 1350. 


A bit more about neurofeedback:

When Lyme spirochetes attack the brain, one symptom that it can cause is telling my body that it has pain in different areas where there really should be none at all (of course some pain does have reasons, but this particular type is just my brain malfunctioning).

Another symptom (or set of symptoms) that I have manifests itself in a sensory processing disorder. Sounds and vibrations can overstimulate me and eventually I can end up in a meltdown. This is similar to what people with autism may go through. I have also been over sensitive to smells, mold, chemicals, lights and more. Neurofeedback will help me heal from PTSD like symptoms, help me sleep, help my brain and personality come back to life, among other things!


Posted on July 21, 2017

Posted on July 21, 2017

For all of you who have been praying and who have given - thank you so much! Healing really is a full time job!! 

I'm also attempting college at the same time (just one class this summer - I was doing 2 but had to do a medical withdrawal because it was too much for now). My doctor is really happy that I'm doing this, because it gives me a something to focus on and "the brain likes a destination". It will help with healing my brain as well as healing my body! (So long as I don't do too much too soon). I'm still having to miss about 40-50% of my classes, but Jesus is so using it to continue to help me find my identity in Him, not in what I can do or what my reputation looks like. Fun fact: the 4 year university I want to go to requires a GPA of at least 3.85 for the full scholarship (I can't go there unless I get this specific scholarship). So I'm aiming for as close to straight As as I can!! 😂 And if I don't get them, it's okay. I get to try my best but also be kind to myself in failure :) God is good.

I am still in need of and am raising funds for continued treatment. My next follow-up visit to Hansa in October is about $4000 or less (including accommodation down there), and I am continuing therapies such as neurofeedback, detoxing therapies and local doctor visits in the meantime. I am also hoping to eventually purchase a biomat which will help with inflammation, pain, detox and sleep which costs about $1700. It is an FDA approved medical device so there is a chance I might be able to get it covered by insurance, but not until February next year as it is a pre-existing condition so won't be covered until then. 

Sleep is extremely important for cellular healing (and healing of any kind!), my main issue is mitochondrial, so my doctor told me in March. The mitochondria in the cells throughout our bodies are responsible for creating 90% of the energy needed to sustain life and support organ function. The biomat would be a great help because it will help me with sleep, which is crucial to healing! 


Posted on May 28, 2017

UpdateImage

Posted on May 28, 2017

I am so grateful for my time at the Hansa Center in Wichita this past week! Thank you So much to everyone who helped to make this happen, whether with your generosity through finances, prayers or donating your time and energy to help get me there and back! I could not have gotten there and to this new stage of healing without you!

Lyme affects multiple systems of the body, so if it seems like when I post that I'm talking about a lot of different things, it's because a lot of different things in my body have been affected! The lyme bacteria crosses the blood brain barrier and damages it, so that not only does the brain get invaded by lyme but also other things that normally shouldn't be allowed into the brain. It has also affected my nervous system and heart, my digestive system, and more. 

Over the last few days of treatment, my doc spent time on working on healing my heart, brain, nervous system and gut. He also worked on how to help my blood and the mitochondria of my cells heal so that the rest of me can heal! With all that we were asking my body to do, specifically with my heart and some junk in there, I had a bit of a reaction through the afternoon and evening on Thursday, but it stabilised by Friday morning. My doc had given me supportive supplements that would help with the reaction, but I had promptly forgotten about them and then felt so sick that I didn't take them until Friday morning... I've learnt for next time!

Now I am working on making sure I'm getting onto and sticking to this new protocol so that my body is able to make full use of everything that went on, and I should be seeing even more improvements really soon!

The good news is that my doc thinks I only need to come back for 3 days of treatment next time instead of 5, and it will be sometime in October or November! This is a really good thing!!

Thank you again so much to everyone who has supported my journey to getting well! I do appreciate and need continued help and for people to continue sharing my story :) You are a huge blessing to me!

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