Baby Evanna's Hospital Fund

For: Scott and JoAnn Kuhn (and baby Evanna)
Olympia, WA
Organizer: Scott Kuhn
Baby Evanna's Hospital Fund (Scott and JoAnn Kuhn (and baby Evanna))
$3,464
of $5,000 goal.
Raised by 35 donors
69% Complete
This fundraiser is not active at this time.

The Story

We hadn't expected to get pregnant again. But we did...and it is a tremendous blessing. 

In June, at the 20th week ultrasound, concerns were raised. Something was wrong with the baby. (The journey is cataloged on Scott's blog here.)

After multiple tests, ultrasounds, and a fetal MRI (and too many weeks of waiting between), we got the diagnosis: our daughter has spina bifida. Considering the things our primary OB had strongly hinted at, this was good news, far better than, for example, having to try to explain to our younger two (9 and 7) what hospice care is, and why.

Her prognosis is excellent, based on the location of her lesion. But there is still a lot for us to go through: likely a mandatory C-section at Swedish Hospital in Seattle (Evanna is currently/still breech), then once she is stabilized, will go into her first surgery.

What does this mean? Lots of additional expenses: food for JoAnn while at Swedish with Evanna, travel costs for Scott going back and forth between home and the hospital after those first few days, expenses related to the other kids, and the big one: lost revenue (and costs for paying for others to cover his work), since Scott is self-employed...especially those first 3 days, when his attention will be solely on Evanna.

Every bit will help, no matter the size.

Fundraiser Updates

Posted on October 28, 2016

Posted on October 28, 2016

Today marks the 4-week mark for Evanna, and the remaining issue is which route to take for her feeding: ng tube or a g-tube. Both have their pros and cons, and both will be intended for (hopefully) short-term use, since we’ll still be working on oral feed training after we do get home.

(More--nearly constant some days!--updates on the Facebook Community page: Evanna's Joy.)

Posted on September 30, 2016

Posted on September 30, 2016

Evanna is here! A little earlier than planned, but here.

She's had her first surgeries for the back closure and shunt, and is recovering today in NICU.

JoAnn is recovering well, too, and has been able to visit Evanna a couple times already (we're on different floors).

More info and pictures at the Evanna's Joy page on Facebook.

Posted on September 27, 2016

Posted on September 27, 2016

We're coming down to the wire...assuming Evanna and JoAnn's body don't come up with their own timeline...we're at 7 days and a wake up. 

The support has been amazing, and we're extremely grateful for it. But I'd like to ask for your help in sharing the fundraiser and getting the word out more about it and the Facebook Community page. Shorter link to the fundraiser is at youcaring.com/BabyEvannaand the FB Community page is at fb.com/EvannasJoy.

There's been an additional wrinkle thrown into the mix of things we're dealing with. Back at the end of June, I'd moved the business PO Box from Tacoma to one closer to home in Lacey. For a little over 6 weeks, had no trouble at all in receiving mail, either direct or by forwarding. But then in the third week of August, got my first notification from a client that mail--properly addressed--was returned to them. Many more since, sporadically, with thus far no relief from the USPS, though the issue is now moving up the chain. But it is definitely affecting cash flow at about the worst possible time...

Other note: our last hospital day of appointments is tomorrow!

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