Rylee is 9 years old and has a very rare brain malformation called bilateral close-lipped schizencephaly which ultimately causes her cerebral palsy. Schizencephaly is a very rare brain malformation which means her brain has 2 clefts on it. Rylee was born on august 30,2008 8 weeks early. They found the schizencephaly after a check for brain bleeds with ultrasound. After the ultrasound they sent her to have a mri that confirmed the brain abnormalitie. When she was born the drs told us she would never smile or do anything. They told us she would be a vegetable...We were devasted but she has been proving those drs wrong....
Rylee currently can't walk without assistance, and she crawls around our house or we carry her. Sometime in the near future we will be traveling to Texas for spml with Dr.Ygnve. This surgery has helped her in the past but she needs it again.
To help her reach her full ability, we need house modifications to make our home accessible and funding for certain medical needs. The home modifications we need are a walk-in shower, widened doorways and a ramp added to our porch. We currently live in a double wide that needs larger doorways and a bathroom that is accessible. Trying to give a shower to a little girl that can’t sit well is frustrating. Our floors also need to be all level for when she gets her wheelchair and walker she can have freedom...
We will be trying out walkers and wheelchairs in the next few weeks. In that we were asked how we will transport a wheelchair. Our transportation at the moment is a 05 suv with way to many miles So we will also put money towards a accessible van or suv. Any amount donated please know it goes to give Rylee the best life possible!!!!
Our next goal would be stem cell treatments as there have been alot of great results. However, insurance will not cover most of this, and it is pretty expensive. I spoke with a dr and the stems cells are usually 15000.00. Please help Rylee reach her full potential and achieve her dreams!!! Any donations will help!!!
We are dreaming big but anything for this little girl...I am changing the amount of our fundraiser because we would really like to raise enough to cover stem cells.
PLEASE share Rylee’s story as the more we raise the more we can do for Rylee!
A little bit about Rylee is she loves music and animals. She can also be quite sassy but we love it. She loves Zayn, Harry Styles, Niall Horan, Louis Tomlinson, Liam Payne, Taylor Swift, Luke Bryan and Sam hunt. She is a true warrior and always has a smile on her face....Thank you for any amount you are able to give.
Follow her instagram for more updates on rylee!!! @rockstarylee
Our PayPal address is [email protected] If donating send friends and family option.
Our maling address : 6766 old highway 411 chatsworth ga 30705 is our mailing address.