Smiles for Rylee needs accessible van stem cells

For: Rylee Sanford
Chatsworth, GA
Organizer: Lisa & MaKayley Sanford
Smiles for Rylee needs accessible van  stem cells (Rylee Sanford)
$13,920
of $18,000 goal
77% Complete
Raised by 124 donors

The Story

Rylee is 9 years old and has a very rare brain malformation called bilateral close-lipped schizencephaly which ultimately causes her cerebral palsy. Schizencephaly is a very rare brain malformation which means her brain has 2 clefts on it. Rylee was born on august 30,2008 8 weeks early. They found the schizencephaly after a check for brain bleeds with ultrasound.  After the ultrasound they sent her to have a mri that confirmed the brain abnormalitie.   When she was born the drs told us she would never smile or do anything.   They told us she would be a vegetable...We were devasted but she has been proving those drs wrong....

Rylee currently can't walk without assistance, and she crawls around our house or we carry her.  In the past year she has added a lot of new words that we didn’t ever think would happen.  Rylee is totally dependant on us for everything. Imagine not being able to hold a cup or put clothes on....We have tried out several wheelchairs and all the therapists agree a power chair is going to be what she needs.  Accessible vehicles are expensive...

We will be traveling back to Texas in a few months for spml....this has helped her in the past so we will be going for another surgery...Trips  to Texas are generally 12-14 hours for us and it usually a 4 day stay.  

We would love to be able to get stem cells for her but this is costly and insurance doesn’t approve experimental procedures.  

To help her reach her full ability, we need house modifications to make our home accessible and funding for certain medical needs. The home modifications we need are a walk-in shower, widened doorways. We currently live in a double wide that needs larger doorways and a bathroom that is accessible.  Trying to give a shower to a little girl that can’t sit well is frustrating.    Our floors also need to be all level for when she gets her wheelchair and walker she can have freedom...

We will be trying out walkers and wheelchairs in the next few weeks.  In that we were asked how we will transport a wheelchair.   Our transportation at the moment is a 05 suv with way to many miles So we will also put money towards a accessible van or suv.     Any amount donated please know it goes to give Rylee the best life possible!!!! 

We are dreaming big but anything for this little girl...EDITED to add I am changing the amount of our fundraiser because The expenses are more than we thought they would be..

PLEASE share Rylee’s story as the more we raise the more we can do for Rylee!

A little bit about Rylee is she loves music and animals.  She can also be quite sassy but we love it.  She loves Zayn, Harry Styles, Niall Horan, Louis Tomlinson, Liam Payne, Taylor Swift, Luke Bryan and Sam hunt.  She is a true warrior and always has a smile on her face....Thank you for any amount you are able to give.

Follow her instagram for more updates on rylee!!! @rockstarylee

Rylee also has a Facebook page Rockstar Rylee.

Our PayPal address is [email protected]  If donating send friends and family option.

For our address please you the email option to get in touch with us...

Fundraiser Updates

Posted on May 7, 2018

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Posted on May 7, 2018

Rylee had a second seizure yesterday.  We will be seeing the neurologist this coming week. Please share her story..


Posted on April 27, 2018

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Posted on April 27, 2018

We are going to try and raise the money to help get a accessible vehicles so Rylee can get the proper chair.  This whole journey is about giving this little the best life possible...please share our story on any social media that you belong to.  I am a older mom so lifting a wheelchair is Not a easy task.  Please share and share again!!!


Posted on April 24, 2018

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Posted on April 24, 2018

Life has been Busy looking at wheelchairs and walkers.  Our walker did get ordered but not the wheelchair.  Insurance won’t approve it till next year.  Also found out from the vendor that more than likely she will need a power chair.  We just don’t have a vehicle that can transport a power chair.  This past week I have managed to throw my back out.  Lifting and carrying her has taken a toll on me.  We also need a accessible bathroom...I can’t imagine not being able to wash my hands or take a shower...hopefully thing will turn around but we are forever grateful we are this little girls parents.  So please continue to share our story.....

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