Posted on February 21, 2018
Hello friends! Nikita here. It’s been a while.
Earlier this month we honored the one year anniversary of Robbie’s stroke. He has come such a long way from those first few months in hospital. He fearlessly marches-- he rolls decisively!-- onward, through his weekly therapies and routines with an eager cheerfulness that we can all admire. Where he gets all that positive energy, I'll never know!
As we pass the year mark, I wanted to thank you all, again, for you contributions, and to let you know what your generosity has made possible in the past 12 months:
-The most important (and expensive): access to caregivers (Robbie received 24-hour care for the first 5 months he was home, most of which was not covered, as we were unable to find enough caregivers through IHSS. This “slim pickings” issue is one we are still dealing with.);
-a ramp at the back door of both Jet and Robbie’s homes, poured by our friend and Santa Cruz’s own Tom Ralston, with handrails alongside and at the front of both homes;
-alternative and supplemental therapies;
-a better grade of splint for his left hand.
Further, some of you were absolutely invaluable putting Robbie’s new home together, with donations of furniture and household necessities. For that we will be forever grateful.
Of course, to everyone who facilitated, donated their work, and attended the fundraiser at the Museum of Art and History last June, our heartfelt admiration. It was a day that Robbie will never forget.
Lastly, a shoutout to all of you who visited Robbie while he was in his various facilities, whether in person or by card; you made him feel like a king!
Now, where the fundraiser comes back into play: We are raising our goal! Any further support you’d be willing to give would be marvelous. And if you’re wondering what else you might be able to do, outside of cash, please don’t hesitate to reach out to Jet, myself, or Robbie.
Moving forward, we are hoping for a few things:
-More access to IHSS caregivers! If you know anyone, or would be willing to sign up for IHSS to help Robbie out, please reach out to Jet ([email protected]). IHSS gives us 40 hours every week that would be covered by an IHSS caregiver, and we want to use them all, to reduce expenses as much as possible. Robbie now spends his nights unassisted, without a caregiver, a milestone we happily passed in January! In the past 6 months most of our expenses have been paying caregivers (now an out-of-pocket expense), and we will be looking, going forward, to further lessen the hours when a caregiver will be present.
-If you are willing to set a weekly or monthly date with Robbie to hang out for a few hours, that would be a huge help (and a balm to him!). Saturdays are great!
-alterations to Robbie’s car to make transportation easier and private;
-continued access to alternative and supplemental therapies.
We are grateful for any support you are willing to give us. We could not have done this, to the extent and style that it has been done, without all of you. Your waves of good wishes and positivity, your generosity and selfless soul. I adore you, each and every one of you; thank you for looking out for my father.