Robbie Schoen's Rehab Fund

For: Robbie Schoen
Santa Cruz, CA
Organizer: Nikita Schoen
Robbie Schoen's Rehab Fund (Robbie Schoen)
$37,781
of $40,000 goal
94% Complete
Raised by 359 donors

The Story

Robbie Schoen is a Santa Cruz artist and the director of the Felix Kulpa Gallery.

On Feb. 10, Robbie suffered a massive stroke while working at the Santa Cruz Museum of Art and History. He was rushed to Dominican Hospital, then airlifted to Stanford Hospital, where doctors tried to remove a clot from his brain.

Medical teams were able to remove part of the clot, but not all, and so Robbie's brain swelled. On Saturday, doctors removed part of Robbie's skull, to alleviate the swelling.

As of Feb. 14, Robbie is at the Stanford ICU, where his condition is improving. He's begun to breathe and swallow on his own. He can now follow simple instructions, such as squeezing his hand, giving a thumbs up, wiggling his toes, and opening his eyes.

Soon, he will start months of rehab. The right side of his brain was severely damaged, so he'll try to relearn how to use the left side of his body. We are optimistic, because Robbie is a young stroke victim.

Robbie's on Medi-Cal, and we've been told by doctors that the quality of his rehabilitation depends on what his insurance will cover and what he can afford.

We're raising money over the next month to fund Robbie's rehab bills. 


Help spread the word!

If you'd prefer to send a check, please make it out to "Robbie Schoen Rehab Fund," and mail to Santa Cruz County Bank, c/o Mary Anne Carson, 740 Front St., Suite 220, Santa Cruz, CA 95060.

Fundraiser Updates

Posted on February 21, 2018

Posted on February 21, 2018

Hello friends! Nikita here. It’s been a while.


Earlier this month we honored the one year anniversary of Robbie’s stroke. He has come such a long way from those first few months in hospital. He fearlessly marches-- he rolls decisively!-- onward, through his weekly therapies and routines with an eager cheerfulness that we can all admire. Where he gets all that positive energy, I'll never know!


As we pass the year mark, I wanted to thank you all, again, for you contributions, and to let you know what your generosity has made possible in the past 12 months:


-The most important (and expensive): access to caregivers (Robbie received 24-hour care for the first 5 months he was home, most of which was not covered, as we were unable to find enough caregivers through IHSS. This “slim pickings” issue is one we are still dealing with.);

-a ramp at the back door of both Jet and Robbie’s homes, poured by our friend and Santa Cruz’s own Tom Ralston, with handrails alongside and at the front of both homes;

-alternative and supplemental therapies;

-a better grade of splint for his left hand.


Further, some of you were absolutely invaluable putting Robbie’s new home together, with donations of furniture and household necessities. For that we will be forever grateful.

Of course, to everyone who facilitated, donated their work, and attended the fundraiser at the Museum of Art and History last June, our heartfelt admiration. It was a day that Robbie will never forget.

Lastly, a shoutout to all of you who visited Robbie while he was in his various facilities, whether in person or by card; you made him feel like a king!


Now, where the fundraiser comes back into play: We are raising our goal! Any further support you’d be willing to give would be marvelous. And if you’re wondering what else you might be able to do, outside of cash, please don’t hesitate to reach out to Jet, myself, or Robbie.

Moving forward, we are hoping for a few things:

-More access to IHSS caregivers! If you know anyone, or would be willing to sign up for IHSS to help Robbie out, please reach out to Jet ([email protected]). IHSS gives us 40 hours every week that would be covered by an IHSS caregiver, and we want to use them all, to reduce expenses as much as possible. Robbie now spends his nights unassisted, without a caregiver, a milestone we happily passed in January! In the past 6 months most of our expenses have been paying caregivers (now an out-of-pocket expense), and we will be looking, going forward, to further lessen the hours when a caregiver will be present.

-If you are willing to set a weekly or monthly date with Robbie to hang out for a few hours, that would be a huge help (and a balm to him!). Saturdays are great!

-alterations to Robbie’s car to make transportation easier and private;

-continued access to alternative and supplemental therapies.


We are grateful for any support you are willing to give us. We could not have done this, to the extent and style that it has been done, without all of you. Your waves of good wishes and positivity, your generosity and selfless soul. I adore you, each and every one of you; thank you for looking out for my father.


With love,
Nikita


Posted on July 24, 2017

UpdateImage

Posted on July 24, 2017

Hello friends! Nikita here. 

There is now a meal train page set up for Jet and Robbie!If you follow this link(https://www.mealtrain.com/trains/r3e6gw), you will be able to choose a day when you can bring something (and maybe get a good peak at Robbie's new digs!).

Though he has been for a few weeks now, I'm so glad to report that Robbie is safely and snugly home! He lolls about in his new bed and eats dinner with gusto from the plates you have provided him. Physical and occupational therapy visits at home sustain his need to move while we go through the process of enrolling him in the Cabrillo Stroke Center. Through your love and generosity we have managed to provide him a very very cozy little landing pad with almost everything he could possibly need. I am unfortunately no longer able to serve as his caregiver, but the folks we have found are each fantastic, compassionate human beings who are managing the tight corners of Robbie's new abode with aplomb. 

Alas, it can be lonely in a new house, even with a caregiver around. Not to mention our ever-loyal Jet needs a break sometimes! Do you want to come over? Bring some music, your latest sketches, a movie, or have an event that you think he would like to attend? Hit us up! You can message me through the fundraiser or call Jet: 831-421-1412... If you are conversely available to run an errand or so, either for Jet or Robbie, and haven't been added to the caravan, let us know. If you're already in the groove of visiting, please just continue as you have! ;)

We really appreciate all the support you've shown through these months as Robbie has healed and we have wrangled our many and various tasks and responsibilities to facilitate that healing. I honestly don't know where we would be without each and every one of you. You have given us the opportunity to provide Robbie all the help he deserves, and not only that, but you have buoyed him with your waves and waves of love. I, for one, will remain forever grateful.

Yours eternally,
Nikita Schoen 

Posted on July 7, 2017

Posted on July 7, 2017

Hi friends!

It is my absolute joy to tell you that Robbie is going to be discharged on the 12th of July! He is eager as all get out, as you might imagine, to finally be finished with his "short tour of California facilities."

His apartment is coming along just fantastically; thank you so much to everyone who has contributed to the space with your selfless assistance and glorious goodies.

We are selecting caregivers for Robbie through IHSS, and are in the process of putting dad's Home Health system in place, by which he will receive nursing and therapies at home. In time, he will be enrolled in the Cabrillo Stroke Program and other outpatient therapies and treatments. With the money we have raised, we will be looking into enrolling dad in some more specialized therapies in the hope of getting his left hand going again, but we will have more on that when the time comes. In the mean time, he will continue to work on regaining strength and balance. 

We've got a healthy list of folks who are willing to help us with groceries, errands, company, etc. once dad is discharged. If you'd also like to help out, go ahead and shoot me a message and I'll add ya to the caravan!

I am grateful, from the bottom of my heart to the top, for you. 

-Nikita.

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