Posted on March 19, 2018
Hey friends, over the last few weeks, River has been in and out of the hospital, fighting infections but also making progress in how he interacts with the world. His eyes open all the way now and he moves more than he used to.
Despite the setbacks of these last hospital stays, we were able to get 4 Hyperbaric Oxygen treatments, meet a wonderful man over there who referred us to a doctor we should see soon, we also got 8 sessions on the Bemer electromagnetic machine, some biomagnetism treatments and got the blood testing process going for an eventual stem cell treatment.
We also finally got the Physical Therapy evaluation with one of the best pediatric PTs in the US according to others in the field. Her name is Lauren Beeler and thankfully her practice is 5 minutes from home!
With your help we were able to buy a bundle of 40 Hyperbaric Oxygen sessions, pay for River's Nourish formula for the first few months (the best gtube formula on the market) and now we are looking at buying the Bemer machine because we've seen changes in River right from the start of these sessions and the doctor said that it would be better in the long run if we owned one, we would save money and also be able to do 2 treatments per day with River in the comfort of our home.
The next steps, as we share this fundraiser more is to pay for stem cell treatments, which apparently make a huge difference (have you guys seen the Mel Gibson and Joe Rogan podcast?) and to take River to more expensive therapies like the Brain plasticity center, where we could stay for a number of weeks and have extensive therapy using the latest technologies in order to stimulate River's brain to rewire itself.
Thanks to all of you. It's been a wild ride and you guys gave me a lot of faith in human beings. When I talk to people, I often hear "I don't know how you do it, I don't think I could ever go through something like this". The thing is River gives me so much energy. To see him fight like this triggers in me the most amazing strength, will to live and give, faith in all of us and in God. To see you guys come together for my little man is just so overwhelmingly beautiful. I never would have guessed that so many friends and strangers would take the time in their busy lives to think about River and to want to do something special for him. The messages we get, the love and the hard earned money from people who a lot of times did not even know River makes me feel so hopeful! Much love coming your way. Big hugs to all of you!