We are raising money to purchase a wheelchair van for our three year old daughter Piper.
Piper was born missing a critical structure in her brain, the corpus callosum, which connects the two hemispheres of the brain. Due to the structure never forming, it causes severe debilitating epilepsy. Piper had her first seizure at 3 months old and after weeks in the hospital she was diagnosed with Aicardi syndrome, a rare condition that affects girls only. The syndrome has three markers, intractable epilepsy, partial or full absence of the corpus callosum and retinal lacunae (holes in the retina). Intractable epilepsy is a form that is almost impossible to treat with pharmaceutical medicine. Piper "failed" 9 medications and a special diet. Her prognosis was poor so we chose to leave our family and friends and move across the country for medical cannabis. For the first time in her life she is free from the horrible side effects of seizure medication and thriving for once in her life. She is getting physically stronger but at a very slow rate, and the chances of her walking are very slim.
Since her diagnosis, seizures have limited her development and she is currently at a 4-6month level for most areas of development. She is unable to sit, stand or walk and uses a wheelchair most of the day. She is getting bigger and it has become unsafe for us to lift her into the car. It is also very uncomfortable for her to be transferred so many times when we are out of the house. A wheelchair van will allow us to do more and transfer her safely into the car. We appreciate your love and support for our family!
To read more about Piper's story please check out our blog