Posted on April 4, 2016
I can only describe the last two weeks as some of the most tumultuous days I have had in the 21/2 years since I was diagnosed with glioblastoma.
It began on Monday 21st March with confirmation of the tumour regrowth at UCLH with Dr Paul Mulholland.
He concluded we had to act fast and secure a new cancer killing treatment within the fortnight.
Problem was, he didn’t have anything to offer really. All lines in the NHS have been long exhausted. The only remotely viable option was a private treatment, which had the potential of being extremely toxic to me as well as the tumour. The price tag of 120k was the most toxic part of all!!!!
In sheer desperation we did consider this as the ONLY way forward, particularly as the tumour is impacting my sight so much now.
However, after 2nd and 3rd opinions and good guidance I returned back to the German clinic to continue dendritic cell vaccines along with lower doses of these immunotherapy drugs.
This means the funds required have reduced by half.
With the generous loans and gifts we have received I am almost there which ensures I can also continue with the avastin drug to keep the swelling in my brain to a minimum whilst the drugs take effect. Two more visits in April then May and then an MRI scan in mid June.
Meanwhile on Tuesday 22nd March we met with Dr Clovis Fonseca from Brazil for a consultation and a prescription for perillyl alcohol infusions.
“No quick fix” but this treatment, which I will start this week daily at home will work alongside my immunotherapy treatment disrupting the cancer cells and encouraging them to die.
There are no miracle cures but I search for and try new innovations so I can prolong my time and quality of life, share my life with Jackie and see all my children continue in their lives.
So thank you for supporting me in this endeavour. We as a family are so appreciative of all the kindness, love and care we have received over these uncertain 30 months. I’m holding out for more…