I am Pamela Juers. My son's are John and Zane. I am here hoping you can be a Medical Guardian Angels. Allow us to heal, stay out of a shelter and allow me to stay at home caring for them
I have never felt entitled to a life of perfections. That is such a moving target. Our ideals of what that is changes as we develop insightfulness. I find the sweetest parts of life pressed out of the ripest fruits. I admit, that sounds more like cooking tips on making a great fruit salad. But seriously, my personal mantra is that our tears just water the soul and clouds shelter from the burn of regret.
We have been touched by a tsunami of medical illness. Our journey began in the month of October. In 2016, I entered a season of acceptance and stopped being bitter that my children's lives are not marked with happy developmental milestones. Or that my adult life is not full of destination photos and countries visited. We measure our years by numbers of IVs placed, surgical procedures, hospital admissions and number of medications in the home. We spent a total of 136 days in the hospital in 2016.
I am disabled with a spinal cord injury suffered in a car accident while pregnant. Since then not a single year has been without a surgery done on my body, or a day without pain strong enough to make breathing hard.
Zane (10) suffered some unknown injuries in utero. He had a hematoma on his head and GI disease. He has spent most of his life in the hospital. This month he was diagnosed with an intellectual disability of age 4 possibly forever. Migraines add to the number of hospital admissions. Along with chronic casting for syndrome fractures. He had a central line port place in August because his veins are scarred. Now severe adhesive allergies make every dressing put over IVs painful and leaving chemical burns.
At age 4, John suffered a Traumatic brain injury at school shortly after Zane was born. He fell face first into wet metal steps of a slide and took a blow to the frontal lobe. He has spent years in pain. The last four years his migraines have stopped life, putting him in the hospital every 3-4 weeks, non-stop. He has now developed pseudotumor cerebri. He is unable to write, cut food, tie shoes, etc. On any given day he may lose his speech, be unable to walk without collapsing, or trembling so bad, he has no grip. Regular spinal taps seize up his back, and other symptoms leave him frustrated.
Life is still sweet. When you have laughter in your home, when love keeps a continuous glow of warmth, when you adore one another, and see reason to have faith, life is sweet. I started by stating perfection is a moving target. Many days those moving targets are my children.
Please help us, and be that Medical Guardian Angel for us. I am calling it Angels for Our October. Somehow, that allows me to view this as a journey and story to share than simply a trauma to live.
Fall/winter clothing & shoes
Past due medical bills
Medical supplies/uncovered medications
Co-insurance % required for surgery
Extra hands at home
Ultra light wheelchair
Rolling walker with seat
Parking fees hospital charges
Prescription Migraine glasses
As you can imagine, anything relating to medical needs, cost can be crippling. For us it threatens our lives. These needs are critical and just weeks away from sinking me to the point of no return. I pray you can help. I am working out kinks on my blog site. But I will update here as we progress. Thanks for considering being an Angel of Our October.
Sincerely, Pamela Juers