Posted on August 16, 2017
*UPDATE* Saturday 7am packed and ready to fly out THEN-Cincinnati beam is down flight is cancelled! San Diego beam is still down! Trying to get an idea of what's really going to happen. There is talk of Baltimore as well but Baltimore is not a pediatric center...these are the only sites that share the same same style machine so all of Owens scans and gear etc could just smoothly transition over. Any other site (like St.Jude) would involve redoing several things that would put him out another week at least. There is also the thought that he could go to UCSD for tradition radiation 😰But couldn't start until Tuesday...
1130am We have to wait until tomorrow morning before anything happens- flight or not. If he goes to Cincinnati he will not get treatment until MONDAY. Best thing would be for the beam to be up and running tomorrow morning so we don't have to leave🙏🏼. We shall see
10am CINCINNATI'S BEAM IS DOWN NOW AS WELL
Sooooo... the proton beam in California (the one we use) has been down for three days now so Owen has been unable to receive any treatment any of those days! This is obviously upsetting and worrisome for us as it delays the rest of the therapies and time lines and he is not getting what he needs. There is a specialist arriving some time today from Germany to help the physicists figure out the issue--- but this means that Owen and Dad will be flying out to Cincinnati, Ohio today (praying) or tomorrow to receive treatment there for an uncertain amount of time.