Thank you for supporting OurBrainBank.
This is a world-first!
The first time a non-profit has been created by, with, and for people like me, living with Glioblastoma (GBM).
GBM is an aggressive and deadly brain cancer. It is highly aggressive, complex, and rare. Just 18K people are diagnosed, and 13K die each year in the US alone. The 5 year survival rate is only 5%.
I was diagnosed with GBM in January 2016, while hiking with friends. I was blind-sided by finding that my life had turned upside down. Frustrated by the paucity of treatment options, scarce research, and terrifying life expectancy, I got together with other patients, neuro-oncologists, tech experts... and together we created OurBrainBank.
Our key tool is the OurBrainBank App. It allows people like me to manage our disease better by tracking our symptoms and activities. At the same time, it gives us the magic ingredient of hope, because we know that our personal data is helping to fast-track new treatments and approaches to move GBM from terminal to treatable.
All patient data we collect will be de-identified and made freely available to qualified GBM researchers worldwide, subject to approval from OurBrainBank's Data Access Committee.
We believe that self-tracking technology has the potential to have the same impact on GBM as a blockbuster new drug.With your support, we can make this happen.
Patient data is the new currency in medical research. Mobile apps are the new empowerment tool for patients.
OurBrainBank is an ambitious and pragmatic response to these realities. We are turning our disease into desperately-needed research fuel, to power new treatments.
With your support, we can together realize the mission of OurBrainBank: to turn GBM from terminal to treatable, powered by patients.
Thank you for your support!
Jessica Morris, Founder and Chair