Posted on February 12, 2018
It seems the YouCaring email system is not very good. We did an update 2 weeks ago, but we didn't get an email notification it was sent out. We apologize in advance if this is a duplicate. If not a duplicate, please enjoy the update, and donate for 2018 if you can.
Last week Otto walked 140 feet with his new braces and a walker! He also received news from his neurosurgeon that all looks good.
January 26th update.
Happy New Year to all our Team Otto supporters!
Thank you for your past and continued support.
Team Otto is asking for your support again to fight through 2018. A few of you have already helped recently, so thank you! This will go toward continued medical related copays and deductibles, and especially durable medical equipment, which is a 50% copay. Also, some of the help will go toward general expenses for travel to his rehabilitation Schenectady and his internship in Albany.
This year if we can meet the goal of $10,000, 1/3rd of what was needed in 2017 and 1/6th what was needed in 2016, then we will donate 15% to other charities to pay it forward. 5% will got to the Spinal Cord Research Benefit in Brant Lake, which donates its fundraising directly to the Christopher and Dana Reeve Foundation. Another 5% will go to The Queensbury Hockey “Pink the Rink” fundraiser February 9th, which is to benefit a local 29-year-old man, Austin Lane, that was recently diagnosed with brain cancer. He and his wife are expecting their first child in February. The final 5% to the South High Marathon Dance (video) that helps up to 30 individuals and organizations. Otto was a recipient in 2017, and that helped him get through most of 2017. We can’t help not pay it forward for what everyone has done for Otto. Otto has over 500 supporters here on the YouCaring site. All it would take to meet this goal is $20 per donation/supporter. If you are not able at this time we understand, and we are eternally grateful for the past support.
OTTO’s PROGRESS UPDATE:
In the Fall of 2017, Otto had a minor setback with a trip by ambulance to the hospital due to muscle spasms in his stomach. It was lasting longer than normal and blood pressure was dropping, so we had to call an Ambulance to get him safely to the ER. The good news, the hospital stay was only a few hours, and he was having Baclofen withdrawal. Baclofen helps minimize muscle spasms. So, it was scary, but nothing that wasn’t fixable with medication. We are thankful it wasn’t something more serious.
In July and August 2017, thanks to the help of supporters online and locally, we were able to obtain a Segway, special seat, and car carrier. Otto has used it a bunch of times on the back roads, and he is hoping to use it even more when spring comes. It will be priceless to see him out on trails doing some nature phOTTOgraphy! Otto's Web Page
Back in August 2017 Team Otto had a meeting with Dr. Sally Temple of the Neural Stem Cell Institute. The tour and subsequent meeting was nothing short of amazing. It was good for Team Otto to see all this inspiring work taking place, but it was also beneficial for the technicians and researchers to put a face to their amazing work. When the meeting was over, Dr. Temple asked Otto to consider joining the team as a laboratory technician intern. After a short time considering it, Otto decided it was an opportunity he couldn’t refuse. Neural Stem Cell Institute
Since then, Otto has learned their new software to operate the stereomicroscopes. He hasn’t gone in a few weeks because they are currently getting protocols and procedures ready for a new study. Once that study is underway, he will probably be busy helping the project. There is hope that once a study begins he will get a paying position, but it’s all based on grants and funding available, so, it’s hard for them to predict.
This past fall Otto got fitted for custom braces to continue to practice walking at his rehabilitation visits. The eventual goal is to get strong enough to walk with arm crutches. This will be a tough fight. He could take a couple dozen steps using the generic facility braces with the help of the parallel bars or a walker. On January 23rd his second chance with his custom braces he went 40 feet with a walker. Today is the 2-year date since the accident, so this is absolutely amazing considering he was told he would never walk again by multiple specialists. It’s not easy, but he’s doing it.
Your help has made it easier to get to this point, so please consider another push.
These expenses will follow him his whole life, or until there is a cure, but by this time next year, our goal is to no longer need assistance, and 100% of money raised will be to for others who need help.
Eternal thanks, Peace and Love.
Otto, Sarah, Ian & Eddie
If you’d rather send a donation by mail, send a check payable to
C/O TD Bank
340 Aviation Rd
Queensbury, NY 12804