My name is Maggie and I am 37 years old.
There years ago I was diagnosed with Ehlers-Danlos Syndrome. EDS is a progressive, degenerative connective tissue disease. That means that my body produces defective collagen, which is essentially the glue that holds my body together. In my case, all of my joints are hypermobile and failing. It causes a massive range of symptoms, the largest being very easy dislocations and widespread pain throughout my joints and muscles.
EDS is rare and there is no cure.
A big problem that I have with EDS is that it's an invisible disease. From the outside, I look fine, but my body is literally falling apart. The greatest challenge I have related to EDS is that it's progressive. That means that over time I will get worse and need more assistive equipment until I end up in a wheelchair.
I am a single mother to a sweet 8 year old boy named Preston. He has Autism, Sensory Processing Disorder, Auditory Processing Disorder, Scoliosis, Celiacs as well as EDS. He has many therapies from speech therapy, occupational therapy and neurofeedback. He is my life, my love and the reason I need to keep going and not let EDS take my body from me.
I am doing my best to provide for him. I am on disability since I can't work in my condition. I have no support system of any kind, no child support payments and so I am need of your help.
The medications and vitamins that help me stabalize cost over 200 dollars every month (which are not covered by medical), and barely keep the pain down. I cannot afford the ones that would really help me. The cost of living from day to day has become so overwhelming that trying to save any is impossible.
I have been trying to manage without a car for more than 5 years now. Taking my son to therapy, doctors and hospital appointments. Transit takes a huge toll on my son and I, from the commutes to the physical aspect. All of this is wearing me down fast and I am losing my mobility.
Please help me raise enough money for a safe, reliable, used car that I can use to take care of us.
A donation of any amount is appreciated. And please share my fundraiser.
Thank you for taking time to get to know a bit about me.