iPad2 for Logan!

For: Logan Bensberg
Organizer: alexandra hoffmanpaterson
iPad2 for Logan! (Logan  Bensberg)
$800
of $800 goal.
Raised by 27 donors
100% Complete
This fundraiser is closed. Thank you for your support!

The Story

Raising money to help my 4yo son get an ipad he needs for many different areas as will be addressed in updates :) He has many diagnosis's that affect his everyday life which in turn makes our families quality of life non existent. daddy loses jobs all the time due to having to take time off or come home due to emergencies, our newborn is constantly stressed out, momma is at her wits ends and even the basic things are unattainable. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Logan's diagnoses
Autism Spectrum Disorder: aspergers and PDD-NOS Generalized anxiety disorder Sensory Processing disorder Separation anxiety disorder PTSD ADD/ADHD IED: intermittent explosive disorder Attachment disorder failure to thrive

Fundraiser Updates

Posted on September 13, 2012

Posted on September 13, 2012

A kind of update:

Well its been SO crazy lately meltdowns, official CPS case, and now Savvi my 5 month old is having multiple seizures.

I am SO sorry I have not updated I feel so horrible as I said I would do so. One day in some spare time I had -laugh- I wrote a HUGE update full of thoughts from the bottom of my heart and soul, history of logan, things about his new meds EVERYTHING clicked submit and it said my session timed out. I was crushed and part of that is why I have not updated lately.

He is now on Clonidine for sleeping and adderal to help his impulsivity for running away is what they hope. The clonidine worked AMAZINLY the first and second night but after that it is not working :( He sleeps a few hours and then OMG the meltdowns! HE had OVER 100 in a few hours and thank god our friend was here or I would not have been able to do it to be honest. He had what we now fondly call "cluster meltdowns" as before one meltdown ended another began. SO bad every little thing was HUGE.

His adderal works for about 4 hours as he is on a LOW does but after omg....jsut wow yeah. its bad

AMinly his Meltdowns are caused by frustration I believe as lately he says "hotdog" and we MAKE hotdog and he flips and iuts NOT hotdog he wants. One night daddy literally opened the fridge and freezer and said grab wha tis hotodog and I will amke it. He had another meltdown and we STILL do not know what hotdog is. The Ipad2 for logan I KNOW is aour ray of hope bc once he gets it we will implement an app we won -TalkTablet- and he can TELL us what he needs/wants. That would be an absolute miracle for our family. As right now we have an open for the next 6 months CPS case bc we mainly focus on his meltdowns, savvis health which now includes seizures, and would try to stop him from hurting himself or others. CPS did not care said we dont really clean and use them as an excuse. We HAVE eye witnesses of just how much we DO clean and what happens as our firend is now living with us bc of home issues and to help and/or a companion for momma during the long days daddy is at work.

CPS:

We now have to regardless of meltdowns, health, etc keep the house clean aND improve it. They said anytime the pictur3es they take everytime do not match and show improvemenet both of my babies are gone. It is CLUTTER not dangerous but becaus of so many reports by vindictive people, workers, and whatnot they said they have no choice. IPAD is needed even more now as we HAVE to improve or lessen the meltdowns so we can keep the house in order so we do not lose our children. They are our babies and not going anywhere. They will stay in the arms and hearts of the mother and father who love them with all our hearts and souls. Anyone who says we do not love our children PLEASE read my words and hear the plea and prayer from a mothers heart to help her children.

Savvi's Seizures:

We have seen them off and on since we almost lost her to Jaundice but now they are increasing in frequency and severity. Sept 10th about 12 am-6am she had a small seizures but then had an intense seizure where she was staring off for 10-15 minutes and we did everything to snap her out of it and then she started twitching, jerking, shaking, and her eyes rolled back. Thankfully we had an appt for her later that day for her asthma bwhich we added the possible seizures to the roster to talk to the doc about it AGAIN. THIS time we were referred to Fort Wayne Neurology in Lutheran Hospital. He was going to dismiss it when she had a mini seizure during the exam. Now he is wanting an EEG done over a 24-48 hr period and an MRI scan to show possible damage from the Jaundice.
Won't know when that appt is til they call us tomorrow as we just got back from fort wayne. Lots of times we had to pull over bc of logans meltdowns. LONG ride home after a LONG day.

So that is some of an update not much and im very sorry for that but need to get off of here and get back to cleaning and logan is starting another meltdown.

Tahnks everyone who reads this :)

Logan and Savvi's Momma

Posted on September 13, 2012

Posted on September 13, 2012

A kind of update:

Well its been SO crazy lately meltdowns, official CPS case, and now Savvi my 5 month old is having multiple seizures.

I am SO sorry I have not updated I feel so horrible as I said I would do so. One day in some spare time I had -laugh- I wrote a HUGE update full of thoughts from the bottom of my heart and soul, history of logan, things about his new meds EVERYTHING clicked submit and it said my session timed out. I was crushed and part of that is why I have not updated lately.

He is now on Clonidine for sleeping and adderal to help his impulsivity for running away is what they hope. The clonidine worked AMAZINLY the first and second night but after that it is not working :( He sleeps a few hours and then OMG the meltdowns! HE had OVER 100 in a few hours and thank god our friend was here or I would not have been able to do it to be honest. He had what we now fondly call "cluster meltdowns" as before one meltdown ended another began. SO bad every little thing was HUGE.

His adderal works for about 4 hours as he is on a LOW does but after omg....jsut wow yeah. its bad

AMinly his Meltdowns are caused by frustration I believe as lately he says "hotdog" and we MAKE hotdog and he flips and iuts NOT hotdog he wants. One night daddy literally opened the fridge and freezer and said grab wha tis hotodog and I will amke it. He had another meltdown and we STILL do not know what hotdog is. The Ipad2 for logan I KNOW is aour ray of hope bc once he gets it we will implement an app we won -TalkTablet- and he can TELL us what he needs/wants. That would be an absolute miracle for our family. As right now we have an open for the next 6 months CPS case bc we mainly focus on his meltdowns, savvis health which now includes seizures, and would try to stop him from hurting himself or others. CPS did not care said we dont really clean and use them as an excuse. We HAVE eye witnesses of just how much we DO clean and what happens as our firend is now living with us bc of home issues and to help and/or a companion for momma during the long days daddy is at work.

CPS:

We now have to regardless of meltdowns, health, etc keep the house clean aND improve it. They said anytime the pictur3es they take everytime do not match and show improvemenet both of my babies are gone. It is CLUTTER not dangerous but becaus of so many reports by vindictive people, workers, and whatnot they said they have no choice. IPAD is needed even more now as we HAVE to improve or lessen the meltdowns so we can keep the house in order so we do not lose our children. They are our babies and not going anywhere. They will stay in the arms and hearts of the mother and father who love them with all our hearts and souls. Anyone who says we do not love our children PLEASE read my words and hear the plea and prayer from a mothers heart to help her children.

Savvi's Seizures:

We have seen them off and on since we almost lost her to Jaundice but now they are increasing in frequency and severity. Sept 10th about 12 am-6am she had a small seizures but then had an intense seizure where she was staring off for 10-15 minutes and we did everything to snap her out of it and then she started twitching, jerking, shaking, and her eyes rolled back. Thankfully we had an appt for her later that day for her asthma bwhich we added the possible seizures to the roster to talk to the doc about it AGAIN. THIS time we were referred to Fort Wayne Neurology in Lutheran Hospital. He was going to dismiss it when she had a mini seizure during the exam. Now he is wanting an EEG done over a 24-48 hr period and an MRI scan to show possible damage from the Jaundice.
Won't know when that appt is til they call us tomorrow as we just got back from fort wayne. Lots of times we had to pull over bc of logans meltdowns. LONG ride home after a LONG day.

So that is some of an update not much and im very sorry for that but need to get off of here and get back to cleaning and logan is starting another meltdown.

Tahnks everyone who reads this :)

Logan and Savvi's Momma

Posted on August 30, 2012

Posted on August 30, 2012

my long post I had got deleted so I will try again later  :)


SO excited and grateful to all the angels for my son that have been donating.! I cannot believe we are at $61 already! that is insane!  Im so happy and excited that soon he will have his ipad and things will be so different and his world will blossom.

I cannot tell you how I am feeling admist a bunch of bad things this week. I had a at least 5 page update that when I pressed post deleted so I will do that again at a leater date. but thank you so much for anyone and everyone that is opening their hearts up to my son by donating, sharing, or caring :)

thank you so much :D






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