Help Alexis Clarke give back to UCSD NICU + Labor & Delivery

For: UCSD Medical Center NICU and Labor & Delivery
Organizer: Murphy and Laurie Clarke
$3,025
of $2,000 goal
100% Complete
This fundraiser is closed. Thank you for your support!

The Story

We are hoping to raise $2000 (or more if we can do it!) for the NICU at UCSD to help them continue to provide the best care for micropreemies, preemies and newborns in need.  Any donation amount, even $5 will make a big difference, will be greatly appreciated and 100% of donations will go to the NICU.  We know we are a little late in setting up this site, however we hope that you will join us by donating to such an amazing group of Doctors, Nurses and support staff that have kept our baby alive and given her such amazing hope for the future.

This blog will describe updates on her progress as our little angel grows and defies the odds as a true miracle.  For those of you on facebook these will be her same updates as posted on that site.

*These fundraiser details were written after the first couple of weeks of Alexis' life. The 'Updates' section of this blog has many more status updates, and will contain the latest posts:
Alexis Clarke was born on April 19, 2013 at 2:24pm. Her Mom, Laurie was 25 weeks and 3 days pregnant when we had to deliver Alexis, because of complications due to a under-developed placenta. She weighed 320 grams, or 11 ounces at birth. Alexis is in the NICU at UCSD Medical Center, surrounded by amazing staff 24 hours a day. In fact, she has a one-on-one nurse assigned to her at all hours of the day, and she is the official record holder as the smallest baby ever born at UCSD Medical Center. Her odds of survival at her size were low, and her odds of significant and permanent complications given survival were high. So far she is amazing the doctors with her strength and resilience, though the staff constantly reminds us that a baby of her size is a 'day by day' situation. There will be ups and downs, and we must hope, pray, and lend her strength to fight through it all. Please send positive thoughts and prayers her way, so far it is working better than we ever coud have hoped for! Alexis is Laurie and my first baby. She is beautiful, and although small in size has as much spirit and fight in her as anyone in the whole world. Before even opening her eyes, she has shown her personality. She squirms like nobody's business when poked and prodded more than she likes, and likes to sleep under the 'blanket' of our open palm for a little while. Sometimes she will reach up and grab a pinky finger, and she can get her hand about half way around. It melts our hearts when she makes those small gestures to tell us she knows we are there.

Besides the standard requirement for some help with breathing and extra oxygen for a baby of Alexis' age and size, she had her first real setback at 10 days when her blood pressure started to drop. The doctors had to introduce the first real medication that was not preventative to help keep her blood pressure stable, and now they are testing everything they can to find out what might be causing the problem. It could simply be her tiny size, but the UCSD staff is amazing and leaves no stone unturned. Two days ago she started taking her first milk, and whole half milliliter per 3 hours! She was digesting it quite well, and only had to stop taking it because of the blood pressure medication. So hopefully things stabilize soon so we can give her more milk and start adding some weight! Laurie has been pumping every four hours like clockwork, and is doing great. We have enough milk saved up to last quite a while for our little angel, and the doctors have told us that a mother's breast milk is unbelievably important for a preemie of Alexis' size.


Fundraiser Updates

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 24, 2013
Test results came back negative for whooping cough, RSV and the flu! We are all in the clear. They took her off of isolation and she is back to being in our arms with no protective gear!

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 23, 2013
Lex has picked up a little cough the last two days so they are concerned it might be RSV or whooping cough. So...they had to move her to isolation and we all have to wear gowns, gloves and masks when we are around her. We are hoping the results come back negative! It will take another 24hrs to get them back.

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 22, 2013
Yesterday we received some amazing news about Lexi's development. Her MRI looked awesome! Her brain matter is developing "normally", her brain takes up all of her head/skull, her blood spot from before is gone and her cyst is also gone. Shealso doesn't have a PVL which the doctors had been preparing for us to be there but it's not there after all. This means that her brain looks great and doesn't show any evidence of areas that would cause difficulties in her development. Just another one of the huge miracles she has shown us!!!!

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 20, 2013
We are almost 24 hours after the start of Lex's surgery and she is once again a little badass! While this recovery has been a little more difficult for her she is still proving what a strong little girl she is. They extubated her this morning and she is doing well. She has been a little tired today but she's hanging in there. She got her first bottle with 15ml of milk back at 3pm and she took it like a champ. At 6pm she got her second bottle, this time 30ml and she again was amazing. Her doctor has now said she can have all of her bottles back with as much milk as she wants. Our little warrior even had some tummy time today and was playing again! We are so proud of her! While she was intubated this morning they were also able to take her down for her MRI so they could get a clear picture of her brain that will help us get a better understanding of brain development. So now we will continue to work on her feeds and let her recover! Again, thank you so much for all of your love, support and prayers! 

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 20, 2013
Ok Alexis is out of surgery and in the recovery room. They were done around 11:45pm. The surgeon said the surgery went well bit he ended up having to remove the lens from her right eye. The doctor is going to closely monitor the progress over the next week. He should start to see regression of the detachment within that time. They have also informed is that she will probably have another surgery on about a month or so to put a contact in her eye to help her see. Thank you so much for all of your prayers, hugs and love. I know she feels all of it and so do Murphy and I.

Posted on November 26, 2013 by Murphy and Laurie Clarke
November 18, 2013
Well just when I thought that things were going so smoothly...I just got a call at 9:00pm from Lexis primary doctor that the eye surgeon came back to reexamine her eyes and said that she has to go in for emergency surgery tomorrow night to fix more detachment in her eye. I'm trying to keep it together and stay strong but I feel like I am one second away from a meltdown. My heart hurts for my little angel that she is going through all of this. Her emergency surgery has been scheduled for tomorrow, Tuesday night, at 6:30pm.

Posted on November 17, 2013 by Murphy and Laurie Clarke
November 12, 2013
The little patient is doing amazing! After having surgery for two hernias...one of her hernias even had an ovary in it that they were able to protect and put back where it should be...laser on both eyes and cutting into one eye, the little angel is only on Tylenol for pain. She was so happy today! She even got to have her bottles back! She's doing so well that they are kicking her out of the recovery suite tonight and moving her back to her crib. I am so proud of her! She's the strongest little girl I know!

Posted on November 17, 2013 by Murphy and Laurie Clarke
November 11, 2013 - Post #2
Our little girl never ceases to amaze me. Less than 8 hours after her surgeries she is playing and cuddling and so happy! Her strength is incredible!

Posted on November 17, 2013 by Murphy and Laurie Clarke
November 11,2013
Lex Lex is already making progress in her recovery. Try have already extubated her and put her back to nasal cannula. She's doing so well

Posted on November 17, 2013 by Murphy and Laurie Clarke
November 10, 2013
There's been a little change in the schedule for surgery tomorrow for Lex. As most of you know Lex also has a hernia that she will need to have surgery on before she can go home. Well thanks to the amazing work of nurse Jill Danna and Dr Krishelle Leong Marc Aurele they were able to convince both surgeons to do their respective surgeries at the same time! This means she will only have to be intabated and under anesthesia once! I am sooooo happy! The hernia surgery will be first and is about 30 minutes and the eye surgery will be about 2 hours...so about 2 1/2 hours total. I know it's going to be a tough recovery but our little angel is so strong and I know she is going to do awesome! Thank you so much Jill and Krishelle for making this happen!

About the Organizer


Verified by:

Verified by:

Verified by:


Comments

Supporters

Add Our Donation Widget to Your Site
Grab Our Widget

Help Alexis Clarke give back to UCSD NICU + Labor & Delivery

Grab Our Widget