Gabby's New Wheels

For: Thomas and Crystal Jankowski
Organizer: Crystal Jankowski
Gabby's New Wheels (Thomas and Crystal Jankowski)
$760
of $18,000 goal.
Raised by 14 donors
4% Complete

The Story

Gabby is our 10 year old daughter.  She was diagnosed with Rett Syndrome when she was one and a half years old.  Rett Sydrome is a neurodevelopmental disorder that affects girls almost exclusively.  It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disablities.  Gabby is non-verbal and non-ambulatory.
We have three daughters.  Our oldest is 19, she is a college freshmen.  She is to become a Music Therapist and wants to work children who, like her sister are developmentally challenged.  One of the things that almost always gets a reaction from Gabby is music.   Our middle daughter is 12, is in 7th grade and is a honor roll student. Gabby attends Larc School, a school for children with developmental disorders.  She loves school! 
We are trying to raise funds for this van so that we are still able to take Gabby out.  Not just to doctor appointments, although they are probably the most important places that she goes.  But she also needs to go out to just regular places.  To be able to go the grocery store, to the mall.  The school schedules play dates which are great for not only her, but all of the family to go to.   It is very easy as parents of child with special needs to become isolated. 
This van will not only be a way for Gabby to travel, but will also much safer for her.  As of right now, we drive a Ford Explorer and Gabby sits in a boaster seat.  Not the safest way for her to travel.  With this van, she will stay in her wheelchair, which is specifically made for her, and then strapped into the van.  We carry Gabby to and from the truck right now. This is no easy task as she is 65 pounds.  Then after she is in the truck, we have the task of putting her wheelchair into truck as well. 
Thank you from the bottom of our hearts for any help you can provide.

Fundraiser Updates

Posted on June 19, 2014

Posted on June 19, 2014

Sorry it has been so long since we have updated. Gabby has just spent 5 1/2 weeks in hospital. She was started on the Ketogentic diet which has helped to get some kind of control of her seizures and on that front she is doing much better. On the other hand, she is having more and more problems repository wise. After some serious decision making we decided to come home. Nothing more can be done in the hospital that we can't be doing here at home, therefore we would rather be at home. 
Suddenly this fundraiser has gone from what we hope will still be us needing this van to the possibility of us needing assistance with other things...such as final expensives for services for her. 
We are still not sure of what the outcome is at this point. We have been home for two weeks and all we know is that is she is struggling everyday. We do what we can to try and help her, but unfortunately we can not take this away from her or make this better for her. We would give anything to. 

Posted on June 19, 2014

Posted on June 19, 2014

Sorry it has been so long since we have updated. Gabby has just spent 5 1/2 weeks in hospital. She was started on the Ketogentic diet which has helped to get some kind of control of her seizures and on that front she is doing much better. On the other hand, she is having more and more problems repository wise. After some serious decision making we decided to come home. Nothing more can be done in the hospital that we can't be doing here at home, therefore we would rather be at home. 
Suddenly this fundraiser has gone from what we hope will still be us needing this van to the possibility of us needing assistance with other things...such as final expensives for services for her. 
We are still not sure of what the outcome is at this point. We have been home for two weeks and all we know is that is she is struggling everyday. We do what we can to try and help her, but unfortunately we can not take this away from her or make this better for her. We would give anything to. 

Posted on March 29, 2014

Posted on March 29, 2014

First, thank you to everyone who given and for sharing. It means the world to us. 
The last week has been rough. Gabby went to have her GTube (feeding tube) placed and had complications after the surgery and has been in the hospital in the PICU for 7 days. She is getting stronger and should be home today!!! But she also has several more pieces of equipment now and just shows us all the more reason of why we need this van. I'm not sure I will be able to take her out by myself at this point.  staying positive nonetheless, my baby is coming home!

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