Gabby is our 10 year old daughter. She was diagnosed with Rett Syndrome when she was one and a half years old. Rett Sydrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disablities. Gabby is non-verbal and non-ambulatory.
We have three daughters. Our oldest is 19, she is a college freshmen. She is to become a Music Therapist and wants to work children who, like her sister are developmentally challenged. One of the things that almost always gets a reaction from Gabby is music. Our middle daughter is 12, is in 7th grade and is a honor roll student. Gabby attends Larc School, a school for children with developmental disorders. She loves school!
We are trying to raise funds for this van so that we are still able to take Gabby out. Not just to doctor appointments, although they are probably the most important places that she goes. But she also needs to go out to just regular places. To be able to go the grocery store, to the mall. The school schedules play dates which are great for not only her, but all of the family to go to. It is very easy as parents of child with special needs to become isolated.
This van will not only be a way for Gabby to travel, but will also much safer for her. As of right now, we drive a Ford Explorer and Gabby sits in a boaster seat. Not the safest way for her to travel. With this van, she will stay in her wheelchair, which is specifically made for her, and then strapped into the van. We carry Gabby to and from the truck right now. This is no easy task as she is 65 pounds. Then after she is in the truck, we have the task of putting her wheelchair into truck as well.
Thank you from the bottom of our hearts for any help you can provide.