Ona was diagnosed with a baseball sized brain tumor (Medulloblastoma) in June 2011 at the age of 7. After 10 months of intense chemo and radiation she was NED, just weeks after celebrating her 5 year anniversary a routine followup MRI, on 4/17/17, showed a new tumor had grown. Ona's tumor was removed and she was left with what we knew as reactive cells in her brain stem. After beginning chemotherapy she began to have symptoms of increased pressure on her brain. A new MRI showed that the "reactive cells" were indeed a tumor and had grown, leaving us with only radiation for treatment. Ona has completed Radiation and because of the type of tumor DIPG (diffuse intrinsic pontine glioma) we have been unable to find any continuing effective treatment here in the United States.
Ona has been accepted into a program in Monterrey Mexico that offers us hope of quality life beyond the median survival time of 9 months post diagnosis. Patients from all over the world have traveled to be treated by the clinic due to the positive results that have been seen there. Because this treatment is not in the US insurance does not cover any of the treatment which must be paid in full before each treatment can be administered. Estimated cost and time breakdown is,
minimum of 4 Intra Arterial treatments to be administered 17-21 days from the last at a cost of $16,000 per treatment.
Minimum of 4 Immunotherapy treatments once Ona has been off steroids for a while at a cost of $17,000 per treatment.
these costs do not cover travel and lodging fees, there are also regular monthly fees from home to consider as well. As I am a single parent unable to work while all of this is going on we can use all of the community support that we can get. For more information on Ona and her journey so far please follow www.facebook.com/Cancercankissmyheinie/