Posted on April 12, 2017
Posted on April 12, 2017Olly as had some great days, and some not so great days lately. His doctors want him to have some more scans and tests. They say while he doesn't seem to be getting any better, they want him to have some improvements. So we may be looking at yet another treatment change.
We are having to travel to San Diego early for these scans and that means not having a guaranteed place to stay at the Ronald McDonald House. We need to be able to cover meals a d a hotel... and that's just not possible right now. Any help youyou can give would be greatly appreciated!
Posted on January 25, 2017
Posted on January 25, 2017Olly is tolerating this new chemo well. He does have some reactions, but they are manageable.
He has started fainting when changing position or when startled. They endocrinologist and oncologists are trying to figure it out.
The doctors have decided we can go home for the weekend.... but we have to come back next Tuesday for the first IVIG treatment just in case he has a bad reaction.... so yet more travel.... but, HE IS WORTH IT!
I want to thank everyone who has helped us so far, we have managed to keep both home and hospital afloat AND we paid off the remaining balance on a major medical bill, that is such a stress relief! Thank you all so so much.
-ShN, Olly's mom
Posted on January 18, 2017
Posted on January 18, 2017The doctor told me today: "Now is the time to make memories, for Olly, with Olly, for yourselves, with your other kids... before the inevitable arrives and you will be too wrapped up in his care and then after."
I can't tell you how much this floored me. We have been just barely scraping by, barely making ends meet.
We have paid bills, and are surviving in 2 separate locations right now... but how do we make memories like that? For example, we were given Legoland tickets... which is AWESOME! But travel to and from, hotel, food, etc while we'really there makes that an impossible thing right now... how can we do something like that with everything else looming? There are things that we feel we should do to make these memories. But we just cannot afford it. Thank you all for your love and support... we are so grateful.