Wednesday night, April 16th 2014 Maiyanna fell asleep in death. The princess fought a truly courageous fight, a fight in which she showed everyone around her the true meaning of strength and love. Maiyanna was with family in her own princess castle when she ended her journey. This was a long and hard journey that Maiy's mother, Mycah was by her side from the beginning to the end. With her every step of the way throughout her journey , Maiy's family , friends, old and new , provided Maiy strength, support and love. Maiyanna's battle has deeply effected everyone's life who she came across. The foundation will carry on awareness efforts, support DIPG research and honor Maiy's memory in every way possible. Maiyanna's family truly appreciates everyones thoughts and prayers.
Maiyanna is a beautiful 3 year old girl that recently ended a round of radiation treatment, that combined w/ her all natural foods diet have shown some positive signs. She remains strong and well spirited in this battle for her life. Her fight continues and we hope your support will too! #FightDIPG #MaiysMiracle
On May 19th, 2013 Maiyanna unexpectedly complained of not being able to see. Her loving mother immediately took her to the hospital in Pittsburgh, PA. Maiyanna was soon diagnosed with DIPG, a very rare and aggressive form of brain cancer. Maiy soon after began radiation treatments May 31st, 2013 in the fight to save her life.
What is next?
Maiyanna is remaining in good spirits, as she has to face this battle every morning. She is currently on a strict diet and needs constant monitoring. This diet is one that consits of all natureal foods that are very costly. She is an amazing young girl who, with the support of her family, is trying to fight the odds. We hope to continue to raise money to support her fight against cancer and get her courageous story out.
Maiyanna is currently undergoing aggressive daily radiation treatments in Pittsburgh. She is remaining in good spirits, as she has to face the hospital every morning. She is currently on a strict diet and needs constant monitoring. She is an amazing young girl who, with the support of her family, is trying to fight the odds.
These cancerous tumors are treated with radiation therapy, which are high-energy X-rays that destroy tumor cells. This treatment can reduce symptoms significantly, but there may be some permanent damage caused by the tumor which can’t be helped. Steroids, another type of drug, are often given to improve some of the symptoms. Surgery is not part of the standard treatment because the tumor has grown within a part of the brain where resection is impossible.
The Road Ahead
Maiy’s family continues to hold out hope and look for any progressive ways to assist in the fight against DIPG. Since DIPG funding is one of the lowest amongst the various forms of cancer, there is not a large amount of specialized research.
A Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor located in the middle of the brain stem. Approximately 150 to 200 children diagnosed with DIPG each year.Over 90% of children diagnosed die within 18 months, 97% within three years. The typical survival time is 9 to 12 months. Usually diagnosed in children from ages 5 to 10. There has been very little advances in treatment options in over 30 years.
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