Thanks to a passionate friend on the other side of the country I learned about SMA. Sadly is was due to the loss of her friends child. From this terrible loss a strong desire to help came about.
This created the Victory for Violet Annual Fundraiser event. In it's third year, this event gets bigger and bigger every year. Generating more and more awareness and help.
Proceeds from the event are donated to Families of Spinal Muscular Atrophy a non profit tax exempt organization.