Posted on July 14, 2017
Posted on July 14, 2017Well we just finished week 1 Month 2 consolidation and Nik is starting to feel the chemo. He has been very nauseous lately and we have had to revert to the patch to keep the nausea under control. We have been working on a wish list of things he would like to do in his lifetime. We were able to knock Legoland off the list in June when he got a break from treatment, and it was a blast. Now with Nik's 11th birthday right around the corner we are looking at a helicopter ride for Nik and Dad. We would love to be able to give him this experience for his birthday present. If anyone has any contacts they can send our way that would be much appreciated. Nik cannot go by himself, so Dad has to go with him. We will be finishing up Consolidation hopefully on a positive note. Nik's ANC which is his army of fighters in his body has been around 900. They like to keep it between 1000-1500 so he isn't doing too bad. He isn't on lockdown right now but we are being very diligent about where he goes and who is around. Unfortunately, it looks like he won't make camp this year, which has really bummed him out, but we have the next year to look forward too. That's all the news for now, thank you so much for all your love and support! Please share his campaign.
Posted on July 8, 2017
Posted on July 8, 2017Hey everyone, so we found out the last 2 phases Nik was on in April and May were considered Modified Maintenance and a way for him to get chemo while monitoring how his body would react to it. In June he started Consolidation. This is a little harder of chemo and he typically has 2 weeks of chemo everyday for 4 days. Then 1 day a week for 2 weeks. It is a complicated schedule and I am very thankful that it is taking place during the summer months as his Numbers have dropped tremendously. At the end of this first month of consolidation we found ourselves on home lock down because of his low counts. We are hoping that being on this lock down and keeping him away from all the germs out there will bring up his counts so that he can continue treatment on Monday. The next phase will bring 72 hour hospital stays every other week and then the phase after that will bring chemo 5 days a week at clinic for a month. This is going to be trying on all of us, especially since I am the only one who can take him. Cal will need to make sure he is at work without taking FMLA days because we just cannot afford it. This is going to be a trying time for our family both spiritually and financially. We have decided to homeschool the kids as this is the only way to ensure that we all get to spend time together and are not held to a strict schedule. We are sure through God and through our friends and family that we can beat this cancer and make it through to maintenance. As always we thank you all for your continued love and support!
Posted on April 5, 2017
Posted on April 5, 2017Hey y'all its been a few days since we have posted. Nik is doing well, he is on the 2nd week of his consolidation phase. So far he is handling the harder chemo pretty well. They still haven't upped his chemo to the full dose yet, but are slowly working that way. It is going to be a long process. He still isn't able to go back to school and we aren't sure when he will reach maintenance so that he can go back to school. If you didn't know this strong little guy had cancer, you wouldn't guess it from being around him. He is super strong. Occasionally he gets down and his sickness shows through, but for the most part he hides it well. I have never met anyone as strong as the kids I have had the pleasure of meeting since Nik got diagnosed. They go through needle pokes, surgeries, harsh chemical drugs, their little bodies fighting against them, and doctors constantly poking and prodding them. The things they handle on a daily basis would knock a grown adult on their butt. These kids deserve so much more than us warrior moms and dads can give them. They deserve Gods blessing and a cure. My son has gone through more in the past 5 months than I had ever imagined he would in his life. Now he has found something that makes him so happy and brings peace to his soul. THE GUITAR! he absolutely loves playing music. His friend is teaching him guitar on his Grandpa Fred's passed down and signed guitar which means the world to him. Nik isn't going to be able to go to junior high and learn an instrument like his friends, he isn't going to get to go to his 5th grade graduation, or the first day of Junior high, but he will get to learn the guitar. His dad and I want to make this happen for him. His friend is amazing and still learning himself, now if his dad and I could make private lessons happen, I think we could keep that smile on Nik's face a little longer.