NICU Journey Bead Support Program #YouCaringGives

For: NICU Families
Organizer: PeekabooICU.org, Jodi RN
$1,520
of $10,500 goal.
Raised by 30 donors
14% Complete
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The Story

The Peekaboo ICU NICU Journey Bead Program is currently in eighteen (18) hospitals and growing! But we need your help to expand and reach more families! It is our hope that all hospitals and every NICU parent will have access to our family support based NICU bedside program.

With healthcare reform and recent budget cuts, it is difficult for hospital units to find the funds to implement such a program. Most hospitals have a budget that allows for new medical equipment and therapies, but they often overlook or don't have the additional funds for programs that bring support to the bedside. But family support is so important, especially in the NICU.

We want to raise enough money to cover the cost of implementing the NICU Journey Bead Bedside Program in fifteen (15) new hospitals around the country.

This is where you can help!

Become a Preemie Champion by helping to sponsor a current NICU baby or bedside bead program. 100% of your donation will go directly into program funding! Your sponsorship will help bring this much needed educational support program into the hospitals and hands of the parents who need it the most!

In a crisis, medicine responds with integral sophistication and scientific precision. But babies and their parents need human connections in order to fully heal as well. How do we reclaim this human connection in such a medical world? For NICU families, the Journey Bead Program does just that. It provides a way to connect with families that doesn’t include wires, tubes, needles, & medical terminology. It helps them celebrate the small, but very significant steps in their journey.

When families are given the tools and information they need to help parent in the NICU, it changes how they view their experience. The Journey Bead Program leaves an impactful and meaningful difference for families. It not only relieves some of the fear, but it normalizes some of the experience and in turn helps parents cope better, have less anxiety, & feel more confident.


The Peekaboo ICU NICU Journey Bead Bedside Program has been life changing for both the parents and the healthcare teams within the units that the program has been implemented.

Here are some first-hand accounts of its impact:

“The program was so wonderful. Each bead felt like a step closer to home.”-Heather

“When my preemie was born at 23 weeks your (developmental milestone) book was so helpful and informative! It really gave us some detail on the things our beautiful little girl was going through as well as the ability to do some reading ahead to see what to expect in the coming weeks or when things would change. I was so glad our NICU had it!”-Jenna

“The NICU beads were a major part of MY healing process after our 135 day NICU journey. It means so much to me!”-Cassie

“My twins were born at 26 weeks. My daughter spent 93 days in the NICU while my son was there for 117 days. While they are both home now, I still have hard days when everything they experienced comes rushing back to me. The NICU Journey Beads remind me how far our twins have come and help me to see all they have endured. These beads never leave my arm. Thank you is such an understatement.” -Meredith

"I appreciate all you do to help us commemorate our journey. The NICU surely changed me as a mother. Your program changes lives and helps us to give our children a way to make sense of their journey. My daughter especially is a very tactile child and this gives her a way to visualize and ask questions about her journey. It is hard to believe it has been 5 years since I started this journey and got my first beads shortly after.Your program is so wonderful and you are equally wonderful!” -Gretchen

“Thank you for the beautiful Journey Beads that I received a few days ago. I have been putting the beads and charms in order of the preemie baby's milestones that he has achieved. I'm so emotional working with these Journey Beads that my eyes just brim with tears. Everything is so touching. I can hardly wait to give this special gift to Baby Christian's mommy. And, his daddy will appreciate this gift to his wife, as well. If I am this touched, I can only imagine their reaction to the Journey Beads and Storybook about their newborn son. The baby is doing great and eventually he will become a butterfly!”-Carolyn



"I alone cannot change the world, but I can cast a stone across the waters to create many ripples." -Mother Teresa



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